Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Absorption Problems With Calcium And Vitamin D


BeckyW

Recommended Posts

BeckyW Contributor

I could really use some help! Doctors just aren't providing much help so I thought I would turn to this message board where I learn more.

I had my thyroid removed in Feb., 2006. I was diagnosed with Celiacs in Aug., 2006. I am having an absorption problem with calcuim and vitamin D. My body is not absorping either very well and I am having every symptom you can have from the low levels. I have taken different types of calcium - citrate and carbonate. The doctors want me to take the carbonate but that seems to upset my stomach. I am also on vitamin D prescription strength, over the counter vitamin d, magnesium and zinc. I currently take 1,500 or more of calcium, 3 prescription strenght vitamin D, 2 over the counter vit. D, mag and zinc along with the synthyroid.

One day my levels will be fine and then all the sudden they drop and I can't figure out why.

Can you someone please give me some information on this or any ideas what I can do for this? I am so frustrated as I feel horrible and the doctors are not helping at all.

Thank you!

Becky


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Becky, have you tried getting your vitamin D from a natural source such as cod liver oil? I had low vitamin D levels a year ago and started Carlson's cod liver oil (the only kind that doesn't taste awfully fishy), and my vitamin D levels went too high within several months!

The other benefit of cod liver oil is, that it supplies you with omega 3 essential fatty acids. Both omega 3 and omega 6 essential fatty acids are essential to all our cells and body functions. We normally get way too much omega 6 from many sources, but are severely lacking in omega 3s.

Have you tried taking a liquid Calcium/Magnesium/Vitamin D supplement? Because the stomach and intestines don't have to break down a liquid it is absorbed easier.

Synthroid is not the best thyroid replacement to take, as it is synthetic. You would probably do much better on a natural thyroid hormone replacement like desiccated thyroid (Armour). Go to Open Original Shared Link to find out more.

I hope this helps.

Nancym Enthusiast
One day my levels will be fine and then all the sudden they drop and I can't figure out why.

How do you know this? AFAIK vitamin D can only be measured in the blood and it doesn't just drop precipitously, it gets lower incrementally.

There is, of course, the old fashioned way of getting D... by exposing your body to the sun. Just don't use sunscreen and be sensible about the amount of time.

Ursa Major Collaborator
There is, of course, the old fashioned way of getting D... by exposing your body to the sun. Just don't use sunscreen and be sensible about the amount of time.

Well, if I'd try to get my vitamin D from sun exposure right now, I'd be sunk. It's the middle of winter, with snow and cold, and I have to bundle up to stay warm. The sun isn't out anyway, but even if it was, it wouldn't do much good.

The only places where you can get enough sun to make the vitamin D you need all year round are around the equator. Everywhere else you need to supplement to have optimal levels.

RIMom Newbie

Find a local Chiropractor, nutritionist or Naturopath who sells professional grade supplements. I personally recommend Metagenics. They gear all their supplements away from gluten and have a very high rate of dissolve-ability. You can contact Metagenics directly if you search them on the web and ask if they have a distributor in your area (this will be a doctor or nutritionist trained in their products). They have some products that are specifically geared toward those with bone density issues that they will recommend.

Getting a liquid is also a good idea.... please stay away from drugstore brands as their absorbtion rates are horrible and you can't be sure they are gluten free.

Try this test. Put one tablet or pill in a glass of water and time how long it takes to fully dissolve. If it doesn't dissolve in 20 minutes your body can't dissolve it before it passes out of your stomach.

Good luck.

Nancym Enthusiast

Here's a really interesting talk from a doctor about Vitamin D. It is quite long but very fascinating.

Open Original Shared Link

Nancym Enthusiast
Well, if I'd try to get my vitamin D from sun exposure right now, I'd be sunk. It's the middle of winter, with snow and cold, and I have to bundle up to stay warm. The sun isn't out anyway, but even if it was, it wouldn't do much good.

The only places where you can get enough sun to make the vitamin D you need all year round are around the equator. Everywhere else you need to supplement to have optimal levels.

True enough, but perhaps the OP lives somewhere tropical? There's also tanning salons, you just have to make sure you get the sort that have lamps that emit UVB. Me... I take 4000 iu a day. I just realized my knee arthritis has completely disappeared. I am astonished!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
Here's a really interesting talk from a doctor about Vitamin D. It is quite long but very fascinating.

Open Original Shared Link

Wow, I watched the whole thing and it's amazing. When I was retested to check my vitamin D levels in October (after taking two tablespoons of cod liver oil a day for a year), my vitamin D levels had gone up from 25 IUs to 158. According to the lab, the normal range is 40 - 150. 40 is way too low, and not normal at all. This guy says that we are designed to have a level around 150, so mine is actually right where it should be.

I am glad I watched that presentation, because I thought 158 was dangerously high, and decreased my intake of cod liver oil. I think I'll go back to taking what I did.

Nancym Enthusiast
Wow, I watched the whole thing and it's amazing. When I was retested to check my vitamin D levels in October (after taking two tablespoons of cod liver oil a day for a year), my vitamin D levels had gone up from 25 IUs to 158. According to the lab, the normal range is 40 - 150. 40 is way too low, and not normal at all. This guy says that we are designed to have a level around 150, so mine is actually right where it should be.

I am glad I watched that presentation, because I thought 158 was dangerously high, and decreased my intake of cod liver oil. I think I'll go back to taking what I did.

Unfortunately there's a lot of bad, old, out-dated information imbedded in the medical types about vit. D toxicity, and they're also prescribing the wrong type of it!

I've had arthritis since my 20's and it has virtually disappeared since I started the 4,000 iu of D3.

One thing, I think that guy's measuring is different from what they use in the US. He was going by umol/litre... Here's what the Heart Scan doctor says:

If you view Dr. Vieth's wonderful webcast, keep in mind that when he discusses vitamin D blood levels, he's using units of nmol/l, rather than ng/ml. To convert nmol/l to ng/ml, divided by 2.5. For example, 125 nmol/l is the same as 50 ng/ml (125/2.5 = 50).

This heart doctor is a big believer in Vit. D: Open Original Shared Link

150 is a lot, in nmol/l that'd be: 375 I think, if we're converting from nm/ml to nmol/l then we'd multiply by 2.5, right?

How much D is in 1 Tbl of cod liver oil?

I don't know if it is the D3 I'm taking or what, but I sure have been sleeping much better. :D

Ursa Major Collaborator
Unfortunately there's a lot of bad, old, out-dated information imbedded in the medical types about vit. D toxicity, and they're also prescribing the wrong type of it!

I've had arthritis since my 20's and it has virtually disappeared since I started the 4,000 iu of D3.

One thing, I think that guy's measuring is different from what they use in the US. He was going by umol/litre... Here's what the Heart Scan doctor says:

This heart doctor is a big believer in Vit. D: Open Original Shared Link

150 is a lot, in nmol/l that'd be: 375 I think, if we're converting from nm/ml to nmol/l then we'd multiply by 2.5, right?

How much D is in 1 Tbl of cod liver oil?

I don't know if it is the D3 I'm taking or what, but I sure have been sleeping much better. :D

Well, I didn't know there are two different ways of measuring vit. D. Because they did a lot of testing on me, they didn't have enough blood. So, I went and got more taken, and just called and got the levels I didn't have and added them to my sheet. Meaning, I don't really know how they measured it.

If their 'normal' levels are 40 to 150, and they tend to be off on a lot of things, I assume that it's likely umol/litre. Especially because that doctor was obviously Canadian, and I am in Canada.

One tablespoon of Carlson cod liver oil contains 800 IU of vit. D, meaning I am only taking 1600 IUs a day from that source. I am also taking 100 IUs in each of my multivitamins (I am taking three a day), and 100 in my calcium/magnesium supplement. Meaning, I am taking 2000 IUs of vit. D a day.

Hardly an excessive amount. I assume that the vitamin D in the cod liver oil is the one which is assimilated the easiest, as it is completely natural.

Gentleheart Enthusiast

Maybe you could split the difference and take 1 T per day to achieve a nice balance.

By the way, does anyone know if a good quality far-infrared dry sauna cabinet can help your skin produce vitamin D. Believe it or not, I actually have one. Never thought about that possibility for it.

Nancym Enthusiast
Well, I didn't know there are two different ways of measuring vit. D. Because they did a lot of testing on me, they didn't have enough blood. So, I went and got more taken, and just called and got the levels I didn't have and added them to my sheet. Meaning, I don't really know how they measured it.

If their 'normal' levels are 40 to 150, and they tend to be off on a lot of things, I assume that it's likely umol/litre. Especially because that doctor was obviously Canadian, and I am in Canada.

One tablespoon of Carlson cod liver oil contains 800 IU of vit. D, meaning I am only taking 1600 IUs a day from that source. I am also taking 100 IUs in each of my multivitamins (I am taking three a day), and 100 in my calcium/magnesium supplement. Meaning, I am taking 2000 IUs of vit. D a day.

Hardly an excessive amount. I assume that the vitamin D in the cod liver oil is the one which is assimilated the easiest, as it is completely natural.

Doh! Yes, I didn't realize you're in Canada, so it probably is the litre one. Yeah, you're fine!

Nancym Enthusiast
Maybe you could split the difference and take 1 T per day to achieve a nice balance.

By the way, does anyone know if a good quality far-infrared dry sauna cabinet can help your skin produce vitamin D. Believe it or not, I actually have one. Never thought about that possibility for it.

I don't know, but it requires ultraviolet B to make D, I think.

super-sally888 Contributor

Hi,

Have they checked your parathyroid function? This is tested by testing for Intact PTH (intact parathyroid hormone). Sometimes the parathyroids are damaged when they remove the thyroid.

If your parathyroids are damaged then the problem is with the hormone that regulates the uptake/production of Vitamin D and the absorption of calcium - rather than with the absorption from your gut....

Treatment is more complex and will require calcitriol and calcium and close monitoring.

Just another idea.

Sally

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,943
    • Most Online (within 30 mins)
      7,748

    Luz Kuehn
    Newest Member
    Luz Kuehn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
×
×
  • Create New...