Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Results Are In!

Electra

Recommended Posts

Electra Enthusiast
Electra
Posted

Well I just got my biopsy results and I definitely have Celiac Disease. It's so nice to have a confimed diagnosis.

Even after being gluten free for almost 4 weeks my biopsy was positive. Here is what the letter from my doctor says.

Dear Angela,

The biopsy of your duodenum showed changes consistant with Celiac Sprue, although they were fairly mild. I would encourage you to continue on your diet and to continue your "detective work" when trying new foods. As I suggested at the time of the endoscopy, I think we should repeat your tissue transglutaminase (the blood test for celiac sprue) in four to six weeks to see how you are doing.

A lab slip was included with the letter so that I can have my blood re-drawn sometime between 2/28 & 3/14 to see if my antibody levels are decreasing.

WOW it's such a relief to finally know with 100% certainty what my issue is.

Thank you so much to everyone here who has given me support time and time again. I would never have made it through this without this board.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cajun celiac Rookie
cajun celiac
Posted

I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

Electra Enthusiast
Electra
Posted
  • Author
I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

Hmmmmmm I don't get how a biopsy can be suggestive of celiac? Isn't a positive a definite positive? Maybe it was negative, but he saw signs that there had been damage there? I'd be confused to. Are you still on gluten? If not then chances are that your blood tests would come back perfectly normal. Good Luck and I really hope you get some answers soon. The worst part is not knowing :(!!

jerseyangel Proficient
jerseyangel
Posted

Hi Angie,

I'm glad you got your answer. We're here for you :)

AmandaD Community Regular
AmandaD
Posted

Man, you have a great doctor!

Yenni Enthusiast
Yenni
Posted

Nice to get a 100% answer like that. Know what it is for sure.

babygirl1234 Rookie
babygirl1234
Posted

yes a biopsy can conf celiac disease or not but to get it conf you need to have blood work done to make sure

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Angie:

Congrats on having the "gold standard" of a Celiac diagnosis!

Laura

PeggyV Apprentice
PeggyV
Posted
I am happy that you have an answer. Even when a diagnosis is scary it is still better then the unknown.

I had a biopsy done last month that was "suggestive" of Celiac. I had blood work done last week and it all came back normal. So I am truly confused. I see my gastro next week so hopefully she'll shed some light. If I do have it, I want it to come back with flying colors. At this point I am almost hoping it is Celiac so that I don't have to go on wondering what the hell is wrong with me!

Good luck!

I feel your pain. I have not been able to get a confirmed diagnosis, but the diet works for me so.....

Good luck

Peggy

rez Apprentice
rez
Posted

Awesome for you!!!! I think this is a sign to be encouraging to people when seeking a diagnosis. It makes things soooo much easier and I'm glad you feel better. Way to go!! It also goes to show that there are many wonderful doctors out there! So happy for you and your family!!!

darlindeb25 Collaborator
darlindeb25
Posted

I glad you have the answer finally.

Electra Enthusiast
Electra
Posted
  • Author

Thank you everyone for your encouraging answers and thoughts. I'm so glad I fianlly know what I'm up against and the diet is working very well for me so far. My entire household is beginning to change for the better. Thank you so much to everyone here who has helped me through my panic stages.

I really wish everyone could get a diagnosis as easily as I did, but I do not wish that everyone had to go through the pain and sickness that I went through. I feel so badly for those that can't seem to get it in writing. It's not really that "important" for most of us, but it is truely a HUGE relief just to have it confirmed. I know I would have stayed gluten free no matter what, but It's just so much easier to do it diligently when I KNOW with 100% certainly what the consequences will be if I don't stick to the diet.

Good Luck to everyone here!! For those of you who haven't been able to get a difinitive diagnosis I just want to let you know that you guys are AWESOME for recognizing it and sticking with what you know if right for you. Too bad doctors wouldn't just diagnose you on symptoms and diet changes alone. Maybe some day that will be possible, but until then hopefully we'll all continue to educate others on Celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      What should I do with these test results?

      The fact is, we know very little about the mechanism of NCGS at this point. We know much more about celiac disease. Some experts believe that NCGS can transition into celiac disease. And I do not agree with what you read about NCGS not producing any elevated antibody tests. IMO, and I have no scientific data to support this, it's just a hunch base on reading...
    2. Scott Adams
      - Scott Adams replied to plumbago's topic in Related Issues & Disorders
      12

      Anyone else with very high HDL?

      Statins are a widely prescribed class of medications used to lower cholesterol levels and reduce the risk of cardiovascular events, such as heart attacks and strokes. Extensive scientific research, including large-scale randomized controlled trials, has demonstrated their efficacy and safety for most individuals. Statins work by inhibiting an enzyme involved...
    3. trents
      - trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Colonoscopy with large area of inflammation

      Just judging from the reports we get from forum members sharing their endoscopy results, very common. But we also get a lot of reports of inflammation in those areas coupled with a negative biopsy for celiac. But I wonder if in a lot of those latter cases we are seeing NCGS or a transition from NCGS to celiac. I have no scientific data to support that. It...
    4. KatherineS
      - KatherineS posted a topic in Traveling with Celiac Disease
      0

      Celiac-safe home for summer rental in DC

      We used to rent our home in Washington DC during the summer travel season, but since we discovered celiac we renovated our kitchen and replaced all our cookware/ utensils etc. We like to offer it again but only to Gluten Free families. does anyone have an recommendations on where to post or how to go about this. or is anyone here interesting in spending a...
    5. Jack Common
      - Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      How many grams is there in one slice of wheat bread?

      I don't have symptoms now. But this DGP IgG is high than normal. I read your article. Very nice by the way. Based on it I don't need to do DGP IgG because I don't have IgA deficiency. I did it first time because those days I didn't know the right procedure for blood tests so I did all. What might you do if you was me? Just keep eating gluten and do tests...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,952
    • Most Online (within 30 mins)
      7,748
    Althea W
    Newest Member
    Althea W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      What should I do with these test results?

      By trents · Posted

      The fact is, we know very little about the mechanism of NCGS at this point. We know much more about celiac disease. Some experts believe that NCGS can transition into celiac disease. And I do not agree with what you read about NCGS not producing any elevated antibody tests. IMO, and I have no scientific data to support this, it's just a hunch base on reading many, many forum contributor test result reports, elevated igg antibodies may signal a transition from NCGS to celiac disease.  But there are other things besides gluten that can cause elevated dgp igg and ttg igg antibody levels. So, yes. I would continue to monitor the situation if I were you and get regular testing. Not necessarily every 6 months but yearly anyway if you can. In the meantime, if you know gluten causes you unwellness, continue to avoid it.
    • Scott Adams
      Anyone else with very high HDL?

      By Scott Adams · Posted

      Statins are a widely prescribed class of medications used to lower cholesterol levels and reduce the risk of cardiovascular events, such as heart attacks and strokes. Extensive scientific research, including large-scale randomized controlled trials, has demonstrated their efficacy and safety for most individuals. Statins work by inhibiting an enzyme involved in cholesterol production in the liver, thereby reducing low-density lipoprotein (LDL) cholesterol, often referred to as "bad" cholesterol. Importantly, statins do not "remove all fats" from the body, as suggested in your post. They specifically target cholesterol synthesis and do not deplete essential fats, such as those required for brain function, hormone production, or nutrient absorption. The body still maintains its necessary fat reserves, including healthy fats, which are critical for physiological processes. Regarding the claim that statins cause internal bleeding by making blood vessels permeable, this is not supported by scientific evidence. Statins are not known to increase the risk of internal bleeding. However, like all medications, they can have side effects, such as muscle pain or, in rare cases, liver enzyme abnormalities. The benefits of statins in reducing cardiovascular risk generally outweigh the risks for most patients, particularly those with a history of heart disease or high cholesterol. The suggestion to use odorless garlic, magnesium, vitamin K, and calcium for heart health may have some merit, as these supplements can support cardiovascular function in certain contexts. For example, magnesium is involved in muscle and nerve function, while vitamin K plays a role in blood clotting and bone health. However, these should not replace evidence-based treatments like statins when prescribed by a healthcare provider. Always consult a medical professional before making changes to medication or starting new supplements, as individual health needs vary.
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Just judging from the reports we get from forum members sharing their endoscopy results, very common. But we also get a lot of reports of inflammation in those areas coupled with a negative biopsy for celiac. But I wonder if in a lot of those latter cases we are seeing NCGS or a transition from NCGS to celiac. I have no scientific data to support that. It's just a hunch.
    • KatherineS
      Celiac-safe home for summer rental in DC

      By KatherineS · Posted

      We used to rent our home in Washington DC during the summer travel season, but since we discovered celiac we renovated our kitchen and replaced all our cookware/ utensils etc. We like to offer it again but only to Gluten Free families. does anyone have an recommendations on where to post or how to go about this. or is anyone here interesting in spending a month in Washington DC this summer?  The old listing is here but now the kitchen looks totally different: airbnb.com/h/dc-family-oasis
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      I don't have symptoms now. But this DGP IgG is high than normal. I read your article. Very nice by the way. Based on it I don't need to do DGP IgG because I don't have IgA deficiency. I did it first time because those days I didn't know the right procedure for blood tests so I did all. What might you do if you was me? Just keep eating gluten and do tests again after some time? Biopsy is not available in my town. I also read somewhere if a person has NCGS he doesn't have any blood tests high. Very confusing situation.
×
×
  • Create New...