Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family


Marlene

Recommended Posts

Marlene Contributor

So this weekend we are having my family's annual get-together turkey dinner. I was actually looking forward to going because other than stuffing and gravy, I can eat everything that we usually have at these dinners. (I would be bringing my own dessert.) Last night my sister calls. She is in charge of what everyone has to bring this year and she decided to make it a pot-luck dinner. We will still be having turkey but instead of the usual fare, she wants everyone to bring a casserole, and salad or dessert. I told her that was too bad since that means I will probably only be able to eat turkey and whatever food I bring along. Her response? "So??" Yup, that is what she said. I just stood there on the phone, mouth hanging down to the floor in complete silence. She has a daughter who is diabetic so I really thought that of all people, she would understand about food restrictions. I realize that I am only one person in a large family but I was very hurt by her response. Potlucks are a nightmare for me. I tried explaining to her why this is but I don't know if I got through. She told me to get her a recipe and she would try to make something that I could have too. She then suggested a casserole which is smothered in cheese. I can't have dairy. I told her not to bother. I realize that these people don't live with this every day but after the last family get-together a few months ago where there was not one single thing that I could eat, I am getting really discouraged.

Am I over-reacting or would you have been hurt by her attitude as well? I don't think people who can eat anything realize how isolating it can be to always be "different" when it comes to social events that focus on food.

Maybe the best way to look at this is to realize that people are basically self-centered and I should not hope for understanding from anyone. Not even family, not even my sister who I have always been quite close to. Even though every time they have come to my house, I always made sure I had the right food/ beverages on hand for her diabetic daughter.

I am sorry this ended up being such a long post. I am just feeling very sad today.

Marlene

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I understand completely, though I wish I didn't!

I think it's easiest to expect NOTHING. That way when someone goes out of their way for you, you will appreciate it. It saves you from being constantly disappointed. It's just shocking and disappointing to find out people don't care ... especially when it's someone you thought did.

Link to comment
Share on other sites
ptkds Community Regular

I am so sorry about this. I know the feeling w/ potlucks. We have potlucks at church alot and I dread those because ppl will always give my toddler food or allow their toddler to "share" with her.

You can always say that you can't go because you are scared you will get sick, or take all of your own food and make a point of saying how hurt you are that you can't eat w/ them anymore!

Good Luck

ptkds

Link to comment
Share on other sites
Creative-Soul Newbie
I think it's easiest to expect NOTHING. That way when someone goes out of their way for you, you will appreciate it. It saves you from being constantly disappointed. It's just shocking and disappointing to find out people don't care ... especially when it's someone you thought did.

I'm with CarlaB...it's best not to expect anything from other people; that way when they are understanding, its a blessing, but when they don't, we won't be all crushed. Also, rememeber how hard it is for us to navigate this way of life sometimes, especially in the beginning; it takes a real commitment on the part of others (and compassion & empathy) make the effort to learn about our condition and all the precautions we need to take for our health - it's not as if we're doing something to purposely make our lives miserable! :angry:

Even though you think that you're sister should be more understanding because of her daughter, sometimes it's hard for people to relate their experiences to other people...do you understand what I mean?

Link to comment
Share on other sites
kbabe1968 Enthusiast

:( sorry. People can be so cruel!

I'm concerned about my first family gathering since going gluten-free. BUT....

My husband has gout, so I'm ALWAYS concious of what's available to him for eating. To the point where I usually bring something I know is safe.

I'm am the complete opposite when I know someone has specific dietary concerns. I have a friend who has a daughter with severe milk allergies (even to soy and other stuff too). I always call her before she comes over, plan what we're going to have for lunch, go over the ingredients to make sure that there not one thing that would cause a reaction, etc.

Or if someone was vegetarian or diabetic, i would ALWAYS make sure there were special things. I would always not make a big deal about it, either. We had one friend who was a vegetarian (she ate dairy). If we were having a BBQ, i'd always make sure I had a pack of veggie burgers and dogs, and definitely a salad.

This year for christmas I did a whole bunch of baking for diabetics. I found ways to make almond biscotti and hot chocolate mix with splenda instaed of sugar! (now I'll need to learn how to bake glutenfree).

:)

I would say in the future...bring something you know you can have. I know that's a pain, but at least you'll eat.

SORRY she was so cruel!

Link to comment
Share on other sites
tarnalberry Community Regular

So "I'm sorry, I won't be attending. I'm not quite prepared to deal with my family emotionally abandoning me like that right now," isn't a response you're likely to give? ;)

I agree - expect nothing. Some people are selfish, some people don't understand. This Christmas, my inlaws and all of us kids were invited to an old family friends place. The hostess is a big cook, and while we told her we'd be bringing food that I could have (brought over a veggie lasagna, beet and ginger salad, a green salad, and baked apples), she still tried to make things gluten free. But the risotto had organic Swanson's broth (not gluten-free), the mashed potatoes had Rice Dream (not gluten-free), and I didn't even ask about the other things.

The next day, by brother in law, who IS very supportive, noted that he never realized how difficult it can be for me in someone else's kitchen, even when they try to cook gluten free. (I'd like to think that part of that is because I make it look so darn easy in my own kitchen. :P)

Point is - even the people who do get it, don't necessarily get it completely. I can't blame them, though - the level of paranoia we practice with very common items that are extraordinarily hidden from daily view is usually considered unhealthy.

Link to comment
Share on other sites
Nooner Newbie

Bring your own plate of gluten free, tasty food that can be microwaved when you're ready to eat, and enjoy yourself.

I'm going to be the devil's advocate here - your sister may just have been having a bad day. Or something else could have been going on. We all get wrapped up in our own dramas occaisionally. Don't write her off just yet. Take charge of your situation, bring your own food, and make a gluten free, diabetic friendly dessert her daughter can enjoy.

And maybe next year you can host the family dinner, and make the whole darn thing gluten free! :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    2. - Pua replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    3. - trents replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease

    4. - Wheatwacked replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    5. - Wheatwacked replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,838
    • Most Online (within 30 mins)
      7,748

    Pippa mcfarlane
    Newest Member
    Pippa mcfarlane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Pua, do you understand that genetic testing cannot be used as proof of having celiac disease as it only establishes the potential to develop active celiac disease? About 40% of the population has the genetic potential to develop active celiac disease but only about 1% actually develop it. However, it can be used as a rule out measure.
    • Pua
      Mahalo for all of the answers this has been super helpful. He is doing so much better on a gluten free diet. I may consider genetic testing as I never thought of that as an option and I definitely don’t want to go the usual route and have to give him gluten again for the test. It’s nice to have an “official diagnosis” but as long as he’s healthy I don’t care.  mahalo again!
    • trents
      Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave is referring to would be helpful. In addition, the ranges and units of measure used by different labs differs from one lab to another. There is no industry standard for these. So, we would need to know the reference ranges for negative vs. positive for that test used by the lab who did the analysis. And was there only that one test ordered by the physician? 
    • Wheatwacked
      When my son was weaned in 1976 he was diagnosed with Celiac Disease.  My mom said at the time. "you got what you gave." His doctor insisted on Nutramigen as the only hyperallergenic baby formula with full nutrition.  After 6 months he was weaned to gluten free diet.  It seems it still has that status. He has grown strong and well.
    • Wheatwacked
      Hi @Marilyn1941, Welcome to the forum. There is not enough info to go on.  What test name? What are the results and the laboratory's normal range they used?  Why were you tested? What kind of symptoms?  Age, sex and country would be helpful but not necessary. 
×
×
  • Create New...