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How Long Have U Had Celiac?


Kara B.

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Kara B. Newbie

Hey

ive had celiac for about a year. i no peeple who have had it a long time i just dont no many teens w/ celiac. how long have u guys had celiac?


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Kassie Apprentice

1 year 1 month and 1 week. wow i didn't realize i actually now it from the exact day wierd :blink: lol

ErraticBinxie Explorer

I have been gluten free for about 10 years now.

  • 1 month later...
.paulaa Newbie

i found out i had celiac 5 days ago.

believe it or not.

lol

Ashley Enthusiast

I've had Celiac for 2 years on the 15th of April.

-Ash

  • 2 weeks later...
Paris96 Newbie

I JUST FOUND OUT 2-3 WEEKS AGO THE HARD WAY IF U KNOW WHAT I MEAN! I JUST SAW THE NUTRIONULIST YESTERDAY SO BASSICLY 2 DAYS! I HATE IT!!!!! I WAS REALLY SAD AT FIRST :( I DONT KNOW ANYONE WITH CELIAC DISEASE AND I CANT TALK TO MY FRIENDS CUZ THEY DONT UNDERSTAND HOW HARD IT IS!!!!!

Speedy Newbie

Ive had it about 18 years, pretty much since i could start eating solid foods...thats when i was diagnosed, so about since i was about a year old


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  • 3 weeks later...
DestinyLeah Apprentice

I got my official diagnosis this morning.

My doctor said that with the damage I have and my medical records, I have had it my whole life, and it nearly killed me.

I was really surprised to find so much support on the web, though. It is making it easier to be gluten free, which I have had to be since I was released from the hospital a couple of months ago.

Guest Damo

You'd have to ask my intestines.

I was unofficially diagnosed a month and a half ago but only officially from biopsy results a week ago. Judging by the fact that I haven't put on any significant weight for 5 years, and have had on-and-off low iron for about 3 years, I'd say it'd be at least that long sinse I've had it. Those are my only symptoms which is good in a way but it also means my diagnosis has been postponed.

  • 2 months later...
lex4850 Newbie

a little longer than two years...

blueeyedmanda Community Regular

Coming up on 3 years

Ed-G Newbie

I had celiac almost all my life -- nearly 50 years. That's why I refer to myself as a banana baby. Way back then you eliminated everything and were started on bananas, and gradually added things.

Ed in MD

Crystalkd Contributor

About three weeks ago although I've been on the diet for 5 weeks. I've prob. had symtoms all my life but was told it was the Cerebral Palsy. I started having unexplained problems in 95 and my first bout of low iron in 2000. I'd say I've been sytomatic for 13 years it just got to a breaking point 6 months ago.

kml55 Rookie

I have had celiac officially for about 3 years..always had stomach aches though since ealry childhood, so probably longer.

at first it was really hard, but each day it gets easier.

I am a nutrition major in college, so i hope that one day i can help people the way i was helped.

Lollipop Newbie

I am on my 6th week on my trial diet and it seems to be helping. I'm going on my first long trip soon. I'm not sure how much or what I need to bring. Any advice?

the-elmel Newbie

I was diagnosed in August of 2001. ;)

  • 2 weeks later...
Alexandra  Rosenberg Rookie

about 6 months since I was diagnosed.

flagbabyds Collaborator

15 years and 3 monts and 20 days (approximately :D)

taylor- Rookie

approx. 17 years. I've had it since I was 1 1/2

flagbabyds Collaborator
approx. 17 years. I've had it since I was 1 1/2

hey you're like me! i'm just a year behind you lol. i was diagnosed at 20 months so about 1 1/2 as well :D

pedro Explorer

Hi.

I been having symptoms all my life, since I was a kid, and I found out about Celiac at the age of 39.

The worse and more severe symptoms have been with me for the past 20 years.

Best regards to everyone.

little d Enthusiast

I'm not "offically diagnosed" but I found out about Celiac last year from my sister who has the same symptoms but affecting her differantly than me.

donna

  • 2 months later...
Guest Joshua

I have only known for one month. Some of my symptoms are definately those of celiac. I tested positive for the genetic test so no gluten for life they say. :unsure:

celiacvictim123 Newbie

hi i am only 12 but i want to know more about celiac and i have it :):huh:

Guest Joshua

celiacvictim123 how long have u had it.

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  • Posts

    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
    • StaciField
      I’m 41. You have helped me achieve the goals of finding a way of getting nutrients into my body so I will see how it works for me. Thank you so much.
    • Kathleen JJ
      Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry...
    • cristiana
      Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear.  I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum.  I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant.  I am sorry that you have to wait, but it will be worth knowing one way or another.  Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health.  But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana  
    • Kathleen JJ
      Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride.   Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on.   On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned.   Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month.    So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered.   However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL    I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope.  Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had.   We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid.   And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this?   I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means...   Kind regards, Kathleen  
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