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New Here With A 3 Year Old Possible Cd

rgeelan

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rgeelan Apprentice
rgeelan
Posted

My son has been sick for about 3 months now and we are dealing with Military doctors so we had to go in multiple times over the same issues. He has a chronic stomach ache, he has diarhea and vomiting, just generally unhappy... 2 weeks ago they did blood tests and yesterday (after 2 days of calling and getting the run around from the clinic) our ped finally got ahold of us and told us one of his tests came back + for celiac disease. We go for more bloodwork tomorrow and then a biopsy on Friday. I am hoping that this is the answer to more than just why he has been sick the past 3 months, but maybe also to his mood swings and sleeping issues also.

If his biopsy confirms the diagnosis of celiac disease than my daughter and I will also be tested for celiac disease because she has the same symptoms he had as a baby and I have many of the common misdiagnoses...

Anyway just wanted to introduce myself.

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tarnalberry Community Regular
tarnalberry
Posted

Welcome! Good luck on the tests and biopsies, and don't forget to keep feeding her plenty of gluten until those tests are over!

rgeelan Apprentice
rgeelan
Posted
  • Author

We started taking the gluten out today because we wanted to make him feel better and they said it wouldn't effect the tests done tomorrow or Friday, is this wrong? I am sure he would love a pb and j on wheat toast. lol!

Btw is there an easy way to find new posts here? I posted then it dissapeared and took a while to find it again. lol

gf4life Enthusiast
gf4life
Posted

It's just a matter of a day or two. If I were you I would keep him on gluten for that amount of time. The intestinal lining heals quite quickly and you don't want to increase the risk of getting false negative results.

That said, When you post a new topic it goes to the back page of that forum, waiting for a moderator to read it and make sure it is in the correct area. Then it gets "pinned" and moves to the front page where more people will see it. It will also show up on the list of new posts if you click on the "View New Posts" button up near the top of the page. And you can always find your own posts (or any member's posts) by clicking on the member name on the left side of the screen on any post and then click on "Find all posts by this member". It will give you a list of all posts made by any member you choose in order of most recent.

I hope this helps. celiac3270 put up a topic called "All Newbies, Please Read" and it contains a lot of great information to help you get your way around the message board easier. I suggest you check it out. He explains it better that I do. You can go directly to it with this link:

Open Original Shared Link

God bless,

Mariann

tarnalberry Community Regular
tarnalberry
Posted

There seems to be a fair amount of disagreement between many doctors and all of us celiacs about how being off gluten - even for a short period of time - can alter test results. Of course, the really good celiac doctors do say not to go off it.

The trouble is, she might not have enough healing in that time to make a difference on the biopsies, but she might, particularly if you've got a lab tech who's looking for TOTAL atrophy, AND she's a fast healer. You may still get an accurate result, but by taking gluten out of her diet before the test, you increase your chances of getting a false negative.

As for the posts... I admit, I never look by section any more, and just always klick "view new posts" when I log in. :-) Such a handy tool :-)

Kim Explorer
Kim
Posted

Also, as long as your child is having the biopsy, ask the doctor to be sure that s/he is taking at least 6-7 samples while in there. some docs only take one and that's not enough because that one could happen to be an undamaged spot.

good luck. Kim.

celiac3270 Collaborator
celiac3270
Posted

You can find all new posts easiest in two ways:

- When you get to the site, go to the bar towards the top whree you have the option to log out, use my controls, search the board, etc. There is a button there that says "view new posts". Click on that and it will take you to all the posts that came after your last visit to the board.

- When you're at the first page of the board, the spot where you can see which members are online, view top ten posters, etc., there is a tab next to view top ten posters today that says "today's active topics". Click on that and you can get all the topics posted within the past 24 hours.......additionally, you can change the date range to see all topics in the past say, two days.

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    • trents
      Certified gluten free oats

      By trents · Posted

      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
    • robingfellow
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      By robingfellow · Posted

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    • Mr-Collateral531
      Can gallbladder issues cause symptoms of celiac disease?

      By Mr-Collateral531 · Posted

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    • trents
      Certified gluten free oats

      By trents · Posted

      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
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