Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meeting In A Coffee/bakery Shop


rtilil

Recommended Posts

rtilil Rookie

hi, everyone,

last night i met with friends in a coffee shop that has a bakery in the back. i felt a little tired and unfocused after 45 minutes...i had eaten before, so i only had a drind of seltzer. but, this morning, i woke up completely swollen ( stomach, hands, fingers, eyelids, face), feeling that my nasal passages were stuffed and swollen, feeling like i had a sack of potatoes on me as i lie in bed, and feeling awful. i'm new to the celiac diagnosis, and now realize that it must be the gluten in the air that caused this raction. i used to think i was crazy, but having read some of the posts here, i realize that this might be true. comments, please. thanks.

as long as i'm here, what does 'pinned' mean at the beginning of cach post? what does 'toggle side panel' mean?

reva.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Unless the bakery section is quite exposed, I am not sure if that was the culprit (meaning from being airborne).

However, being new to celiac, perhaps you didn't think twice about some things - like laying your hands on the table (with potential crumbs on it), then biting a nail (or something maybe not so extreme). Did you have a drink? Could be cross contamination.

I'm not doubting the gluten came from the shop. It's quite possible if it's flying through the air, so if the back room was open, then perhaps that was it.

I hope you feel better.

rtilil Rookie

thank you for the response. yes, the baking area was paritally exposed. there's only a half wall dividing the bakeshop from the bakery in the back. i did have a drink from a closed bottle. how would that be cross contamination? unless by the worker's touching the bottle and handing it to me, and the cup i poured it into being contaminated by the worker's hands, then my touching it, etc.etc. i think i'm beginning to catch on to how truly careful i must be about flour dust being on restaurant tables, etc. the truth is that i really enjoy not having to deal with breads since they only made me crave more and more. and then i felt awful. now, at least, i do feel much better and since i haven't eaten bread or gluten in about a month, i have no cravings, am hungry at appropriate times, don't feel the need to overeat, and don't worry about being hungry if i go out for a short while.

thanks again.

reva.

Unless the bakery section is quite exposed, I am not sure if that was the culprit (meaning from being airborne).

However, being new to celiac, perhaps you didn't think twice about some things - like laying your hands on the table (with potential crumbs on it), then biting a nail (or something maybe not so extreme). Did you have a drink? Could be cross contamination.

I'm not doubting the gluten came from the shop. It's quite possible if it's flying through the air, so if the back room was open, then perhaps that was it.

I hope you feel better.

paw Apprentice

Sometimes my family eats out (when we are not near home) and I may have to sit there with them. I am careful not to touch the chair because someone with wheaty hands just touched it before I got there. I don't touch the table for the same reason. I don't order a drink because the server will also be carrying wheaty junk to other people.

I put my hands in my lap and I don't touch anything. I wash my hands before I leave and then use hand sanitizer in the car. I am not nuts or anything. I don't like to make myself sick.

When I walked into a Subway shop with my family, I had to leave. I had my daughter open the door for me so I could walk around then go sit in my car -- at least it was a nice day. That place the smell of wheat and bread was so strong it made my stomach feel bad and I knew I did not belong there.

We do have to protect ourselves and for me that means those are toxic places. If I am really careful I won't get sick. One little mistake like touching a chair to pull it out and I could easily get sick. The door handle as you go out is "wheaty" too. I hope you feel better.

kbtoyssni Contributor

Sometimes people at work have meetings in the cafeteria. Which I am starting to hate because the tables are always covered in crumbs. I always wipe the table off before putting anything on it. It's so hard to keep yourself safe in places like that.

Pinned means that a moderator has read your original post and "approved" the content and forum it was posted in. It's mostly a way for the moderators to communicate to each other that someone has looked at each new topic.

Lisa Mentor

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.

rtilil Rookie

thank you everyone for your replies, and thank you kabtoyssni for explaining what pinned means. it really is a relief to hear from other people with celiac how careful one must be. i'm new to this and it seems i'm always learning how easily i can be contaminated with gluten. i am feeling better, however, every once in awhile i get swollen again and i can't always find the culprit. any suggestions?

reva.

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rtilil Rookie

thank you, girls.

reva.

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,145
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.