Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Only One


Jo.R

Recommended Posts

Jo.R Contributor

My mom is 1 of 11 kids, my dad 1 of 5, all whom have had kids, grand kids, and for some, great grandkids. I am the only Celiac, the only one with any stomch problems. I thought this stuff ran in families, or is that only sometimes?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Jo.

Coeliac does run in families. I am one of 8 children, my father one of 11 and my mum one of 3 children and all of those cousins etc of mine, and my four sons, and nobody but me has coeliac. It is probably no-one else except for about 4 people in my immediate family that have been tested and they all came back negative. But it is the others who have not been tested, who should get tested, but they are reluctant. I am so sure that if they were all tested, there will be at least one or two with this disease. But I can't force anybody to get tested as they are all adults. I am only thankful that I have got my answers and that I can take steps to ensure I continue to stay healthy.

Cathy

debmidge Rising Star

You are the only one so far who is aware that they have celiac disease...

My husband's sister appears to have celiac disease but thinks that as long as she doesn't get tested and proven positive for it, she doesn't have celiac disease, yet she has a lot of symptoms of it.

happygirl Collaborator

Jo:

Celiac is said to run in families because there is a genetic link to Celiac. There are two main genes that account for the majority of Celiacs. However, just having the gene doesn't mean that a person will have Celiac. About 30-40% of the American population has one or both of the genes, but only about 1 in 133 have Celiac (of which, 97% don't know it).

So, it may be that you are the only one who has it, or the only one who has it *now* (could be triggered in others later), or the only one who knows they have it.

For this reason, ALL first degree relatives should be tested for Celiac via bloodwork (according to celiac disease researchers and experts). First degree relatives have a higher chance of having Celiac than the average person.

Laura

Queen Serenity Newbie

Hi Jo,

Welcome to my world! ;) I am also the only one in a very large family who has celiac's. My mom is 1 out of 11, and my dad is 1 out of 6. I have a ton of cousins, nieces, nephews, etc... I was diagnosed 11 years ago. Since technology has grown, more and more doctors can make the proper diagnosis. I believe that people could not be diagnosed properly back in the day. So, it's likely that one of your ancestors carried celiac's. That's why we think that we are alone. But, more than likely, we were not!

Vicki

babygirl1234 Rookie

i am the only 1 in my family that has celiac disease

Nancym Enthusiast

I bet there are many more that have trouble with gluten but aren't even aware of it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TinkerbellSwt Collaborator

I am also a loner in the celiac world in my family. I am sure there are others, my father and brother both have stomach issues, they got the blood test and swear that is enough to prove they dont have it.. anyone else, just wont get tested. oh well, its their lives and their bodies that they may be doing damage to. I just cant convince them. So, for now me and my son are alone, and we arent sure if my son has it. He is 21 months so we keep him gluten free.

kbtoyssni Contributor

It could be that your mum's side has one gene, your dad's side another so you've got two making you more suseptible to developing it. It's also possible that other members of your family have it, but they've got some non-traditional symptoms and don't realize it. Anyone have allergies, reoccuring headaches, joint pain, unexplained sore throats, depression? All these could be celiac-related but often not caught.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,068
    • Most Online (within 30 mins)
      7,748

    Mike Pearia
    Newest Member
    Mike Pearia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Terrance Donald
      Thanks @Scott Adams for this information. I also found some options as well. One of them is also offering gluten free seafood menu with alot of options as well: https://pappadeauxmenu.com/
    • Beverley Ann Johnson
      HI, yes I get this reaction if I eat gluten by mistake or if I eat high fodmap foods as well.  I become nauseous, vomit then it hits the muscles, my legs sometimes give out.  It takes a while to feel "normal" again.  
    • Scott Adams
      The first step would be to re-examine your diet to see if hidden gluten is the cause. Eating out would be the number one source of contamination, even if restaurants offer gluten-free menus and options.
    • Scott Adams
      You may want to see al allergist and run a standard food allergy panel to see if wheat allergy could contribute to this, but again, the most likely culprit if you have celiac disease would be gluten contamination.
    • thejayland10
      Any specific tests you would recommend to check for other allergens or issues ? 
×
×
  • Create New...