Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meeting In A Coffee/bakery Shop


rtilil

Recommended Posts

rtilil Rookie

hi, everyone,

last night i met with friends in a coffee shop that has a bakery in the back. i felt a little tired and unfocused after 45 minutes...i had eaten before, so i only had a drind of seltzer. but, this morning, i woke up completely swollen ( stomach, hands, fingers, eyelids, face), feeling that my nasal passages were stuffed and swollen, feeling like i had a sack of potatoes on me as i lie in bed, and feeling awful. i'm new to the celiac diagnosis, and now realize that it must be the gluten in the air that caused this raction. i used to think i was crazy, but having read some of the posts here, i realize that this might be true. comments, please. thanks.

as long as i'm here, what does 'pinned' mean at the beginning of cach post? what does 'toggle side panel' mean?

reva.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Unless the bakery section is quite exposed, I am not sure if that was the culprit (meaning from being airborne).

However, being new to celiac, perhaps you didn't think twice about some things - like laying your hands on the table (with potential crumbs on it), then biting a nail (or something maybe not so extreme). Did you have a drink? Could be cross contamination.

I'm not doubting the gluten came from the shop. It's quite possible if it's flying through the air, so if the back room was open, then perhaps that was it.

I hope you feel better.

rtilil Rookie

thank you for the response. yes, the baking area was paritally exposed. there's only a half wall dividing the bakeshop from the bakery in the back. i did have a drink from a closed bottle. how would that be cross contamination? unless by the worker's touching the bottle and handing it to me, and the cup i poured it into being contaminated by the worker's hands, then my touching it, etc.etc. i think i'm beginning to catch on to how truly careful i must be about flour dust being on restaurant tables, etc. the truth is that i really enjoy not having to deal with breads since they only made me crave more and more. and then i felt awful. now, at least, i do feel much better and since i haven't eaten bread or gluten in about a month, i have no cravings, am hungry at appropriate times, don't feel the need to overeat, and don't worry about being hungry if i go out for a short while.

thanks again.

reva.

Unless the bakery section is quite exposed, I am not sure if that was the culprit (meaning from being airborne).

However, being new to celiac, perhaps you didn't think twice about some things - like laying your hands on the table (with potential crumbs on it), then biting a nail (or something maybe not so extreme). Did you have a drink? Could be cross contamination.

I'm not doubting the gluten came from the shop. It's quite possible if it's flying through the air, so if the back room was open, then perhaps that was it.

I hope you feel better.

paw Apprentice

Sometimes my family eats out (when we are not near home) and I may have to sit there with them. I am careful not to touch the chair because someone with wheaty hands just touched it before I got there. I don't touch the table for the same reason. I don't order a drink because the server will also be carrying wheaty junk to other people.

I put my hands in my lap and I don't touch anything. I wash my hands before I leave and then use hand sanitizer in the car. I am not nuts or anything. I don't like to make myself sick.

When I walked into a Subway shop with my family, I had to leave. I had my daughter open the door for me so I could walk around then go sit in my car -- at least it was a nice day. That place the smell of wheat and bread was so strong it made my stomach feel bad and I knew I did not belong there.

We do have to protect ourselves and for me that means those are toxic places. If I am really careful I won't get sick. One little mistake like touching a chair to pull it out and I could easily get sick. The door handle as you go out is "wheaty" too. I hope you feel better.

kbtoyssni Contributor

Sometimes people at work have meetings in the cafeteria. Which I am starting to hate because the tables are always covered in crumbs. I always wipe the table off before putting anything on it. It's so hard to keep yourself safe in places like that.

Pinned means that a moderator has read your original post and "approved" the content and forum it was posted in. It's mostly a way for the moderators to communicate to each other that someone has looked at each new topic.

Lisa Mentor

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.

rtilil Rookie

thank you everyone for your replies, and thank you kabtoyssni for explaining what pinned means. it really is a relief to hear from other people with celiac how careful one must be. i'm new to this and it seems i'm always learning how easily i can be contaminated with gluten. i am feeling better, however, every once in awhile i get swollen again and i can't always find the culprit. any suggestions?

reva.

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rtilil Rookie

thank you, girls.

reva.

Regarding Pinning:

kabtoyssni is correct. A moderator will look at a post, make sure that it is placed in the right category, the contents are within that category and insure that no spamming or advertising on the site occurred.

They will then pinn the topic.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,874
    • Most Online (within 30 mins)
      7,748

    LeeD
    Newest Member
    LeeD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...