Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bacteria

ROYAL BLUE

Recommended Posts

ROYAL BLUE Apprentice
ROYAL BLUE
Posted

My son has not improved enough on the gluten-free diet and his ttg levels are extremely high after 9 months. His Dr. did his biopsy again and took other samples. Today they told me he has a bacteria in his duodenum " we are trying to make heads or tales of this, we will call you when we know more" Has anyone else had this, if so what is it and how is it treated, is it related to Celiac disease?

Thanx for any opinions

Tracy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kirst4588 Apprentice
kirst4588
Posted

You said, 'again' regarding the biopsy - did he have one before? If so, what did it say? I know that people question Dr. Fine (enterolab) but I just watched a video of one of the support groups he spoke at, in my area, and he spoke of bacteria in the duodendum (sp) - it was either a beleived cause of celiac disease or vise versa - but definately, they were related. Let us know.

Kirst

tarnalberry Community Regular
tarnalberry
Posted

There was a study a little while back about people not improving on a truely gluten-free diet (so no accidental exposure) often having SIBO (small intestine bacterial overgrowth). Perhaps that is the issue here?

lovegrov Collaborator
lovegrov
Posted

It does sound like possible bacterial overgrowth, which anybody can have. Some people take a probiotic like Culturelle and sometimes doctors prescribe antibiotics. It's simple to take care of.

richard

ROYAL BLUE Apprentice
ROYAL BLUE
Posted
  • Author

Thanx for all of your replies.

kirst4588, you ask if he had a biobsy before. We went through the motions but due to an asthma attack under anesthetia, they had to abort the procedure before getting any samples.

Tracy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs

      Chronic mildly elevated liver enzymes was what eventually led to my celiac diagnosis but it took thirteen years to ferret that out and by that time I had developed osteopenia. Yes, you've got a lot going on there in the way of autoimmune disorders and all of them we now know have a connection with celiac disease. It is true that autoimmune disorders...
    2. Lburnett
      - Lburnett replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs

      Thank you! Yes, I have celiac disease, lupus and Sjögrens. My ALT and AST have been chronically slightly elevated for a couple years and recently had an acute kidney injury (thinking it was from an antibiotic) with increased Lipase. So my primary doctor referred me to a kidney specialist. Other kidney labs are normal.
    3. ChrisSeth
      - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Waiting on Blood test results…

      My test results for TissueTransglutaminase IgA Antibody test came back normal. Like spot on normal. I do not have celiac! My problems are stemming from this H Pylori infection. I think I’ve had it for years. We’ll see if the doctor wants to do an endoscopy to see how extensive the damage is. Otherwise just a regimen of antibiotics will do the trick. The tha...
    4. Beck1430
      - Beck1430 replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Reaction to gluten or gastro bug?

      Thank you both so much for taking the time to reply. Cristiana - yes the rashes seemed to resolve when he came off gluten too. I haven’t seen those pictures before, thanks for pointing me to them. I’d say his rash isn’t like the more severe photos which are scabbed and very bumpy. His rash is more like lots and lots of patches of eczema than spots...
    5. trents
      - trents replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs

      Welcome to the forum, @Lburnett! Have you been officially diagnosed with celiac disease? I'm just trying to get a handle on the health context from which your question comes.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,419
    • Most Online (within 30 mins)
      7,748
    HMM1
    Newest Member
    HMM1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Labs

      By trents · Posted

      Chronic mildly elevated liver enzymes was what eventually led to my celiac diagnosis but it took thirteen years to ferret that out and by that time I had developed osteopenia.  Yes, you've got a lot going on there in the way of autoimmune disorders and all of them we now know have a connection with celiac disease. It is true that autoimmune disorders tend to cluster. But it sounds like you are getting medical attention and keeping an eye on things. 
    • Lburnett
      Labs

      By Lburnett · Posted

      Thank you! Yes, I have celiac disease, lupus and Sjögrens. My ALT and AST have been chronically slightly elevated for a couple years and recently had an acute kidney injury (thinking it was from an antibiotic) with increased Lipase. So my primary doctor referred me to a kidney specialist. Other kidney labs are normal. 
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      My test results for TissueTransglutaminase IgA Antibody test came back normal. Like spot on normal. I do not have celiac! My problems are stemming from this H Pylori infection. I think I’ve had it for years. We’ll see if the doctor wants to do an endoscopy to see how extensive the damage is. Otherwise just a regimen of antibiotics will do the trick. The thanks for your guys’s help! 
    • Beck1430
      Reaction to gluten or gastro bug?

      By Beck1430 · Posted

      Thank you both so much for taking the time to reply.    Cristiana - yes the rashes seemed to resolve when he came off gluten too. I haven’t seen those pictures before, thanks for pointing me to them. I’d say his rash isn’t like the more severe photos which are scabbed and very bumpy. His rash is more like lots and lots of patches of eczema than spots. No we have no celiac in the family to my knowledge, though my mum and sister both have autoimmune diseases and wheat sensitivity. I think you’re right and I’ll have to do another trial to confirm if it was the wheat. I’ve been hoping all day that I come down with the bug to rule out the wheat reaction! But the rest of the family are absolutely fine.    Trents - thank you for the info regarding the genes. That’s very interesting and I’d definitely consider doing that as a way to rule it out without putting him back on wheat. I also didn’t know celiacs were commonly intolerant to dairy and soy. I think you’re right and there is definitely enough factors to show something is going on. I think I’ll do a repeat trial of the wheat challenge and if he reacts again I shall look into the genetic testing.    Thank you both so much for your time. Becky          
    • trents
      Labs

      By trents · Posted

      Welcome to the forum, @Lburnett! Have you been officially diagnosed with celiac disease? I'm just trying to get a handle on the health context from which your question comes.
×
×
  • Create New...