Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help


elisabet

Recommended Posts

elisabet Contributor

hello every one,

My best friend is week,has dark circles under her eyes and is very very tired,all her blood tests came back normal.

I am so worried any suggestion?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Budew Rookie

Sorry to hear about your friend. Most of us have had other problems as well. Do you know about what she eats? Tests done? Does she ever get relief? Tell us more.

Hang in there! You are a good friend.

Budew

elisabet Contributor

thank you budew

she knows that she has problem with gluten.yes she has relief.and the blood test was a whole pannel also thyroid function.

I am really worried ,because she is not her self.

elisabet

RiceGuy Collaborator

To me it sounds like a nutritional deficiency, no matter how test results may seem. Some types of anemia can cause darkening under the eyes, and it's not always due to iron.

Many nutrients can be deficient in Celiacs because of the impaired digestion. Some that come to mind in relation to the symptoms you describe are magnesium, vitamin B12, and iron, just to name a few. Other things like protein and carbohydrate deficiencies might also be a possibility.

It's really difficult to speculate without a list of the foods in your friend's diet. Can you give some specifics on what she's been eating and avoiding? Also does she take supplements? If so, what are they? How long has this condition persisted?

Budew Rookie

I am so glad Rice Guy is attending to this thread. I have gotten some good advice from him lately.

I do want to say get the info and post it. I was where your friend is. I felt too ill to help myself. I had lots of caring prople but had to really do this alone. For several years I was just to sick to care. Death became a focus. It had to be bettter than the life I was living. For me it was a friend who saw what life was like and made me realize I was worth it. Even now after a year od desperately fighting for help and attention, I feel despair. I have come a long way but to still be fighting the battle is overwhelming.

Your friend might find some comfort writing in too. I know that for me I could not even read the computer screen. It was irritating and made me feel ill. I still have days like that. Then I muster the motivation to try again.

Your friend is so lucky to have you. Things will get better. Don't give up.

ravenwoodglass Mentor

I am so sorry to hear she isn't doing well.

If she was doing okay for a bit try and figure out if anything she is doing, eating or prescribed has changed. Does she take any generic meds? The binders they use can change and her pharmacist should recheck them. Has she changed any personal products, gotten her hair done, any new hobbies? Are her vitamins gluten-free, and is she taking stress or B12?

Is this a sudden change? Are her lips tinged blue? Is she cold and clammy feeling to the touch? Is she complaining of any pain or showing it in the way she is moving? Is she disoriented at all? If this last paragraph sounds like what she is experiencing she needs to be throughly evaluated as soon as possible.

I hope things get figured out and she is doing better today.

evilette13 Newbie

Have your friend tested for parasites by a lab that tests exculsively for them. I would put money on it that is a huge part of her problem.

--Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sillyyakdidi Apprentice
To me it sounds like a nutritional deficiency, no matter how test results may seem. Some types of anemia can cause darkening under the eyes, and it's not always due to iron.

Many nutrients can be deficient in Celiacs because of the impaired digestion. Some that come to mind in relation to the symptoms you describe are magnesium, vitamin B12, and iron, just to name a few. Other things like protein and carbohydrate deficiencies might also be a possibility.

It's really difficult to speculate without a list of the foods in your friend's diet. Can you give some specifics on what she's been eating and avoiding? Also does she take supplements? If so, what are they? How long has this condition persisted?

yeah i agree with the anemia thing, i hope your friend gets better!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748

    Janahawk
    Newest Member
    Janahawk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
    • BoiseNic
      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
×
×
  • Create New...