Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie, A Lot Of Confusion...


Lindsay GFMom

Recommended Posts

Lindsay GFMom Apprentice

My 4.5 yo son has the following results from Enterolab:

Gluten Sensitivity Stool and Gene Panel Complete

Fecal Antigliadin IgA 29 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 21 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Run-4-Jesus Rookie

I'm 16 and I've been Celiac my whole life. Neither of my parents nor any of my 6 siblings have Celiac. Hopefully this will help you:

1. I have my own toaster. He will definitely need his own.

2. I don't think it's necessary to clean the microwave every time you put a gluten food inside because gluten can't magically get into the atmosphere and make him sick.

3. I'm the only one who eats a gluten-free diet in my family. #1 It would be entirely too expensive to feed the whole family with gluten free foods #2 My siblings would go CRAZY without wheat #3 My dad would NEVER give up his gluteny foods ;) So, it's not necessary for your whole family to go gluten-free unless you don't want to cook separate meals for your Celiac son and would rather have everyone eating the same thing.

4. You don't have to buy new pots and pans and dishes and such. Just make sure everything gets washed well, hot water and soap work fine.

Luckily he's young and it's good that he's diagnosed early. I was diagnosed when I was 2 so I've grown up knowing how to read labels on foods, how to order from restaurants, etc.

He should learn to accept this new part of his life soon, and he'll be able to be a "normal" kid! I promise.

Ursa Major Collaborator

Hi Lindsay, and welcome to this board.

I have seen many parents here reporting their kids having significant growth spurts after starting a gluten-free diet, and gaining weight (if they were underweight).

I wouldn't use the Bosch mixer for making anything gluten-free, unless you can be absolutely, 100% sure that you are able to completely scrub and clean every little crack of it.

Your son needs his own toaster, no way around that one. Also, I wouldn't cook two different meals for supper, there is no need for that. Most foods you eat for supper are naturally gluten-free anyway, like potatoes, meat and vegetables (and of course, fruits are gluten-free). You can easily thicken gravy with corn starch or light buckwheat flour (which I use, I like it better than corn starch for gravy). My family loves my gravy!

If you have pasta for supper, you can use rice pasta (lots of people like Tinkyada, but there are other good brands). I served two different types of lasagna last weekend, when I had a lot of guests. I can't eat it, but one of my daughters has a wheat allergy, and is intolerant to the combination of meat and tomato. So, one lasagna was a chicken lasagna with a white alfredo sauce, and the other a traditional one with ground meat and tomato sauce. Both were made with rice pasta, and NOBODY noticed! My daughter was the only one who knew, because I let her know that the white lasagna was safe for her to eat.

Also, you can't drain gluten-free pasta through your regular plastic colander, because it isn't possible to get all the gluten out, no matter how hard you try.

You can also bake great gluten-free cakes. When you have a birthday in the family, it would be much better if there would be a gluten-free cake, so your son won't have to feel left out.

'Official' gluten-free foods that are replacements for gluteny foods are expensive. Those aren't necessary for anybody, and because they are very high in carbohydrates and sugar, should ideally only be used for the occasional treat.

Make sure you check all personal care products like shampoo, conditioner, toothpaste, bubble bath, chap stick, soap, lotion etc. for gluten. If it says something like wheat germ oil, barley extract or oat bran (Aveeno), replace it. Also, make sure his vitamins are gluten-free (many are not). Vitamin E is often derived from wheat germ oil, and it should be confirmed that his is not.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,057
    • Most Online (within 30 mins)
      7,748

    Glutard007
    Newest Member
    Glutard007
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...