Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Experience With Testing

jaysmom

Recommended Posts

jaysmom Rookie
jaysmom
Posted

We had our first Gastro appointment last week and they drew blood. This coming week we go back for the breath test and upper GI where he is to drink something than have an image taken of it.

As I am new to the process and confused about what to do I was just wondering what others experiences have been. Our 9yr old still has horrific gas, diarrhea, stomach pain, rash, nasuea, fatigue and general pedi was no help so our eggs are in the GI's basket now.

Why is it so hard to get an answer?

We will talk to the Dr this week the same day the breath test and GI thing is done to get results but just betting on previous experience I doubt there will be an answer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kibbie Contributor
Kibbie
Posted

Its all going to depend on the Dr. My daughter had her blood drawn and about 5 day later (including the weekend) I received a phone call that she had tested positive for Celiac Disease. Her MRI (we thought it could be a brain tumor) and upper GI were canceled and we scheduled a biopsy instead.

The biopsy was about 2 weeks after that phone call and I had to continue giving her gluten until then. The day before her biopsy was the last day I ever gave her gluten.

So it took about 3 weeks from blood work to biopsy... an we had about 2-3 weeks of sever symptoms before the blood work.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,889
    • Most Online (within 30 mins)
      7,748
    MHannan
    Newest Member
    MHannan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • emily 1
      Black Pepper Reactions

      By emily 1 · Posted

      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      Chronic duodenitis and gastritis post diagnose

      By Barcino · Posted

      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
    • trents
      Black Pepper Reactions

      By trents · Posted

      I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well. 
    • knitty kitty
      Coping with celiac

      By knitty kitty · Posted

      Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?  
    • knitty kitty
      Black Pepper Reactions

      By knitty kitty · Posted

      These articles are helpful.
×
×
  • Create New...