Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared To Death Of A Biopsy/colonoscopy


Cougar09

Recommended Posts

Cougar09 Rookie

so I finally saw an actual G.I. (one month after initial blood tests diagnosed me with Celiac) and he wants me to have a biopsy and colonoscopy done on Valentines day. (hey, at least I know I'll be getting some....there should be some pretty decent sized tubes shoved down and up me) Im freaking out. I hate wearing those hospital gown things they make you wear.... they make me feel like a naked lab rat. and even worse, I don't want anyone going up my butt while I'm asleep!!! I'm so worked up about this already and it's still a week away. I gag just brushing my tongue with my toothbrush... there's no way a tube is going down my throat without me throwing up all over the place. so embarassing. uuuuugh I'm really dreading this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

You shouldnt feel the tube going down your throat or anything like that. They will numb the area first (with a numbing spray). I didnt have any problems with either procedure. I didnt feel a thing. ;)

cajun celiac Rookie

I understand EXACTLY how you feel. My scopes were done 3 days after Christmas so I stressed over the holidays. I have no tolerance for pain whatsoever! But honestly, and I am truly being honest with you, it is no big deal. You will get an IV and that is the only thing you'll feel. The medication to make you sleep is given through the IV. Before you are put to sleep they squirt your throat with a numbing spray. Next thing you know you are awake and done. Mine took 20 minutes total, and that was the endoscope and colonoscopy. You don't feel anything afterwards. Well, maybe you'll feel a little gas. The hardest part for me was the fasting, that sucks. And the day of the procedure I couldn't even drink anything and my mouth was so dry. I was given medication to help with the anxiety, maybe you could ask for that.

Anytime I have a procedure done (or papsmear) I buy myself something immediately afterwards. New jeans, charm for bracelet, new make-up, etc. That way I have something to look forward to.

Canadian Karen Community Regular

Trust me, I fretted about it also..... but the other posters are right, you really, truly don't feel a thing!

In fact, just to show you how wacky and crazy I am, I loved it! The moment they give you that stuff that puts you in LaLa land, it is the closest thing to heaven I have ever experienced!! LOL! :lol:

Karen

GeoffCJ Enthusiast
Trust me, I fretted about it also..... but the other posters are right, you really, truly don't feel a thing!

In fact, just to show you how wacky and crazy I am, I loved it! The moment they give you that stuff that puts you in LaLa land, it is the closest thing to heaven I have ever experienced!! LOL! :lol:

Karen

Having just done one a few weeks ago, and having never had anything go "there" before, I'll say too, it wasn't a big deal. Drinking the stuff the day before wasn't much fun, but the procedure itself wasn't too bad. I notice the endoscope more than the colonoscopy, but neither was really uncomfortable, just a little _odd_.

YOu'll be fine. I made my wife buy me gluten-free ice cream afterward, but I played it up for sympathy! :P

jerseyangel Proficient

I had an endo and colo done on the same day. I was scared--my dad had colon cancer that was caught early--and I was also afraid of the procedures in general.

It was actually not bad at all. The colo prep the day before is the worst part. Once that's over, it's a piece of cake!

I don't remember anything from shortly after the IV went in, until I woke up in recovery. I did not get the sore throat, or much gas. I had some juice, and within a short time, got dressed and went home.

When I need it done again, I won't think twice. Really, it was fine. And you will be, too :)

JerryK Community Regular
and he wants me to have a biopsy and colonoscopy done on Valentines day. (hey, at least I know I'll be getting some....there should be some pretty decent sized tubes shoved down and up me)

That's bad :lol: I understand your fear tho, I'm worried they are going to want to scope me also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nothing but nicole Apprentice

I had an Endoscopy and a flexible Sigmoid on the same day and am now scheduled for a Colonoscopy next week also. I have had numerous surgeries and it is really no different, you fall asleep and wake up not knowing any different. I had a sore throat for a few days afterward but it was just when I ate things like hamburgers and rough foods.

chocolatelover Contributor

Cougar09,

I totally understand your anxiety. I just had a colonoscopy 2 weeks ago and an endoscopy last Friday. I was dreading the colonoscopy and was TERRIFIED of the endoscopy. The colonoscopy was just fine--the prep sucks, and you will definitely have some gas afterwards (so make sure you get as much out as you can before you leave the hospital or clinic), but the drugs do just what they are supposed to--you won't remember or feel a thing.

As for the endoscopy, my friend's 10 year old daughter with celiac (diagnosed 8 years ago) called me and left me a message saying that it was no big deal. She was absolutely right--it was nothing! I didn't feel a thing, don't remember a thing, and pretty much slept for about 15 hours afterwards. (I had them give me some anti-nausea medication just in case, because I have learned that I can be sensitive to certain drugs). If you're really worried, ask them to do that.

Also, remember that this is what these people do for a living--your behind, cute or ugly as it may be--is nothing special to them. :P

Good luck and let us know how it turns out!

CL

babygirl1234 Rookie

i had a colonscopy you dont feel anything you are awake but sleepy and i had endoscope they numb your thorth with a numbing spary so you dont gag and they put this thing in your mouth to serp your teeth

Susanna Newbie

Girl, I hear ya. It is definitely disturbing to think of your body being invaded by these procedures. However: it. must. be. done. No on WANTS to have a colonoscopy--it's just a fact that you need it. If it makes you feel any better, know that you probably won't remember any part of it. It's one day (not even a whole day) out of your life that will yield some valuable information about what is (or is not) going on with your body, so that you can put yourself on the right path to health. Good luck.

Christy-Latchford Rookie

Well I can honestly say I am in the same boat, I am awaiting the appointment date of my own colonoscopy, and it freaks me out....The part about the tubes down the throat are a breeze, I can say from experience, when your asleep you don't even know the difference, both times I have had it done I didn't even know when I woke up that it happened, and here's hopin the camera in the butt thing is the same... :(

Nancym Enthusiast

IMHO the worst part is the purging they have you do the day before the procedure. To me, it meant an night spent running to the potty. Even then, once I didn't quite make it to the pot in time... :\

msutherlin Newbie

I really understand your fear and have been there. I had to have the endoscopy done when I was pregant for my first child and they didn't give my anything because I was pregnant! So if I can do that with not even a tylenol, you can do it with drugs. Now, having said that I had to have another endoscopy and colonoscopy just two weeks ago to test for celiac and I was very nervous even knowing that I got through it before.

The worst part really is the prep. If you get through that you are home free. I went in for my test. Got on my gown. They got my iv in and got me set up in position in the bed. The next thing I knew they started the drugs and the last thing I said was I'm feeling really relaxed. Next after that the nurse was telling me it was time to get dressed. I swear it was the most relaxed I've ever been. I remember nothing from the time I was put out until they told me to get dressed. I was so groggy getting dressed that I don't remember all of it. My husband took me out to eat and I can only remember part of it. I came home and took the greatest nap!

You will do fine. I am having a small bowel xray the same day as you are having your testing done next week. I am a little freaked out about it as it is a different test and I think I will have to be more awake. But I will say a little prayer for you and please think of me also. You do great!

Cougar09 Rookie

I just wanted to reply to everyone who was so kind to write to me these past few days.... thank you all SO SO SO much for your comments! you have really helped me to calm down way more than you can even imagine. I went and picked up the "prep kit" today.... get to start that fun stuff tomorrow. the one thing that sucked a lot is that my allergy tests came back today that I took a week ago and this time they said I tested negative for everything...even wheat. I'm guessing this is because I haven't had wheat in a little over a month, but that was really weird. So anyway, the doctors did tell me that I had to have a "normal diet" today, meaning I shouldn't cut out ANY foods, including gluten. So I went on a little bit of a hay day and had a bagel and then half a small pizza (I got a little over-ambitious) and whoo boy let me tell you, I feel like I'm about to die. I just can't wait to start that medicine and get all of this out of me. that was just about the dumbest thing I've had to do in a while and I really doubt that doctor had any clue what he was talking about. (my normal doctor wasn't in, so a nurse consulted him.) anyway, wish me luck on finding out what is wrong once and for all!! and Msutherlin, good luck to you too! (and everyone else who posted and needs to have something really super fun done in the near future) <3 thanks all I'll let you know how it turns out!

babygirl1234 Rookie

yea the worst thing is the prep before your test you have to stay close to the bathroom

anerissara Enthusiast

Cougar, how did it go?

hillyb6 Rookie

my 8yrold just had the scope done she didnt even have to wear a gown go figure she got to wear her street clothes not sure how they managed that undressed her from waist down after she was knocked out was my guess but she was fully dressed when i got back to her room so she has no idea she even had a scope up the hind in which is all as well she is veyr modest i have to say other than them offering her nothing but gluten after they rock

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,878
    • Most Online (within 30 mins)
      7,748

    Dcecilio
    Newest Member
    Dcecilio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...