Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Little Sister


super-sally888

Recommended Posts

super-sally888 Contributor

My little sister was apparently diagnosed with celiac (through some blood test) years ago. The dr. told her that she was marginal and that maybe she could still have some gluten. Anyway, we all know that is wrong.

When i suspected gluten problems for me (about 3 months ago) I talked to her (only at that time did I find out she had probably celiac). She then told me she had been gluten light for 6 months and her symptoms cleared up but that she thought she tolerate gluten and had was eating it from time to time. When I heard I was shocked and asked her to research further. She blew up at me and told me to mind my own business. Ok. At least I tried.

The latest thing I hear (today) is that she was having blood in her stool and symptoms back and is finally going to be completely checked. Endoscopy and biopsy, genetic and immune testing. Whew! Great! I am so pleased that she is really going to check this out for once and for all.

And she just emailed me to tell me that maybe my thryoid prob is caused by gluten! So she's also researching. I don't hope she has celiac. But really it is so important to know and treat/manage this properly.

If she is positive then all my sisters, my mother and my brother will be tested.

Moral of this! patience. And don't give up on helping those you love.

Sally


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bri's mom Apprentice

You sound like a very caring sister. She is lucky to have you. My 21 yr. old daughter's biopsy came back positive for celiac this past Dec. I also have two sons, 30 and 24 yrs. old. Should they be tested for celiac even if they are not having problems. We have not been able to trace back to any family members who had celiac. I don't know much about my dad's people though. It could have come from that side. I hope your sister does well.

Bri's Mom

super-sally888 Contributor

Hi Bri's Mum,

If your daughter has celiac, she must have got the genes from either you or your husband. If you don't know which one of you, both of you should be tested, and your other children. People can have this with no symptoms... but that doesn't mean that damage is not occuring. Hope all works out well.

Sally

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,266
    • Most Online (within 30 mins)
      7,748

    Toni Martine
    Newest Member
    Toni Martine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @BoiseNic Have you tried the Autoimmune Protocol Diet?  This Paleo diet cuts out most everything except meat, veggies and some fruits.  By cutting out all the carbohydrates, especially processed ones, the carbohydrate loving bacteria and fungi like Candida get starved out and die off.  After that, taking probiotics to help repopulate the gut is beneficial.  The new strains of bacteria don't have to fight the established unhealthy yeasts and bad bacteria which causes a rise in histamine levels which can make one feel sick.   Certain vitamins help keep bad bacteria and fungi at bay.  Thiamine is one.  Antibiotics can deplete Thiamine stores.  The Gluten free diet can be low in Thiamine and the other vitamins and minerals needed for healthy skin and digestive tract.  Vitamin C, Vitamin D, zinc, and Niacin B 3 are important to skin health.  Niacin is especially helpful in Dermatitis Herpetiformis.  I like the kind that flushes (Nicotinic Acid - not the same as nicotine in cigarettes).  The flushing gets less and less the longer it's taken, but Niacinamide which doesn't cause flushing can be taken instead.     Here's an interesting article.  Compare the bacteria mentioned in the article with your Skinesa and then with the Visbiome probiotics.   The Role of Probiotics in Skin Health and Related Gut–Skin Axis: A Review https://pmc.ncbi.nlm.nih.gov/articles/PMC10385652/ Visbiome https://www.visbiome.com/collections/all/products/visbiome-capsules  
    • Wheatwacked
      The short answer is if it hurts, don't do it. Yogurt may help sooth your gut and repopulate it with benificial bacteria.  I prefer whole milk yogurt because it is not processed and the no fat yogurt is processed dehydrated milk powder with guar gums and water added to make it mouth feel like fat.  Especially in early healing there may be other foods you cannot tolerate for a while.
    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
×
×
  • Create New...