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Biopsy Results Are In!

Electra

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Electra Enthusiast
Electra
Posted

Well I just got my biopsy results and I definitely have Celiac Disease. It's so nice to have a confimed diagnosis.

Even after being gluten free for almost 4 weeks my biopsy was positive. Here is what the letter from my doctor says.

Dear Angela,

The biopsy of your duodenum showed changes consistant with Celiac Sprue, although they were fairly mild. I would encourage you to continue on your diet and to continue your "detective work" when trying new foods. As I suggested at the time of the endoscopy, I think we should repeat your tissue transglutaminase (the blood test for celiac sprue) in four to six weeks to see how you are doing.

A lab slip was included with the letter so that I can have my blood re-drawn sometime between 2/28 & 3/14 to see if my antibody levels are decreasing.

WOW it's such a relief to finally know with 100% certainty what my issue is.

Thank you so much to everyone here who has given me support time and time again. I would never have made it through this without this board.

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cajun celiac Rookie
cajun celiac
Posted

I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

Electra Enthusiast
Electra
Posted
  • Author
I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

Hmmmmmm I don't get how a biopsy can be suggestive of celiac? Isn't a positive a definite positive? Maybe it was negative, but he saw signs that there had been damage there? I'd be confused to. Are you still on gluten? If not then chances are that your blood tests would come back perfectly normal. Good Luck and I really hope you get some answers soon. The worst part is not knowing :(!!

jerseyangel Proficient
jerseyangel
Posted

Hi Angie,

I'm glad you got your answer. We're here for you :)

AmandaD Community Regular
AmandaD
Posted

Man, you have a great doctor!

Yenni Enthusiast
Yenni
Posted

Nice to get a 100% answer like that. Know what it is for sure.

babygirl1234 Rookie
babygirl1234
Posted

yes a biopsy can conf celiac disease or not but to get it conf you need to have blood work done to make sure

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happygirl Collaborator
happygirl
Posted

Angie:

Congrats on having the "gold standard" of a Celiac diagnosis!

Laura

PeggyV Apprentice
PeggyV
Posted
I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

I feel your pain. I have not been able to get a confirmed diagnosis, but the diet works for me so.....

Good luck

Peggy

rez Apprentice
rez
Posted

Awesome for you!!!! I think this is a sign to be encouraging to people when seeking a diagnosis. It makes things soooo much easier and I'm glad you feel better. Way to go!! It also goes to show that there are many wonderful doctors out there! So happy for you and your family!!!

darlindeb25 Collaborator
darlindeb25
Posted

I glad you have the answer finally.

Electra Enthusiast
Electra
Posted
  • Author

Thank you everyone for your encouraging answers and thoughts. I'm so glad I fianlly know what I'm up against and the diet is working very well for me so far. My entire household is beginning to change for the better. Thank you so much to everyone here who has helped me through my panic stages.

I really wish everyone could get a diagnosis as easily as I did, but I do not wish that everyone had to go through the pain and sickness that I went through. I feel so badly for those that can't seem to get it in writing. It's not really that "important" for most of us, but it is truely a HUGE relief just to have it confirmed. I know I would have stayed gluten free no matter what, but It's just so much easier to do it diligently when I KNOW with 100% certainly what the consequences will be if I don't stick to the diet.

Good Luck to everyone here!! For those of you who haven't been able to get a difinitive diagnosis I just want to let you know that you guys are AWESOME for recognizing it and sticking with what you know if right for you. Too bad doctors wouldn't just diagnose you on symptoms and diet changes alone. Maybe some day that will be possible, but until then hopefully we'll all continue to educate others on Celiac.

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      Biopsy results - second opinion?

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      Hi all, Such valuable insights shared here - I am so grateful to be able to read along! Thank you all for sharing your wisdom.  I (37yo female) have recently had an endoscopy to screen for celiac given a strong family history and extremely low Ferritin for the past 7 years (not responsive to oral supplements). I am awaiting celiac blood panel results (completed post-endoscopy to provide another piece of the puzzle, I think was just an accidental oversight not doing earlier).  The endoscopy results are as follows: Gastroscopy:  Stomach: Mild gastritis and one 4mm benign appearing inflammatory polyp in the body.  Duodenum: Largely normal but few shallow erosions seen in the duodenal bulb. Microscopy:  1. Sections show specialised and non-specialised gastric mucosa with increased numbers of chronic inflammatory cells within the lamina propria including occasional clusters of plasma cells amounting to mild chronic inflammation. No active inflammation, intestinal metaplasia, dysplasia or malignancy is seen. Immunostains for Helicobacter organisms are negative. 2. Sections show small bowel mucosa with normal villous architecture. A mild non-specific intra-epithelial lymphocytosis is noted at the villous tips of uncertain clinical significance. The lamina propria contains a normal population of chronic inflammatory cells. No granulomas or parasites are seen. There is no dysplasia or malignancy. Conclusion 1. Gastric: Mild chronic inflammation 2. Duodemum: Mild non-specific intraepithelial lymphocytosis with preserved villous architecture.  The GI specialist, assuming blood tests come back normal, feels it is unlikely that it is celiac given the normal villous architecture. Suggested continuing on as usual and monitoring for symptoms etc, screening with blood test if required in the future.  Worth a second opinion or does this seem accurate? Anything else I should be considering? I feel a little lost as to how to best proceed! Thanks again.  
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