Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Proper Welcome To Srokie!

Canadian Karen

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

Okay, let's start all over again:

Srokie, welcome to the board and I am glad you found us. There are a whole bunch of really helpful, caring, wonderful people on this board. There are also very knowledgeable people on here who will do everything they can to answer any questions you have.

Please forgive the confusion beforehand about the misunderstanding of you being a troll.

So, everyone, please, extend a proper welcome to srokie!

Hugs.

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 128
  • Created
  • Last Reply
mtdawber Apprentice
mtdawber
Posted

Welcome, Welcome, Welcome!!!

darlindeb25 Collaborator
darlindeb25
Posted
:lol: Welcome!!!!
jaten Enthusiast
jaten
Posted

Welcome. This board has been a life-saver for so many (including me). It's a comfortable place for those who truly want to work together to understand celiac and other gluten intolerance.

lonewolf Collaborator
lonewolf
Posted

Welcome! I hope you learn as much here as I have.

Michi8 Contributor
Michi8
Posted

Welcome! :)

Michelle

bluejeangirl Contributor
bluejeangirl
Posted

Welcome Srokie! I'm sorry for all the confusion.......I guess we can be a bit "guarded" with new information. However its the information that at least I would come up agaisnt and not the person so please please don't be offended and come aboard we love to have ya sharing.

Gail

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Welcome! And I for one would like to hear about your interest in cello! Tell us more! Do you play?

chrissy Collaborator
chrissy
Posted

karen---i was sitting here this morning thinking the same thing about srokie---that we neede to start all over with a proper introduction! welcome srokie!

Carriefaith Enthusiast
Carriefaith
Posted

Welcome to the board!

blueeyedmanda Community Regular
blueeyedmanda
Posted

Welcome Welcome Welcome, I know I did not come off as very welcoming. Sometimes I tend to get defensive. This board is a life-saver for me. I hope it comes to be the same for you.

Rusla Enthusiast
Rusla
Posted

Welcome Srokie, I am also sorry for all the confusion. Remember some times things come across misconscrued over the internet. We were really not trying grill you like unbreaded salmon.We worry because many of us have been through false hopes and decades of torture at the hands of uncaring, misguided, or misinformed doctors. It is better you find out you are Celiac now than 30 years from now.

Once again welcome to the board and we are really a nice bunch of people just a little opinionated and anal about a disease we have to be anal about. There are lots of great recipes and people on this board. :lol:

Lisa Mentor
Lisa
Posted

I also would like to welcome you to the board. You appear to be a delightful young woman.

Sometimes it is easy to follow the flow. And some times you need to step out of the forest to see the trees. I think that Karen and others have done that.

I think (yes Electra, I think :) ) that since your first thread was a little controversial on soy, it appeared, as others that have come before, with a hidden agenda. You did not give the impression of a typical "newbie", scared and frighten by being diagnosis with a disease that many have never heard of.

If, I in any way was rude or hurtful, I apologize.

dlp252 Apprentice
dlp252
Posted

Welcome Srokie!!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Welcome Srokie, I am also sorry for all the confusion. Remember some times things come across misconscrued over the internet. We were really not trying grill you like unbreaded salmon.We worry because many of us have been through false hopes and decades of torture at the hands of uncaring, misguided, or misinformed doctors. It is better you find out you are Celiac now than 30 years from now.

Once again welcome to the board and we are really a nice bunch of people just a little opinionated and anal about a disease we have to be anal about. There are lots of great recipes and people on this board. :lol:

This is the best description of most of us and our experiences that I have ever read!!!! :lol:

Viola 1 Rookie
Viola 1
Posted

Welcome to the board srokie, We have various opinions of things, but we usually can speak our minds and then let it go. Hope you stay with us and haven't had your feelings hurt too bad.

srokie Newbie
srokie
Posted

This is really sweet; many thanks to all of you.

I didn't start posting when I was diagnosed because I was just too sick. I barely had the energy / willpower to get through each day with the difficult new diet on top of everything else. Now that I'm feeling better I have the energy after work to see who else is out there suffering with me.

I am extremely lucky that I found Dr. Saviano. Most people suffer 11ish years before they are diagnosed, and I only had 3 years of suffering (about a year of unbearable symptoms). Had I not found a competent doctor I'd have had to drop out of school because I couldn't get out of bed ... and if I got out of bed I couldn't read or concentrate at all - it was taking me 11 straight hours to write papers that I was interested in writing!!

And the way I found out about her was truly a miracle - my mom and I were visiting a church friend in the hospital (who was there for us when my dad died) and as I was standing there thinking I was about to faint and not knowing why, another lady from the church who was there told us about this nutritionist she was seeing and how she had been diagnosed with celiac disease. I certainly remembered that after I could barely stand up from fatigue at age 19. Then I went to France for 5 weeks and I ate a LOT of bread. Every single meal. Bread, bread, bread... baguettes... sandwiches... eclaires... everything. I called my mom and asked her to make me appointments with my primary care doctor and this "nutritionist" for the day after I was supposed to get back to the US. Dr. Saviano immediately told me I was not absorbing vitamin B after just listening to my symptoms.

About the cello - I played piano for 11 years and really didn't like it, but I've been playing cello since 6th grade and I love it. It's a gorgeous instrument. I play in my colleges *incredible* orchestra, and I'm a music major as well as a French major. I've been playing in orchestras since I was 12... I don't know what I'd do without it! It's really amazing to show the audience just how hard we've worked to bring that performance to them.

Wow I'm writing a book....

srokie Newbie
srokie
Posted
We were really not trying grill you like unbreaded salmon.

That made me crack up :)

We worry because many of us have been through false hopes and decades of torture at the hands of uncaring, misguided, or misinformed doctors. It is better you find out you are Celiac now than 30 years from now.
Amen!
Carriefaith Enthusiast
Carriefaith
Posted

I am truly glad that you are feeling better now and have the energy to do other things. Three years is still such a long time to suffer. I hope you feel welcome here and please don't hesitate to ask questions.

Rusla Enthusiast
Rusla
Posted

Srokie, did she tell you if it was B-12 or not that you were not absorbing? All that talk of bread,eclairs, and baquettes started giving me pain.

There is not one of us on this board who can't empathize with how you have felt. I still do not absorbe my B-12 anymore because of this disease so I am constantly taking sublingual B-12's as opposed to shots. I know when I am low in B-12, I get very fatigued.

I am happy when people find out they are Celiac at a younger age. I hate to think of them suffering the decades I and many others have suffered from this disease and the irrepairable damage it has done to us.I am never happy anyone has this disease. It is not an inexpensive or convenient disease to have.

We need our governments to wake up and see how disabling this disease really is, perhaps if some of them had this they would get on board with us in many ways

I have enlarged the font on here in hopes of making it easier on Judy, without the yelling of caps..

Ursa Major Collaborator
Ursa Major
Posted

Thank you Karen, for starting this thread! Again, welcome, Ashley, I am soooooo glad that everything is straightened out, and we can all be friends who help each other make life with celiac disease easier.

I love the cello! I started taking violin lessons in December, and still sound sort of awful (surprising myself at times with some beautiful sounding notes, though :blink: ). Mind you, when I cringe during my lesson, my teacher still thinks I am doing fine. When I said last Tuesday (my third lesson) that I sound terrible, she asked me if I've ever heard children play, who just started lessons. No, I haven't, so I don't have a clue what other beginners sound like.

I hope that the day will come when I'll enjoy listening to my own playing. :ph34r:

Mind you, I do play the recorders (considered a serious instrument in Germany). I own several thousand dollars worth of recorders in all sizes. A few very expensive wooden ones, and some good quality plastic ones. I haven't played in a while, because my partners moved out and far away (my two oldest daughters). It isn't much fun playing by yourself. But I am going to start some serious recorder lessons in a couple of weeks.

If we all wouldn't live so far away from each other we could start a 'Celiac orchestra' or something like that. :P

chrissy Collaborator
chrissy
Posted

srokie---you are probably the quickest to forgive person on this board. my mother always told us that it is just as bad to take offense as it is to give offense-----and you didn't seem to take much offense at all of us jumping on you-----what a sweetheart you must be!!

Electra Enthusiast
Electra
Posted

Welcome,

I'm glad you found your way here and I hope you continue to share information with us!!

Mtndog Collaborator
Mtndog
Posted

Welcome Srokie!!!!!!!!!!!!!!!!! It REALLY is a good place.

Your story sounds a lot like mine. My symptoms started about 6 months after my mom died and got progressively worse over the course of that year. In my 3rd year in my PhD program (Yeah guys- THANKS FOR ALL THAT RANKING ON PHD'S IN OTHER THREADS :lol::P :P :P ) I was so sick I almost dropped out. Luckily, my primary care suspected celiac disease so I went gluten-free and was able to continue. No, I'm not done yet...they don't let you out easily :P:ph34r:

I'm glad you found out and that you were able to stay in school. I'm sorry things got off to a rough start for you here and I hope it gets better! Actually, I know it will!

JackieM Newbie
JackieM
Posted

I'm sure glad to see this thread. You guys were starting to scare me, since I am new here too. lol Some of us want to learn more about this disease. I can see where people could troll in, to cause trouble, but I gotta say, Srokie you are very generous that you are willing to let the questionable thoughts of members and be forgiving in that manner. That's very special of you. I hope that you are able to share some helpful information with people here. One never knows why people come and go in our lives. Their purpose isn't always for us to know. I am sure that Srokie will be able to enlighten, just as others have enlightened others, as well as Srokie learning more also. I recently found this site via surfing for Johnny Rivers links. I couldn't figure out why his name was associated with Gluten free until I read it was a post from Dingogirl about him. As I got into reading some things here, I soon started learning that this disease, which a friend of mine suffers from, but she refers to it as intolerance, maybe that is correct too, I don't know. She and I have been friends for many years, though we have lived miles apart for so long, and it is nice to know that I have a place to learn about her disease here. I have learned some things that I have related to myself too. So if it were not for me following Dingogirls post that was on Google, howza bout thaaat, I would never have all this information here. I was welcomed by several nice posts. Thank you for that. So even though I am learning about this disease, Srokie, I am happy to see you on this site. You never know what information can be brought here to help others. So I have to say a big Welcome to Srokie! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,919
    • Most Online (within 30 mins)
      7,748
    Cdn Maple
    Newest Member
    Cdn Maple
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Symptoms and trying to figure this out

      By Wheatwacked · Posted

      Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle.  Celiac Disease causes multiple vitamin and mineral deficiencies.   Itchy palms can be a symptom of iodine deficiency.  Low iodine levels can lead to dry, flaky skin on the hands and  body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are   fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing.  Strong Iodine and Lugols Solution are other options.  Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe?
    • Lkg5
      Guidance on next steps after the lab tests

      By Lkg5 · Posted

      Be cautious with vitamin D if you are female and post-menopausal.  I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D.  Finally relief!  I hope to keep my D level below 50 nm/l now.
    • knitty kitty
      Coping with celiac

      By knitty kitty · Posted

      Do you eat processed gluten free foods?  
    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      3 years with Celiac, now I appear fine.

      By Scott Adams · Posted

      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
×
×
  • Create New...