Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Choosing A Pediatrician & Vaccines


Guest cassidy

Recommended Posts

Guest cassidy

I'm at the point where I need to pick a pediatrician and I'm not sure what to do.

I found a holistic one who is an MD and I really like the idea of that. His website talks about parents making choices about what they want for their kids. He is a breastfeeding expert (if a man really can be) and an autism expert. I have read autistic kids may respond to a gluten-free diet, so I would think he would know a little something about gluten-free living. The only issue is that he doesn't take insurance. We have a really high out of network deductible and then the insurance company only pays a low percent, so it would be expensive, they charge $180/half hour. If money wasn't an issue, I would definitely go here.

I know plenty of mom's that can recommend a normal MD but none of them have sick kids so I just wonder if my baby has celiac if the doctor will be good enough. Also, I feel like antibiotics are overprescribed and I don't just want someone to treat the symptoms, so I may be a "difficult" parent if my child is sick because I will ask a lot of questions and have a viewpoint on many things. It took me 28 years to be diagnosed and I went to countless doctors, so I guess I don't have much faith in mainstream doctors.

So, I was thinking of scheduling a visit with the holistic doctor and getting the latest info on what I can do to keep my baby healthy and then going to the regular in-network MD for his normal vaccines. If he seems to have celiac symptoms, which would be down the road since I will breastfeed and be gluten-free and probably not introduce gluten until he is one year, at least I would have someone to turn to. I just don't feel comfortable giving a baby vitamins or probiotics without talking to an expert, but I know how much they have helped me, so I don't want the regular MD to tell me kids just don't need things like that, if there is anything I can do to pump up his digestive tract or lessen the chance of other food allergies (I have plenty of them).

Also, I think people have posted here that they developed celiac after receiving a vaccine. Could that be a trigger in babies? It makes me nervous to give him all of those shots. Has anyone done research on this? If you have never had gluten in your life can you still have some sort of stress that triggers celiac? I realize that you have to have gluten to have symptoms but I'm wondering if it can be triggered before you have ever had gluten?

Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

My brother and I were both sick from infancy. Not everyone has a trigger. If a person goes their whole life or even a few months without gluten they will have a reaction to eating it just as a person who does not eat meat would have if they started eating animals. Good luck finding a doctor for your son, Cassidy.

kbtoyssni Contributor

Hard decision. You could always try a few doctors that are covered by your insurance and see how you like them. I try to pick ones that are younger. They tend to be more open to new ideas. I quiz my doctors a lot and am always asking them to do different tests and the younger ones are very receptive to my ideas. I figure that if I don't like what my doctor says, I don't have to listen to them. I can change at any point, so if I had a doc who insisted on antibiotics that I didn't want, I'd say no.

You could also ask the holistic doctor if he will lower his rates for you since insurance doesn't cover it.

My celiac was triggered by the flu at age 23.

shayesmom Rookie

I was at a seminar a couple of months ago and the speaker (from an internationally known hospital) did address the issue of vaccines triggering celiac disease. In short...YES. It can happen. Stress is an environmental trigger for Celiac. And being vaccinated can induce stress. Also, for those who have symptoms seemingly from birth....both pregancy and childbirth can be "triggers". So a baby could have celiac disease triggered just by being born. The situation is a bit of a catch 22. You can avoid all the potential triggers that you can find....and it could still be activated by something that is completely beyond your control. It's hard to find a healthy balance in this as paranoia is ingrained each time you read food labels. :P

As for a holistic doctor vs. an MD. We have both. We ended up firing 3 pediatricians before finally going back to my old PCP who may not know much about food allergies and Celiac, but he is definitely willing to help me in ways that I am comfortable with. We don't have a formal celiac disease diagnosis and to be honest....haven't really needed one. DD was diagnosed with "probable form of Celiac" strictly through dietary response. Our PCP has given us medical excuses for the school in order to keep my dd safe. No big deal there.

I had to see one of the other physicians in his practice for my dd's bladder infection a few weeks back. When I asked about trying probiotics and cranberry juice as opposed to antibiotics...he was all for it. Couldn't give me a dosage per se....but he felt that it was a reasonable and rational approach in our situation (the infection was mild and caught very early). He also wrote me a back-up prescription "just in case". I ended up scrapping the cranberry juice (too much fructose) after about a week and went with a D-Mannose supplement instead. Two doses into the D-Mannose and dosing with probiotics 4 x per day....dd's infection cleared up completely. It was amazing.

I don't see any reason why you couldn't find a happy medium between the two areas of medicine. And these days, you can even take courses on herbology to help manage minor family aches and pains using plants you grow at home. Simple things like catmint tea and apple cider vinegar in a bath full of water can do wonders for bringing down fevers and are safer to use than many OTC meds. Yes, there is an art to it and yes, you have to educate yourself. If you're going this route....you need to research thoroughly or get assistance from someone who understands what is being used. But it can be done and you don't have to do it all on your own all at once. Life is about learning. If you're truly interested in alternative forms of healing....start reading up on it, consult with your holistic doctor and/or MD and start off one step at a time.

As for your concerns of being a "difficult" parent to deal with when it comes to regular MDs.....hey! This is your child we're talking about! You need to have an open line of communication with your doctor. You should be comfortable with asking questions even if they don't necessarily fall into the mainstream categories. A good doctor will inspire trust. A bad one will have you so tied up in knots that you'll avoid going in until it's absolutely necessary and possibly a bit later than optimal for getting well quickly. That is not an ideal situation to be in. You are paying your doctor to help you....not to keep you "in line" or to maintain status quo. If you're feeling like a number...it's time to go elsewhere.

Good luck with whoever you decide to go with!

  • 3 weeks later...
mouth Enthusiast
I'm at the point where I need to pick a pediatrician and I'm not sure what to do.

I found a holistic one who is an MD and I really like the idea of that. His website talks about parents making choices about what they want for their kids. He is a breastfeeding expert (if a man really can be) and an autism expert. I have read autistic kids may respond to a gluten-free diet, so I would think he would know a little something about gluten-free living. The only issue is that he doesn't take insurance. We have a really high out of network deductible and then the insurance company only pays a low percent, so it would be expensive, they charge $180/half hour. If money wasn't an issue, I would definitely go here.

I know plenty of mom's that can recommend a normal MD but none of them have sick kids so I just wonder if my baby has celiac if the doctor will be good enough. Also, I feel like antibiotics are overprescribed and I don't just want someone to treat the symptoms, so I may be a "difficult" parent if my child is sick because I will ask a lot of questions and have a viewpoint on many things. It took me 28 years to be diagnosed and I went to countless doctors, so I guess I don't have much faith in mainstream doctors.

So, I was thinking of scheduling a visit with the holistic doctor and getting the latest info on what I can do to keep my baby healthy and then going to the regular in-network MD for his normal vaccines. If he seems to have celiac symptoms, which would be down the road since I will breastfeed and be gluten-free and probably not introduce gluten until he is one year, at least I would have someone to turn to. I just don't feel comfortable giving a baby vitamins or probiotics without talking to an expert, but I know how much they have helped me, so I don't want the regular MD to tell me kids just don't need things like that, if there is anything I can do to pump up his digestive tract or lessen the chance of other food allergies (I have plenty of them).

Also, I think people have posted here that they developed celiac after receiving a vaccine. Could that be a trigger in babies? It makes me nervous to give him all of those shots. Has anyone done research on this? If you have never had gluten in your life can you still have some sort of stress that triggers celiac? I realize that you have to have gluten to have symptoms but I'm wondering if it can be triggered before you have ever had gluten?

Any advice?

How about going to your state Department of Health? Or maybe is there a childrens hospital where you are? What state? LYnn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.