Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Example Of A Little Bit Of Knowlege Being Dangerous


mamatide

Recommended Posts

mamatide Enthusiast

Cityline, a daily Canadian talk show, did a brief segment on what it means to be gluten-free this morning and stated:

1. that something can be done to wheat to remove the gluten

2. that organic wheat is ok

3. that spelt is a good substitute

4. that oats are a substitute

5 that gluten can be removed from the diet and then slowly reintroduced

and should be kept at a minimum thereafter.

The also suggested that going gluten free can be a solution for hot flashes (that would

be nice if it's true - let me know!)

Only a minor suggestion of Celiac disease (just mentioned the name, not

what it was).

I emailed them as I was listening to (and cringing at) the segment. I gave them some links (what is gluten, what is celiac disease, what is spelt) and a few of the more stunning statistics (1 in 133, 10 years to diagnose).

I only hope they haven't done harm with what they've said. I told them they need to correct this.

<sigh>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Amazing. I'm glad you emailed.

I've been gluten-free for a month. My hot flashes haven't improved. (But I didn't go on this diet for that anyway. It would be a nice fringe benefit, though. Did they say how long this was supposed to take? :lol: )

Daxin Explorer

THey usually appear more organized than that. I hope the information you directed them too allows for an on air correction. Let us know how it turns out.

Felidae Enthusiast

I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

mamatide Enthusiast
I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

I emailed Rose Reisman too. Here's the correction she posted on her website:

Open Original Shared Link

blueeyedmanda Community Regular

Is this show seen in the US too? Either way I am glad you emailed them to get the correct information out. Giving the wrong information can hurt people who are just starting out or still in the testing phases. Good Job :):):)

tarnalberry Community Regular

the correction continues to support the use of spelt, and the idea that some celiacs can tolerate some levels of gluten. it's still a VERY misleading, and in some places just plain wrong, correction. HORRID!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

stupid canadians ;)

i should march on up there...

SillyBoo Newbie

For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

ArtGirl Enthusiast
For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

If only I should be so fortunate. :( I did read somewhere that gluten can affect the hormones which is why going gluten-free is helpful for this. Apparently gluten is not causing mine so no relief going gluten-free. I'm 60 and still have the darn things! It's been over 15 years for me.

Felidae Enthusiast
stupid canadians ;)

i should march on up there...

I thought Rose Reisman was an American. LOL

It really doesn't matter, except that her information is very wrong. She really shouldn't pretend to know things that she has not thoroughly informed herself on.

elye Community Regular

Sad, but true...we can be rather dumb up here. Lookit all the WHEAT we grow! :lol:

  • 2 weeks later...
Nic Collaborator

Could it be that going gluten free will help hot flashes if the hot flashes were caused by gluten symptoms and not the hot flashes that are caused by normal hormone changes such as menapause? I have heard from a few people here that they had hot flashes prior to going gluten free.

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      My journey is it gluten or fiber?

    2. - Scott Adams commented on Scott Adams's article in Skin Problems and Celiac Disease
      3

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - Scott Adams replied to EndlessSummer's topic in Related Issues & Disorders
      3

      Dizziness after eating green beans?

    4. - Scott Adams commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      7

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - Eric.C posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Slow healing?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,704
    • Most Online (within 30 mins)
      7,748

    Bob Scott
    Newest Member
    Bob Scott
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      In general if it is certified gluten-free serious steps are taken to avoid cross-contamination, but things can still happen in a shared facility, and gluten-free certification isn't a guarantee, as we've seen recently:  
    • Scott Adams
      As already mentioned here, and based on your description, this sounds like a serious and specific reaction to green beans. While your prior allergy tests didn't flag legumes, it's possible to develop a new allergy at any time. The symptoms you describe—extreme dizziness, racing heart, sweating, and itching—are consistent with a systemic allergic response, not just an intolerance. Given your history of celiac disease and tree nut allergies, your immune system is already predisposed to sensitivities. It is crucial to stop consuming green beans immediately and consult an allergist. They can perform more specific testing and may prescribe an epinephrine auto-injector for emergency use, as this type of reaction can be unpredictable and potentially escalate.
    • Eric.C
      I was diagnosed with celiac disease in October last year and followed a strict gluten free diet since then. My dietitian told me that my diet looks absolutely perfect and I can’t think of many possible ways to get cc as I am very strict. However, when I did my check up gastroscopy a year later my healing only showed a slow improvement going from marsh 3b - 3a. Is this normal healing for a year? My main symtoms pre- diagnosis was joint/back pain, poor immune system and stomach problems (especially in the morning). Joint pain and the immune system improved almost instantly but the stomach problems still persist (but has gotten better). For reference I am a 21 year old male and both my ttg levels were normal after just 4 months and also the test for calkprotekin. My diet consists of 99% home cooked meals in a kitchen free from gluten.
    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.