Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg I Am Two Different People!


JerryK

Recommended Posts

JerryK Community Regular

I am indeed two different people:

On gluten I hurt all over, I am depressed, lethargic and anxious. I have trouble concentrating and my stomach hurts. I'm irritable and miserable.

Off of gluten...I don't hurt anymore. I feel more energetic and dare I say it...happy AND my IQ shoots up 20 points.

This will sound absurd to anyone who hasn't actually experienced it for themselves, but it is true..

Mr Gluten and Mr Notglutened


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yep--I know just what you're talking about. I'm the same way. ;)

JerryK Community Regular
Yep--I know just what you're talking about. I'm the same way. ;)

At this point...lots of curse words come to my mind when I think about how badly this has affected my life.

I was given anti-depressants which gave me side effects, including serious anxiety...

Then they added a tranquilizer called Klonopin to the mix, to treat this SSRI induced anxiety.

I should mention that Klonopin has a well known side effect of CAUSING depression (um duh).

Then when I still complained I felt bad, they proceeded to give multiple trials of a bunch of

different anti-depressants..none of which did anything except perhaps make me feel more

agitated. Finally I came to the conclusion that the drugs were part of the problem and I

flushed them down the toilet. Only problem was, I was dependent upon these drugs that were

make me feeling bad(interesting paradox I know) and I couldn't sleep. After 5 days of not

sleeping, I finally checked myself in to the hospital...where they gave me Ativan so I could sleep, had me do finger-painting and other therapeutic stuff like that....

So to make a long story short, I take some time off of work, come within a camel

bluejeangirl Contributor
I am indeed two different people:

On gluten I hurt all over, I am depressed, lethargic and anxious. I have trouble concentrating and my stomach hurts. I'm irritable and miserable.

Off of gluten...I don't hurt anymore. I feel more energetic and dare I say it...happy AND my IQ shoots up 20 points.

This will sound absurd to anyone who hasn't actually experienced it for themselves, but it is true..

Mr Gluten and Mr Notglutened

My story is similar to yours. My first cavity was very early I'm guessing 5, which just progressed to fillings in every tooth. Feeling groggy can't understand teachers. Always had a stomach ache. I was always considered bossy growing up I thought it was because I was the oldest of 6 kids but really thinking about it I was just irritable all the time. I was always the thinnest smallest person in class. I never had the classic diarrhea which always threw me. I'm so glad I found that not everyone does get that. I feel so much better........I wish I found out earlier. I'm so glad you found out! You don't need to go another day feeling like that again. The only thing you'll have to now overcome is cross contaminations which we all figure out eventually. You'll be posting asking questions about it. :P Usually following a "I can't figure out why..."

Gail

Nancym Enthusiast

Now you know why so many of us are so frustrated with medicine/health and all the issues surrounding gluten. Now imagine getting a negative diagnosis... but you KNOW how much better you feel off the stuff. Yet the medical establishment will put you in a padded cell if you insist you are gluten sensitive. :D

missy'smom Collaborator
Off of gluten...I don't hurt anymore. I feel more energetic and dare I say it...happy AND my IQ shoots up 20 points.

My son has this game for Nintendo DS called "Brain Age". Just before or right after I started the gluten-free diet, my "brain age" was 80 :o But now it's right at my real age. :D I worked in a school prior to going gluten-free and the director called me a "slow processor"(not diparagingly).

JerryK Community Regular
Yet the medical establishment will put you in a padded cell if you insist you are gluten sensitive. :D

Been there already:) and now I know why.....fingerpainting was nice, other than that I don't think it was of any value :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

The story of my like..

When I get gluten I get this whole other side of me, I could care less about anything and anyone. I am very tired, moody, and emotional. I worked in a lab and the few months I was real sick before I found out I had celiac I just flat out didnt care, it showed in my work ethic and how I treated my coworkers.

Once I got on the diet and everything fell into place I got all my energy back and I was the happy-go-lucky person that I was when they hired me. I started volunteering for overtime because the turnover at this place is horrible. I was helpful and I didn't jump at people on the phone.

Looking back I was a real jerk...pardon the words!

I get glutened every now and again, as we all do and I get moody but not to the point where my attitude gets that bad. You can see a difference but not the extreme change I had then. I pity the people who worked around me at that time, I was probably very mean to them.

I still work there overtime, even though I no longer work in that department. So there are days when I are there 16 hrs.

tiffjake Enthusiast

Oh man, I totally know what you are saying! I was on antidepressants for YEARS (Lexapro, Celexa, Prozac, Zoloft, even Lithium at one point) and those would make me anxious, so they would put me on more meds (Ativan, Xanax, etc) but I always felt like crap! All the time!

After going gluten free, I feel amazing! No more meds here!!

I also used to be on Reglan, Nexium, AND Aciphex for indegestion and GERD. I took ALL 3! No more GERD!!!!

And about moods, man....I was glutened last week, and I totally flipped out on someone parked in my spot at my apartment complex. Later, when my head cleared, I wrote him an apology note. I don't know what comes over me when I get like that. It is like watching another person! But it only happens when I get glutened, like my body is too busy getting rid of the gluten to be a decent human being!

Canadian Karen Community Regular

LOL! I describe myself more like "The Incredible Hulk" I can feel the rage building up in me and then exploding.

I have thrown bikes across the garage, books flying across rooms, you name it, gluten has done it to me.......

Karen

ianm Apprentice

If you had known me before I became gluten free and did not see me until today you would not recognize me at all. I have a completely different body, mind and attitude now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,840
    • Most Online (within 30 mins)
      7,748

    P John296
    Newest Member
    P John296
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dawn Meyers
      Hi I have celiac disease and the dermatitis herpetiformis rash Also other autommune diseases.  I have had bad side effects to all the vaccines I have had and now my Doctor wants me to have the pneumonia vaccine.  I am concerned because of some of the bad side effects I have had in the past example Hep B after shot couldn't  move arm for several months.  Flu shot and COVID was sick right after shot. Told not to get anymore. My lung is inflamed and have a cough I can't seem to get rid of. Very concerned 😟. 
    • knitty kitty
      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself, developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses! P. S. Add a Potassium supplement, too.  Potassium is another electrolyte, like magnessium, that we need.
    • Manaan2
      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
×
×
  • Create New...