Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitivity, Intolerance, Or What?!


SundyFrutin

Recommended Posts

SundyFrutin Newbie

Hi everyone-

I'm thinking I have a gluten sensitivity (rather than full blown celiac). How do I get this diagnosed? It seems like blood tests and biopsies are to diagnose celiac alone.

Maybe I do have celiac. My symptoms include a very distended belly, gas, depression, fatigue, muscle pains, 'roids, and probably other stuff I can't think of right now, but none of the diarhea issues. My GE doc says its constipation, but I'm on my 3rd prescription with little relief.

thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chocolatelover Contributor

It certainly sounds like your symptoms fit (not everyone with celiac has diarrhea, so you're not alone there)...have you had any tests yet? If you haven't, it's probably worth seeing your doctor and getting the bloodwork done; perhaps an endoscopic biopsy as well. You must have gluten in your system for the bloodwork to show positive.

Enterolab (www.enterolab.com) can diagnose you through stool samples--they believe that this test is much more sensitive than the blood tests. It's a little pricey, and usually not covered by insurance, but most people say it's definitely worth the money! You don't need a dr's prescription to do this. They have tests for gluten, dairy, malabsorption, as well as genetic tests to see if you even have the celiac genes...

The other thing you can do is simply go off gluten and see if your symptoms resolve. It may be a while (several months) before they do, but many people try this as well.

Good luck!

hathor Contributor

Your symptoms certainly fit. I have some of them myself, with my primary concern being the constipation. I have Enterolab looking at what I was finally able to give them, so we'll see. I've gone a full month without gluten (that I know of :lol: ) and things do seem to be getting better.

Do you eat dairy products? That can create problems with constipation and gas as well for some people.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,750
    • Most Online (within 30 mins)
      7,748

    Ajustice
    Newest Member
    Ajustice
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
×
×
  • Create New...