Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Services Personnel


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

Hi everyone. Since I go to lunch in five minutes, I figured that I'd take the time to vent before I left. I'm just frustrated and annoyed when it comes to pretending to have the patience that I've lacked since the beginning of time.

I have distributed celiac disease literature to two of the Food Service workers at my college. Only a selective few have received copies of the paperwork, so they are still asking basic questions. One was so distraught when she packed my lunch for my cross country meet that she gave me A SALAD WITHOUT DRESSING. No drink-- but when I was handed Powerade, I saw, to my dismay, that it contains MODIFIED FOOD STARCH. I then ate an orange with my naked salad.

I'm sticking to communicating exclusively with the Food Services director. People keep asking me if I'm a transfer student, etc. etc. Some of them don't even know who I am or have seen my dietary restrictions papers that are plastered all over the kitchen. There is so much more to this story, but I have to eat and go to class now.

It sometimes bothers me that people cannot remember basic information (when it's constantly repeated), and don't even know how long I've been here on a tiny campus of 1100 students.

I hate explaining things.

Please help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Talk with the director about your concerns that people don't know what's going on? Direct them to the signs posted everywhere?

Remember that they may have been dealing with celiac disease - and not even as something they have - for only the length of time you've been there. And you're a very small part of their day. In five minutes a day (and that's giving, on this scale of things, a LOT of time to one person), they're not going to get it any time quickly.

I'd vote for keeping up with the director and letting him know that you aren't getting adequately fed!

celiac3270 Collaborator

I have years before I deal with this, but just to let you know, all flavors of both Powerade and Gatorade are gluten-free.

Guest ~wAvE WeT sAnD~

Thanks celiac3270! So Powerade has corn starch?

angel-jd1 Community Regular

I'm not sure what group your college uses as their catering services. I contacted Sodhoux and they sounded like an awesome group. Possibly you can try contacting the main company they are contracted with and try to get some results that way.

When they give you food that isn't appropriate bring it to their attention and then they can learn. If you don't bring it up, they think everything is fine.

celiac3270 is right, powerade and gatorade are both gluten-free. :)

I hope things get easier.

-Jessica :rolleyes:

Guest ~wAvE WeT sAnD~

*Sigh* An update on the rest of the day...

I went to lunch. It was awful in the beginning, because no one had received my message telling them I'd be there. So I stood there, way too PMSed (sorry celiac3270--Tiffany will understand) to ask. I left the kitchen, already frustrated and angry, on the verge of tears. I then tried to have some tea, but the hot water pot wasn't there. I decided that was it, and I began to cry. My boyfriend caught up to me and told me that I shouldn't be upset. I hate when other people tell me how I should feel! So I told him to hold me and stop talking. He later said "it's period time. I understand." I am making packets for the staff sometime this week.

Afterward, I ate some deli meat, a piece of lettuce, and cheese. I was starving by 4:00, so I had a scoop of Arrowhead Mills puffed corn, God's gift to regularity. I then felt better, and ran 3.1 miles to make up for my very s**** day.

Thank you all for listening.

I have a few questions...what does everyone do for labels that say "spices?" How do you know whether or not the spices don't have wheat fillers?

Thank you!

tarnalberry Community Regular

I hate it when men assume that nothing else is allowed to bother you around your period. Honestly, I don't think people can understand how it feels to have a basic human need threatened. Do keep talking to them - you've got to stick it out though, and not walk out. Because you walked out, they don't know there was a problem. I understand why - oh I know the feeling! - but in the end, it just makes it worse.

As for spices... if it just says ", spices," I assume it's not safe and call.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Spices can have gluten so you need to call the company........unless of course, they're in a product made by a company like Kraft; one that clearly labels gluten.

Sorry you had a bad day.....and too bad that the kitchen staff isn't more understanding of celiac disease

coin-op Newbie

to answer first post:

bring your own food! Why would you trust someone who gets paid minimum wage and doesn't care? it is your body and your health, only trust yourself.

-cass

astyanax Rookie

yeah i hate to say it, but in college i just had to make my own food. i barely ate at the dining hall, they promised me gluten-free food and never produced, and in retrospect (i was diagnosed my freshman year) a lot of the food i ate then i never would now. there's too much cross contamination in those kinds of settings (if your dining hall is like mine was) and i was much better off when i finally moved off campus my junior year.

Guest ~wAvE WeT sAnD~

Coin-Op:

I see what you are saying, but I just wanted to let you know that my patience with the Food Services Personnel has prevailed. They have my gluten-free breads, pastas, cooking appliances, and food station set up for me.

I'm sorry if you're had negative experiences with other people--I don't like putting my health in someone else's hands, but, for once, it worked

:)

Stay Positive,

Alexolua Explorer

Great job Jill! Much better to try and educate others, than just not try. =)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,249
    • Most Online (within 30 mins)
      7,748

    Janet5445
    Newest Member
    Janet5445
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Celiacandme
      My gastroenterologist had me incorporate VSL#3 to help with similar issues. It can take a long time to heal. I also found adding kiwi to my diet was soothing to my stomach. For me, it was important to avoid other inflammatory foods. Dairy, corn, etc, were aggravating to my stomach. Bone broth has been another life saver for me over the years. I do know I continue to be sensitive. If I were to have dairy for two days in a row it would be like adding a log to a fire to my sensitive system. I do also have issues with acid reflux though. (Barrett's esophagus) I also stay up after eating. They say to for 3 hours but even 2 is helpful. Keep us posted on how you are. Hope you get some relief soon.
    • Scott Adams
      It’s not uncommon for people with celiac disease, especially those undiagnosed for a long time, to experience lasting digestive issues even after going gluten-free. The damage caused by years of inflammation in the small intestine can sometimes lead to other conditions like delayed gastric emptying (gastroparesis), acid reflux, or food intolerances. Staying upright after eating can help with digestion, particularly if reflux is an issue, as lying down can exacerbate symptoms. Greasy or fatty foods can be harder to digest, especially if your digestive system is still healing or if you’ve developed sensitivities. It’s important to discuss these ongoing symptoms with a gastroenterologist, as there might be additional treatments or dietary adjustments that could help. You’re definitely not alone in feeling like your stomach needs extra care, and hearing others’ experiences can be validating. One thing you should do is look at your diet again, and be sure that it is 100% gluten-free. Choline is a supplement that may help you with your symptoms, so consider this as well. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • RobHicks
      Multiple times. Have had several emptying studies and endos that come back normal.
    • trents
      Welcome to the forum, @RobHicks! Actually, celiac disease damages the upper part of the small bowel rather than the stomach. It's the part of the intestine right below the stomach. Since being diagnosed, have you had a follow-up endoscopy with biopsy to check to see if there is good healing in the small bowel lining since beginning the gluten free journey? You may have something else going on besides celiac disease. From what you describe, it sounds like your stomach is not emptying properly. Have you presented this problem to a GI doc?
    • TerryinCO
      Still waiting.  The Barrett's I've had for 5-6 years. The possible/probable Celiac is new this year.  Not sure why that's popped up, but there it is.
×
×
  • Create New...