Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Feeling Better The Best Way To Go?


alissa

Recommended Posts

alissa Rookie

Just reading some the the topics.... it's funny how family members that have stomach problems and "D" , pretty much all symptoms of celiac will not ask to be tested. I have been gluten-free for the past two years and always had stomach problems as per the rest of my family members on my mom's side. A couple of them are on stomach pills (we all have had galbladder removed) yet none of them have sinced been tested for celiac. I think there is a fear in them that the tests could actually be positve and they would have to go gluten free. I feel finding out and going gluten free has made all the difference. Isn't feeling healthy better than the suffering?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

Alissa, I'm with you. If you are gluten free and feel better, then why would you eat it? I grew up with a little sister that was diagnosed with celiac at a year old. I'm still trying to figure out if I am. My blood test came back negative. I have had many bouts of strange rashes over the years and I'm wondering if it might be DH. I finally went on the diet a month ago. I have had quite a few improvements in that little amount of time. I do notice if I eat gluten I seem more sensitive to it now. I was using a lip gloss that I didn't realize for about a week. I'm still learning.

Guest cassidy

My mother and I have several family members that we suspect have celiac. We have told them but they don't want to listen. When my mom first told me about it I didn't want to hear anything, but that was only for a day or two. I got tested and went gluten-free right away but at first I was in denial and I didn't want to have to deal with it. Maybe the denial phase lasts longer for some people, especially if they don't live with the celiac and aren't reminded of it often.

Same goes for people who smoke and now have a "smoker's cough" or people who are overweight and have diabetes or joint problems. They could stop doing something they like to make themselves feel better, but most people don't.

Jestgar Rising Star

There's a lot of personal responsibility associated with this disease. Some people accept that easily and others don't.

kbtoyssni Contributor
There's a lot of personal responsibility associated with this disease. Some people accept that easily and others don't.

I agree. It seems like most people have to be very sick before they seek answers. If you just feel a little tired or get a bit of a stomach ache every now and then, it's not worth giving up all that yummy food. Now if you were throwing up after every meal and were too exhausted to get out of bed, you might reconsider how badly you want that food.

jlinc Rookie
There's a lot of personal responsibility associated with this disease. Some people accept that easily and others don't.

I agree. I think that modeling good behavior is the only way to teach. If I take care of myself, people in my family are more likely to, as well. I've found that's been true for several people I'm close to.

I don't like to "educate" people unless they ask me.

Sometimes I feel compelled to say something, like to my parents about my mom's persistent rash (sure looks like DH to me!), but if they don't listen, I have to be satisfied with having tried. Nagging is something I don't like when it's done to me, and I don't want to do it to anyone else, either.

Josh.

blueeyedmanda Community Regular

My mom has "D" all the time so if we are going shopping or anywhere she will not eat or drink. If we go to eat out, she won't have any coffee or drinks cause she says that is what causes her problems. She also sometimes blames herself for worrying. I love her to death but I know what her problem could be...gluten! She is 65 and I don't see her testing or changing her diet. I guess by now she probably feels like why bother. I am not going to be the one to push her. The frustration is not worth it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,939
    • Most Online (within 30 mins)
      7,748

    belkie
    Newest Member
    belkie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
×
×
  • Create New...