Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Appointment


JerryK

Recommended Posts

JerryK Community Regular

Well I'm finally at the point where I'm going to see my HMO doctor (Kaiser) next week.

I gotta confess that I'm a little worried...worried on multiple levels. First, like most men, I loath

going to the doctor.

Plus, I wonder what they will do...will they ignore it, blow it off, which is the tendency of Kaiser.

Or, since I have an Enterolab result, which although not accepted by all of mainstream medicine...

might just be something they need to take seriously...will they hear me?

See in the "mind" of Kaiser, I'm just some sickafantic wacko that they've kept on an Anti-depressant for 5 years. I'm also a troublemaker because I was diagnosed with low testosterone a couple years ago, and I got really pissed when they wouldn't treat it. I appealed it to a couple different layers of Kaiser bureaucracy. In the end, I let it go, but they definately heard me.

But it all ties together...history of depression...low testosterone...gastro symptoms....diet confirmed gluten intolerance...severe dental enamel defects....positive test results from Enterolab.

However I still feel like going to Kaiser with this is a waste of my time. In the end, it's all about the money and I'm worried that they won't believe I'm even worth testing...after all, he's depressed right?

Couldn't have been something he was eating...right?

I'll give it a shot, but I'm not going to throw a lot of effort at Kaiser...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JerryK Community Regular

To sum it up, I don't like doctors much and they don't like me. I'm not a "good" compliant patient.

I tell them when I think they are bull$hitting me. But like I said, I'll have a go with Kaiser, perhaps

I'll be surprised...

msutherlin Newbie

I wish you luck. I had my testing done last week. I had the upper endoscopy with biospy and a colonoscopy on the same day. If they let you get the testing done, the worst part is the prep. Make sure you drink lots of gatoraide. That really helps. After my prep, I slowed down on drinking enough fluid and was a tiny bit dehydrated when I went in for the test. But the test is a breeze. So easy. They gave me drugs and I don't ever remember feeling that relaxed. I know I got dressed and my husband took me out to eat but I only remember parts of it! But I felt really good!

I am now waiting on my results. They said it would take about two weeks. I don't know why but I think it will come out negative. I am already eating gluten free though. Like you, when I was eating gluten free for about two weeks I felt so much better. So I hope the same thing happens again. It's too early to tell yet and I think my system has had a hard time from the big clean out and then readjusting to food.

The diet is not so bad. The worst will be missing going out to eat. Tonight I made a really yummy gluten free almond chicken and the family loved it. So I think they will adjust too.

Good luck!

Viola 1 Rookie
To sum it up, I don't like doctors much and they don't like me. I'm not a "good" compliant patient.

I tell them when I think they are bull$hitting me. But like I said, I'll have a go with Kaiser, perhaps

I'll be surprised...

Why don't you try and explain that if you are right, and the tests are positive, that having Celiac disease, treated by diet, will actually save them money in the long run by keeping you healthier?

It might be worth a shot :huh:

tarnalberry Community Regular

Good luck! At least you don't need *anything* from a doc to treat this one. :)

Perhaps you can find different insurance (I hesitate to change jobs just because I have good insurance, but sometimes a job change can enable this sort of thing), if this is a repeating issue? Or a different Kaiser branch. There are *some* good doctors within Kaiser. (I hear of them now and again, and only remember them because they stick out like a sore thumb against the background, it seems. I know, I know... harsh. I grew up in an area where Kaiser was affiliated with teaching institutions and knew people with particularly bad experiences, so I feel your pain, but believe in the basic good in most people.)

JerryK Community Regular
Good luck! At least you don't need *anything* from a doc to treat this one. :)

Perhaps you can find different insurance (I hesitate to change jobs just because I have good insurance, but sometimes a job change can enable this sort of thing), if this is a repeating issue? Or a different Kaiser branch. There are *some* good doctors within Kaiser. (I hear of them now and again, and only remember them because they stick out like a sore thumb against the background, it seems. I know, I know... harsh. I grew up in an area where Kaiser was affiliated with teaching institutions and knew people with particularly bad experiences, so I feel your pain, but believe in the basic good in most people.)

It's not so much that they are bad doctors.....it is that they are constrained by bean counters..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    2. - Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    3. - trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    4. - Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results

    5. - Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Conflicting results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,432
    • Most Online (within 30 mins)
      7,748

    SharonJT7728
    Newest Member
    SharonJT7728
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
    • Scott Adams
      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
    • trents
      Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease or NCGS, it is likely that a gluten-free diet corrects his symptoms and there would be no need to pursue a lower GI and it's nasty prep.  I would also add that the immune system of a child his age is not mature. It's in flux. Because of this, celiac disease testing can yield erratic results. And I would also add that some experts believe that NCGS can be a precursor to the development of celiac disease. If this is true, there would seem to be transition phases. I hope you will keep us posted.
    • Jy11
      Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac.  But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again! 
    • Scott Adams
      As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet.
×
×
  • Create New...