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Kinda Gross...

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

Ok. From reading so many posts, it seems gluten affects a lot of people differently. Myself, I get this awful tasting gas in the form of burps, then I throw up, have D, throw up some more etc and that's my reaction. Whole episode from the yucky burps to the last toilet visit is about 10 hours.

I just wondered what happens to others when they get glutened.

Please don't think I'm wierd.

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Lisa Mentor
Lisa
Posted

Now, I have thrown up after a glutening. You may have some gastritis which results in the foul burping.

I would recommed that you stick to some plain foods for a while and see if it will improve.

Viola 1 Rookie
Viola 1
Posted

"D", throwing up, dry mouth, brain fog, muscle pain, blisters, cramps ... did I mention brain fog, shakey, and yup, some more brian fog <_< Do my very best to avoid contamination.

mtdawber Apprentice
mtdawber
Posted

Foul taste in my mouth, moody / grumpy, D, brain fog, blisters, cramps, itchy, sleepless nights.... so much fun.

Shirley - I love your new picture!

Viola 1 Rookie
Viola 1
Posted
Foul taste in my mouth, moody / grumpy, D, brain fog, blisters, cramps, itchy, sleepless nights.... so much fun.

Shirley - I love your new picture!

That's my Sheba (Shiba Inu) doing a stand stay, but as she spotted a squirrel I wasn't quite trusting her as you can see by my hand. :lol:

mtdawber Apprentice
mtdawber
Posted

Tucker - my chocolate lab in the picture is the same way with squirrels.... He loves to make them run up the tree in our backyard. LOL :P

BlueJeanz Newbie
BlueJeanz
Posted

My symptoms: pain in lower abdomen (like razors in there), bone pain in hips and ribcage, arthritis like symptoms in knees and hands, dark circles under my eyes, the big "D", urgent and frequent urination, ringing in my ears, wheezing that you can hear from across the room, swollen feet, depression and mood swings (to say the least! maybe because I'm P.O.'d at myself for being stupid enough to get gluttened).

But, I'm so new to all of this that I'm still learning - the hard way.

I have only a "possible and questionable Sprue" diagnosis from the Gastro doc and no blood tests because I had "figured it out" before seeing him and was on a gluten-free diet for 5 weeks. I don't want to gluten myself just to have the test. :wacko:

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ArtGirl Enthusiast
ArtGirl
Posted

Gee, some of these symptoms are really awful. I guess I'm not so bad off, afterall. Mostly urgent and frequent and violent D, irritability, fatigue and generally feeling crappy - for about two days, then a week of being sluggish. Even so, I really don't want to be glutened, either. I LIKE feeling good!

amybeth Enthusiast
amybeth
Posted

I'm pretty much a "lighter" case, in comparison.

Within no more than 20 minutes of ingesting gluten, I will have extremely urgent D (really inconvenient if I'm eating out!). Then, I feel physically drained (no pun intended) for the rest of the day - lack of energy, exhausted, totally wiped out. It almost feels like I'm instantly depressed. That could be because I'm frustrated by glutening myself - but I remember pre-diagnosis, the same feelings would occur before I even realized I was causing the situation. My stomach doesn't really hurt, but it kinda feels like a dull ache like after you've had the wind taken out of you??? (hard to describe). That typically lasts the rest of the day.

I'm suspecting that every once in a while I have the complete opposite C after I've been gluten-ed, but I haven't been able to track that so I can be certain.

Interesting topic b/c it's amazing to me how this impacts all of us SO differently!

oh, yeah, I forgot brain fog! (LMAO)

Viola 1 Rookie
Viola 1
Posted
My symptoms: pain in lower abdomen (like razors in there), bone pain in hips and ribcage, arthritis like symptoms in knees and hands, dark circles under my eyes, the big "D", urgent and frequent urination, ringing in my ears, wheezing that you can hear from across the room, swollen feet, depression and mood swings (to say the least! maybe because I'm P.O.'d at myself for being stupid enough to get gluttened).

But, I'm so new to all of this that I'm still learning - the hard way.

I have only a "possible and questionable Sprue" diagnosis from the Gastro doc and no blood tests because I had "figured it out" before seeing him and was on a gluten-free diet for 5 weeks. I don't want to gluten myself just to have the test. :wacko:

Welcome to the board BlueJeanz. It is funny that one gets frequent urination along with D. I forgot to list that, but you are right, I think it's fairly common.

And Amybeth, how could you forget brainfog :lol: That always drives me crazy. I get it so bad sometimes that I'm scared to drive.

Electra Enthusiast
Electra
Posted

Gas, bloating, pain in my ribs, migraines, frequent urination, constant hunger, spots before my eyes, altheimers like brain fog, lower leg numbness, cramps, coldness, and burning, EXTREME moodiness, EXTREME depression, stabbing upper stomach pain, eye itching, arm and hand numbness, blackouts, having conversations that I don't remember, being told that I was saying things that didn't make sense and I didn't remember it, constant side aches that feel like overy pain, EXTREME exhaustion and fatique, tiny red dots on my hands sometimes that look like little blood vessels have poped under my skin that come and go, finger prickling, irrational reasoning.............

Should I list more LOL!!

x-tina Newbie
x-tina
Posted

i guess i have it pretty easy..i think it's because i've had it for awhile...but i seem to get "D" within a few hours after i have gluten...but one question...is stomach pain, coldness, hand numbness, eye itching, leg numbness...is all that stuff related to having gluten...cause then that'd solve why i sometimes get that...hopefully it is.... :D

Carriefaith Enthusiast
Carriefaith
Posted

My reaction to gluten is sort of mixed in with my wheat allergy reactions so I find it hard to differentiate the two. These are the symptoms I believe are celiac related:

Brain Fog

Fatigue

Anxiety

Nervousness

Insomnia

Irritability

Depression

Gas

Bloating

Constipation and/or diarrhea

Stomach pain (can be severe)

Nausea

Electra Enthusiast
Electra
Posted
i guess i have it pretty easy..i think it's because i've had it for awhile...but i seem to get "D" within a few hours after i have gluten...but one question...is stomach pain, coldness, hand numbness, eye itching, leg numbness...is all that stuff related to having gluten...cause then that'd solve why i sometimes get that...hopefully it is.... :D

Well YES pain, coldness, hand numbness, and leg numbness are ALL signs of Celiac. The eye itching is a theary of mine because I actually have allergy eye drops for my eyes that don't always work and I hadn't had any eye itching for a very long time and then Thursday I was cleaning all day and I wiped up bread crumbs and before I got to wash my hands I itched my eye and within minutes it started itching wildly. I immediately made the connection and assumed it was because I had rubbed my eye with gluten crumbed hands and so I have to be very careful about that from now on. I'm not sure if the gluten I had wiped up caused it or not, but I'm almost positive it was the culprit!! I wouldn't be surprised if that's been my eye allergy problem from the beginning!!

I hope you are feeling better soon!!

Sillyyakdidi Apprentice
Sillyyakdidi
Posted

well, at least its good to know that i'm not the only one who gets sick sometimes. i hope none of us feel like this ever again!

blueeyedmanda Community Regular
blueeyedmanda
Posted

"D" is my big one, brain fog, mouth sores, skin break-outs on my face, itchy skin, fatigue....and very depressed moody and very foul outlook on everything in general. The sad part of this is the last set of symptoms....I am a very happy person and when I get glutened some of the things I say or think are so bad.

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    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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      My Adult daughter is blaming me for her "possible" Celiac disease.

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      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
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      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
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      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
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      Oats gluten free?

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      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
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