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Yay! We Got William's Biopsy Results Back!


rgeelan

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rgeelan Apprentice

I just got a call back from the specialist in Denver. Williams biopsy did show damage and inflamation in his small intestine, but at this point the do NOT think he has Celiac Disease!!! It is just being called a severe allergy to Gluten at this point. We are waiting on the 2nd blood tests results because they can't rule out if he is a carrier untill those come back and it could be possible that he is a carrier and just hasn't developed it yet but we are really hoping for the best right now and that it is just a severe allergy because that he has the chance to outgrow and if he should choose to have Gluten in the future it might make him sick but will not cause any permenant damage!!! We will get the final lab results back on next Monday so keep us in your prayers that the first results were just wrong and it's only an allergy!!! I am still asking to have myself tested since I have so many of the common symptoms but we will see how that goes...

Thank you all for your + thoughts and prayers! The power of prayer truly is amazing!!!

HUGS!


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Racheleona Apprentice

Hello, I will keep you andyour son in my prayers! I was told to go gluten free even though I was considered positive for only the IgG by one point on the blood test, and have had no biopsy. I am currently waiting for the genetic marker test for celiac as well though, I don't know if I should find hope in that? I hope that there is a possibility I could outgrow my sensitivity as well if that is what is affecting me! I will only see if my symptoms go away after being gluten-free. Anyhow! Good luck with everything

Rachel

rgeelan Apprentice

Rachel, good luck... We are going gluten-free with him for sure because he is responding great to not having any. I just hope it is something he will eventually outgrow...

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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