Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Calgary Schedule Date!

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I figured I'd post this now when I'm a tiny bit more calmed down about things, so that it makes a little more sense I hope...

umm well what she said is its definitely both scopes, Feb. 27th is the date..its at 7:30 am, but I gotta be there at 7 :blink:

I asked if they HAD to freeze my throat(told her how i had issues before) and she said no, just tell them...

i cant even drink anythin after midnight that day...starve day before..coffee/tea is all i'm allowed..gotta drink some stupid laxatives startin at 5 pm the day before test..

and have to eat gluten for 5 frickin days :ph34r::blink::o .. 5 days before = started day after my scope in Saskatoon, and I have a midterm on day #2 of gluten :wacko: (99% sure I'll be failing that one). I cant change that midterm because I'm already switching 2 other ones around for the Saskatoon scope. OH ANDD I have to eat AT LEAST 2 piece of regular bread those horrible days (screw the bread, I'm going for the stuff like subs and anythin else I cant find replacements for)

I think this test is gonna kill me. Well not kill me physically (i hope), but mentally/emotionally. Yesterday at school was the first time I ever left to the bathroom just to cry. it was like WHAM all this important stuff to find out in a few mins. I dont even want to imagine the pain, because I KNOW how painful it'll be eating normal food for 4 days!!

Have any of you ever had 3 scopes/biopsies done within a 6 day span?? I highly doubt it...How I'm gonna do this I really dont know :( I didnt fall asleep til about 7 am this morning because my mind was running to much.....If only more people could understand.

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK I'm gonna add this to this post because its what caused all my new issues...I honestly feel like having a nervous breakdown because of it.

To remind you, my endoscopy in Saskatoon will fall right in the middle of midterms, on Feb. 21. Since most of you have had an endoscopy, you know you need a day to recover, yes??

Well, (Daxin on this board knows the school i'm talking about), SIAST/Palliser have strictly decided I CANNOT write the midterms from the 21st and 22nd on the 20th, simply because they think we'll go and tell everyone in Palliser what was on the tests (no i'm not kidding you!!!). So all they could say was write on the 23rd and 28th. OK, 1 more on the 23rd is fine...but on the 28th is when I'm on my way back from Calgary and trying to recover from THAT endoscopy/colonoscopy. And I'm not allowed to write on the weekend...

I DONT KNOW WHAT TO DO *cries*. I AM NOT changing my appointments, not when theres a crazy wait!!

PLEASE GIVE SUGGESTIONS!!!!!!!

~ lisa ~

Felidae Enthusiast
Felidae
Posted

I wish I had a suggestion for you. All I can say is most of my university degree was done as an undiagnosed celiac. And I know how it feels to be sick from gluten when you are trying to write a final. I know that is why I did poorly in many classes. When you have to leave an exam because the immodium isn't working, it really sucks.

So to compound how I felt for years with additional testing for you in the middle of exams. Holy s**t. I feel for you. I don't see why they can't at least try to accomodate you with rescheduling some finals. Especially because your appointments also need to be done sooner than later. I wish I could help you.

Carriefaith Enthusiast
Carriefaith
Posted

Wow, that's a lot of information to process all at once. I'm happy that you have your appointments are so soon and I'm sorry that you have to eat gluten and that your midterms are around the same time (or on the same day in one case).

My advice is to not cancel any of your appoitments. Health is important... I would go to a trusted prof and tell them everything. Maybe you can write the midterms after the week-end or before you start eating gluten. You may get better luck asking to write them before you start eating gluten and before the appoitments. There should be someone who is understanding and who will help.

Good luck and keep us posted.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Wow, that's a lot of information to process all at once. I'm happy that you have your appointments are so soon and I'm sorry that you have to eat gluten and that your midterms are around the same time (or on the same day in one case).

My advice is to not cancel any of your appoitments. Health is important... I would go to a trusted prof and tell them everything. Maybe you can write the midterms after the week-end or before you start eating gluten. You may get better luck asking to write them before you start eating gluten and before the appoitments. There should be someone who is understanding and who will help.

Good luck and keep us posted.

Well that is the whole issue....they wont let me write before I start eating gluten or before I have the appointments (because like I say, they think I'm gonna go blabbing what was on the test to everyone). The college in Yorkton would be just fine with it, and my teachers said they wouldnt care if I'm in there writing a different exam...its the main college (in Moose Jaw) that says nope...they get the final decision. You're not allowed to speak to someone from Moose Jaw either.

the only idea i can think of is to get one of my family docs to write a letter saying I DO have these tests and I NEED a recovery day after each and sent it direction to Palliser ... for those who agree, please say. Because I'm determined to follow whatever suggestion I get the most..

~ lisa ~

Michi8 Contributor
Michi8
Posted

Just to clarify, Lisa, are you having an endoscopy on the 21st and then an endo and colonoscopy on the 27th? Is there any increased risk (infection or damage to system) to have the second procedure so soon after the first? Is 6/7 days long enough to recuperate before undergoing meds and scopes again?

Michelle

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Just to clarify, Lisa, are you having an endoscopy on the 21st and then an endo and colonoscopy on the 27th? Is there any increased risk (infection or damage to system) to have the second procedure so soon after the first? Is 6/7 days long enough to recuperate before undergoing meds and scopes again?

Michelle

Yes, endoscopy on 21st, both on 27th. And i'm not sure how safe it is :lol: ...I usually recuperate within a few days but need at least 1 to sleep.

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Lisa,

Here we can take an "incomplete" and finish the course the next semester without any penalties. Is that an option?

jerseyangel Proficient
jerseyangel
Posted

Lisa,

I see you have thought about it, but I was actually going to suggest you get something in writing from your doctor. That might hold more weight with the school.

It's worth a try, anyway. :)

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa,

I see you have thought about it, but I was actually going to suggest you get something in writing from your doctor. That might hold more weight with the school.

It's worth a try, anyway. :)

Yeah, thanks glad you agree. I'll reply later (even from school) once I find out how to get that phone # ... I want this next month to be OVER WITH already.

And btw Jestgar, cant do that (the incomplete) because I already will be 1 class short of graduating and kinda already got things planned out about how I'm gonna make up for that 1 class.

~ lisa ~

Nantzie Collaborator
Nantzie
Posted

Definitely ask your doctor to send a letter to (or maybe even call) the school.

Nancy

Phyllis28 Apprentice
Phyllis28
Posted

Lisa,

Hope all goes well. I was undiagnosed most of my Junior year of college. I was able to incomplete one of my classes because I was sick and make the work up later.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Definitely ask your doctor to send a letter to (or maybe even call) the school.

Nancy

Yeah...calling would be a good idea but I bet you anything the school wouldnt believe that either. I think actual document might be the only thing that works. I'm gonna see if the main guy here is back from dinner yet, will post again soon. Wish me luck, everyone

~ lisa ~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK I talked to the principle dude/main guy and he even called to Palliser to talk to the main guy there but he wasnt in..and his receptionist even said theres absolutely no way. I asked if there was ANYTHING, even with a VERY valid reason that would permit me to write them sooner, and they completely refuse. He said he completely understands why I need the time off and even himself said if it was their choice I could write them before.

So I guess its final....

I have to write 2 on friday, feb 23rd (1 from 9-1 pm, the other 4-8:30 like planned)...and 1 on thursday, mar 1st (from 9-1 pm). no other choices. :( .. ugh!!!

Time to say NOT GOOD THINGS about this whole system :angry:

~ lisa ~

Daxin Explorer
Daxin
Posted

Lisa,

I am sorry to hear about all the things that have been going on with your exams. I can emapthize however.

It angers me that the school is so inflexable as to not let you write early, since you will be not only out of commission, but physically out of the province during the rest of the exams. There is NO WAY you could pass on information to your fellow students!

I hope things go well, and you find the answers you seek. We're all here for you (eh. ;))!

Judyin Philly Enthusiast
Judyin Philly
Posted

Lisa,

Just getting back on line after some time.

Missed this.

so sorry..your trying so very hard in all areas of your life.

i'll keep you in my prayers...

judy in philly

  • 2 weeks later...
num1habsfan Rising Star
num1habsfan
Posted
  • Author

*bumps* 15 days to go :unsure:

btw, I got my midterms changed around yet again. So this IS the final plan:

I write one this friday (Feb 16th)

and I write the other 4 from March 5th to March 8th

They are also allowing me some extra days off for rest, as long as I get a doctors note.

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,571
    • Most Online (within 30 mins)
      7,748
    Catherine OBrien
    Newest Member
    Catherine OBrien
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Weakly positive DGP IgA

      By trents · Posted

      If your total IGA is low then the values for the other IGA tests cannot be trusted. They will be depressed. Celiacs who have the DQ2 gene typically are on the more sensitive side as opposed to those who only have the DQ8. But keep in mind that having either or both of those genes does not equate to having celiac disease as 40% of the general population have one or the other and only about 1% of the general population develops active celiac disease. Genetic typing can be used for ruling it out, however. Because of the low total IGA, symptoms and the possession of the DQ2 gene, my suggestion would be for you to go seriously gluten free for a few months and see if your symptoms improve. It may be the only way you can ascertain if you are gluten intolerant because of the low total IGA.
    • Cat M
      Weakly positive DGP IgA

      By Cat M · Posted

      Ah ok, I just saw didn’t even post the DGP IgA at all. 😫 I started with itching and hives Jan 2024, been taking a ton of meds and on Xolair and even that is not providing total relief. The other primary symptoms: intermittent but worsening abdominal pain, diarrhea and bloating. This summer I am just exhausted. I uploaded my 23andMe data to genetic lifehacks and discovered quite a few variations, including DQ2, MTHFR, VDR and I have always had very low ferritin, vitamin D and B12. I still think that mast cell disease makes the most sense, but latest labs show I am barely in range for thiamine, zinc and vitamin A, so the GI stuff feels more important to figure out than the hives right now. I did SIBO testing this morning. TTG IGA <2   0-3 is negative TTG IGG  3   0-5 is neg DGP IGA 21    20-30 is weak positive DGP IGG 4    0-19 is negative Although total IGA is not resulted, there is a footnote stating it was low and the reason they ran IGG.  
    • Scott Adams
      Positive TTG antibody and negative EMA antibody

      By Scott Adams · Posted

      This is an interesting case. A positive tissue transglutaminase (tTG) antibody with a negative endomysial antibody (EMA) and normal duodenal histology can present a diagnostic challenge, especially in an asymptomatic patient. While the absence of villous atrophy and negative EMA suggest that the likelihood of active celiac disease is low at this time, such serological discordance may still warrant monitoring. Some individuals may be in the early stages of celiac disease, often referred to as potential celiac disease, particularly if they carry the HLA-DQ2 or DQ8 haplotypes. HLA typing can be quite helpful in this situation; a negative result would virtually rule out celiac disease, whereas a positive result may justify periodic follow-up to monitor for evolving disease. The risk of progression to overt celiac disease is not well defined but appears to be higher in children, those with a family history, or those with autoimmune conditions. In this case, routine follow-up including repeat serology and consideration of symptoms or new risk factors over time would be a reasonable and cautious approach. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Scott Adams
      Old to diagnosis

      By Scott Adams · Posted

      Have you tried to start a gluten-free diet since your diagnosis in 2019?
    • trents
      Positive TTG antibody and negative EMA antibody

      By trents · Posted

      Welcome to celiac.com, @Wamedh Taj-Aldeen! Just curious, what is your relationship to the patient? Are you the attending physician? A medical student? A consulted physician? Was a total IGA test ordered? Some physicians are under the dated and mistaken impression that such is only necessary in young children. If total IGA is low, other IGA antibody numbers will be artificially depressed. By the way, it is not unusual to have a positive TTG-IGA and a negative EMA. Are the TTG-IGA numbers borderline high or unequivocally high? There are other diseases and medical conditions that can cause elevated TTG-IGA numbers besides celiac disease but when this is the case, the numbers are usually not dramatically elevated. It can also be the case that villous damage was patchy and affected areas were missed during the biopsy. Or, onset of celiac disease was very recent and villous atrophy has not yet progressed to the point of detectability.  We also have occasional anecdotal reports in this online community of positive antibody testing with negative histology, as you report. But we also know that gluten intolerance can manifest itself apart from enteropathy. It can damage other organ systems. Many celiacs are of the "silent" type, meaning there is an absence or a relative absence of symptoms until the disease has become advanced and there is significant damage to the villous lining or other organ systems. But to answer your questions: 1. I would definitely pursue a routine follow-up and recheck of the antibodies. And, I would order a complete celiac panel including total IGA and IGG stuff in say, six months. Sooner if symptoms manifest. 2. It is impossible to say what is the risk of the future development of over celiac disease. I refer you back to my #1 above concerning rechecking.  3. I would definitely pursue HLA DQ2/DQ8 typing as it can be used as a rule out for celiac disease, though not quite with 100% dependability. I hope my thoughts prove helpful to you.
×
×
  • Create New...