Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On My Brother


JerryK

Recommended Posts

JerryK Community Regular

So a couple days ago, my brother smugly announced he'd eaten two chicken sandwiches one day

and then pizza for dinner, with basically no effect. So the last couple days, he'd slipped back to eating whatever he wanted...yesterday he had a couple soft (flour) tacos for lunch etc..

Basically told me his aches and pains were gone...likely from the new AD "Cymbalta" he was taking.

Today he calls me (from the bathroom at his work, sorry TMI) and says....the gastro symptoms are back. He now has a rash all over his face...and he hurts all over again.

Sheesh...what do ya all think of that:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I think he acts just like your twin. :blink: I remember you doing the same kinds of things, always doubting the gluten problem was real. How long did it take you to face reality?

And for that matter, you yourself are still posting in the pre-diagnosis forum, as if you were still not sure. Sheesh!!!!!!!!!!!!!!!!! :P

Lisa Mentor

OOOPS, maybe that will make a believer out of him, finally. :(

CMCM Rising Star

A clear case of "DENIAL" goes on with most of us. Yeah, we all go through it to some extent. I spent nearly a year going back and forth, denying the extent of the problem. I guess one finally gets to the point where you say "OK, I give up...I get it." ;)

JerryK Community Regular
And for that matter, you yourself are still posting in the pre-diagnosis forum, as if you were still not sure. Sheesh!!!!!!!!!!!!!!!!! :P

And where would you have me post... :lol:

There are so many forum's here and I'm resistant to change.

It feels funny posting in the "Celiac Disease" forums, cause you know, I just don't have an

official diagnosis.

Maybe there should be a "Gluten Purgatory" forum for guys like me:)

darlindeb25 Collaborator

Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

JerryK Community Regular
Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

Funny, my wife tried to kiss me the other night with garlic bread crumbs all over her lips.

I brushed them off:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
And where would you have me post... :lol:

There are so many forum's here and I'm resistant to change.

It feels funny posting in the "Celiac Disease" forums, cause you know, I just don't have an

official diagnosis.

Maybe there should be a "Gluten Purgatory" forum for guys like me:)

Try the 'Celiac Disease - Coping with' or the 'Celiac Disease - Post Diagnosis, Recovery/Treatment(s) ' forums! I think you certainly are 'entitled' to posting in those. ;):ph34r:

JerryK Community Regular
Try the 'Celiac Disease - Coping with' or the 'Celiac Disease - Post Diagnosis, Recovery/Treatment(s) ' forums! I think you certainly are 'entitled' to posting in those. ;):ph34r:

There should be a Gluten Intolerance Limbo forum.... :lol:

I keep waiting for my test results....logging into my e-mail account at my HMO

hoping to see them...

Waiting is killing me...

jerseyangel Proficient
Funny, my wife tried to kiss me the other night with garlic bread crumbs all over her lips.

I brushed them off:)

:lol: Well, that clinches it!!!!

Canadian Karen Community Regular
There should be a Gluten Intolerance Limbo forum.... :lol:

I keep waiting for my test results....logging into my e-mail account at my HMO

hoping to see them...

Waiting is killing me...

Most of us would frown on that since we have always made an effort to clarify that we don't give a rat's behind whether or not you heard those words from a doctor's lips or not, we are all in this together! We don't discrimate! LOL!

Karen

Christy-Latchford Rookie

It's funny reading what you said about your brother's denial, it sounds all to familiar. I am currently awaiting the diagnosis that I feel is inevitable, but still like to try and "defy the odds". For instance last night I ate fries and a bagette sandwich for supper, and have barly left the bathroom since, but yet I still want to tell myself "maybe I have a virus or something", even though I clearly know what is going on. :huh: Denial is a funny thing..... :rolleyes:

JerryK Community Regular
Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

Now the goober e-mails me and says..."I been on the toydee all morning".

I asked him if he believed and told him to "repent sinner". I figured it out the same way.

jerseyangel Proficient

:lol: You said 'goober' :lol:

But seriously, remember when you needed to see for yourself? This is what he's going through right now. ;)

JerryK Community Regular
:lol: You said 'goober' :lol:

But seriously, remember when you needed to see for yourself? This is what he's going through right now. ;)

Yes and watching him do exactly the same thing I did is cracking me up :lol: This will go on for weeks :rolleyes:

jerseyangel Proficient
Yes and watching him do exactly the same thing I did is cracking me up :lol: This will go on for weeks :rolleyes:

Yea--it'll be like watching a movie where you already know the ending :D

chocolatelover Contributor

Jerry, I'm right there with ya--still waiting for that biopsy result. Every time my phone rings I pick it up thinking it will be them. It's killing me!

I also just did what your brother did--had lots of gluten for lunch thinking "Oh, it's probably all my imagination anyway--I'm really not gluten intolerant". I guess we'll see later today, won't we?

Perhaps your brother will now see it for what it really is...has he been tested yet?

JerryK Community Regular
Jerry, I'm right there with ya--still waiting for that biopsy result. Every time my phone rings I pick it up thinking it will be them. It's killing me!

I also just did what your brother did--had lots of gluten for lunch thinking "Oh, it's probably all my imagination anyway--I'm really not gluten intolerant". I guess we'll see later today, won't we?

Perhaps your brother will now see it for what it really is...has he been tested yet?

No, he hasn't been tested...he's figuring since he's my identical twin, the gene and blood tests will

apply for both of us. I know supposedly there's only a 70% chance that an identical twin has it,

but get real...if I have it he does.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,736
    • Most Online (within 30 mins)
      7,748

    Weather
    Newest Member
    Weather
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MommaBear82
      I just wanted to point out that the QUANTITY of exposure to eggs in baked goods would naturally be much less than if you were to eat a whole egg. I think that's why they appear to be tolerated in baked goods, but not as a stand-alone food. 
    • trents
      I would agree. The tests do not indicate you have celiac disease. So, if you are convinced that when you eliminate gluten from your diet your symptoms improve, I would conclude you have NCGS.
    • Jack Common
      My old results are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests as RMJ had suggested to do. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   As trents suggested I ate 6 slices of wheat bread before the tests during the challenge. My results: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   As I can understand I don't have celiac disease.
    • trents
      So it sounds like Global Foods has adopted the FDA standard for "gluten free" advertising.
    • cvernon
      Agreed, I am disappointed in the recent GFCO findings as well and definitely don't hold them in as high of a regard as I used to. I did find on the Global Foods website after posting that their required ppm limit is 20ppm, which isn't as low as I had hoped. I'll email and report back. Thx.
×
×
  • Create New...