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Oh, Yeah I Got Questions...

NewB

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NewB Newbie
NewB
Posted

Just "diagnosed" (figured it out myself) after my Dr just kept treating me like a hypochondriac.

So, like jhun I have questions and wonder about the best way of sorting through all this. I am on the West Coast so perhaps there is no one out there right now who can help--but any info is appreciated.

Oh, and i lost my help insurance right after being "diagnosed"

Thanks

Barbara

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Ursa Major Collaborator
Ursa Major
Posted

Hi Barbara, and welcome to this board.

Here is a link to Nini's website, where you'll find her 'newbie survival kit' by scrolling down to the very bottom. Open Original Shared Link

It has invaluable information on getting started after being diagnosed with celiac disease, and will save you from doing a lot of the research yourself.

NewB Newbie
NewB
Posted
  • Author
Hi Barbara, and welcome to this board.

Here is a link to Nini's website, where you'll find her 'newbie survival kit' by scrolling down to the very bottom. Open Original Shared Link

It has invaluable information on getting started after being diagnosed with celiac disease, and will save you from doing a lot of the research yourself.

NewB Newbie
NewB
Posted
  • Author

Thank you! I'll look at Nina's now...no one ever gets my jokes... "help" insurance etc...but I am a goose in new world here: Never been in a chat room, never posted antthing on a forum before...just been reading in an online encyclopedia...there is a celiac artery, celiac plexes,celiac ganglia etc etc...I seem to be having "refered pain" from these areas in nerves in my shoulders and hands...

Thanks again!

ArtGirl Enthusiast
ArtGirl
Posted

Welcome to the forum. This is the best place to learn about gluten intolerance and Celiac disease. You'll be a pro in no time. And then you're going to have to change your member name :P

Namma Newbie
Namma
Posted
Just "diagnosed" (figured it out myself) after my Dr just kept treating me like a hypochondriac.

So, like jhun I have questions and wonder about the best way of sorting through all this. I am on the West Coast so perhaps there is no one out there right now who can help--but any info is appreciated.

Oh, and i lost my help insurance right after being "diagnosed"

Thanks

Barbara

Barbara,

2 1/2 years ago our granddaughter was dignosed with Celiac. She is now 3 1/2. Her mom is my daughter. My son in law and daughter were tested along with our other granddaughter now 6. I too was tested. My blood work was inconclusively negative. In laymans terms "not sure". I then had a biopsy. ALL CLEAR. But there is alot to be said about a gluten free diet just for the heck of it. We watch our granddaughters and Abbey is so active, alert and has the energy of 3 -3 year olds and her mood is just as precious as can be. I have learned a lot over the last couple of years just reading different periodicals. I also have a friend with twins. One recently diagnosed borderline autistic. It was recommended that he be put on a gluten free diet. His behavioral issues ceased.

My mother at age 48 died of lymphoma in 1981 which is somewhat linked to celiac. That is also why we thought the gene probably was on my side of the family.

I am still contemplating a gluten free diet for myself as I am now menopausal and have heart burn and digestive issues regularly. Although I am on a slight dose of estrogen because of a hysterectomy a couple of years ago, I still have the menopausal stuff to deal with.

My suggestion to you......so you don't have to break the bank buying expensive food, is get on manufactures websites and ask for their gluten free list.

I see on here that there are some who say they don't like the holidays because eating is very limited. It truly is not....DON'T GO DOWN THE PITY PARTY ROAD. For Thanksgiving we have an 85% gluten free meal WITH dessert. Most with just normal stuff to eat. Jennie O turkeys are gluten-free, mashed potatoes gluten-free, Some gravies gluten-free, Fresh Veggies, Fresh Fruit salad, Cranberries, Green Salad, Jello,

Hor d ourves Tostitos and Salsa, shrimp and cocktail sauce, Rice crackers and fruit salsa over cream cheese, bbq sauce and mini weinies, artichoke dip, spinach dip, the only No No was the stuffed mushrooms.

With careful prep and planning no on knows the difference. The first thing my daughter says to me when they arrive MOM WHAT CAN'T ABBEY HAVE?

I too live on the west coast and quite frankly this is the best state to live in with your situation. I shop at Trader Joes, Berkeley Bowl, and Whole Foods. Whole Foods and Trader Joes have a list available of the products they sell that are gluten-free. Wild Oats is great too but I don't have any near me. The closest is Reno.

I realize my situation is very different and I suppose if it were me and not just my granddaughter I'd probably have an attitude.

Hang in there, the way you will start to feel supercedes any deprivation of food.

Just the Namma

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      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

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