Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Idea For A New Website-


GeoffCJ

Recommended Posts

GeoffCJ Enthusiast

I had an idea for a new website. I love eating out, and it's so tough to do now. I also travel a lot.

I had an idea that would combine some of the features of this forum (not celiac.com, but the restaurant forum) and do a google mashup for mapping.

Key Features:

Users can add restaurants

Users can rate restaurants on a variety of things, including gluten-free choices, knowledge, etc.

You could make your review for a single location, or for a chain.

The reviews would link straight to gluten-free menus (if available)

Other food allergy information could be included too.

Information would be dated, so you could tell easily how recent a review had been updated.

All information could be added by a user with a simple web form.

Those restaurants would all be mapped on a google map, so it'd be searchable, especially by location. So if you're in an area, you can enter the address and see restaurants and their reviews, and how far away it is. Essentially the same as google maps does now, but customized with gluten free info.

Questions for you guys:

If such a page existed, how likely would you be to use it?

How likely would you be to contribute information?

Have you seen anything like this elsewhere?

I have the skills to build such a site, and hosting it would be relatively inexpensive, enough that hopefully a small amount of advertising could support it. I just would like to know if something like that would be useful before I build it.

Thanks,

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast

My experience is it is incredibly difficult to get users to give input....

Once your site is a reality to can't mention it here anymore (see rules) ... which leaves you trying to build up regular users and most people seem to prefer to just ask questions here or other established sites....

IMHO its a shame because a decent rating system could be put in place, peoples experiences etc. and this is much better when you have feet on the ground...

In most few instances people will take the information, thank you profusely and never contribute a single word or click.

In many cases I then found they would write up trips places like here so then you can't even use what they have said because of copyright... so they take your resto list, put it on here and then you can't even use the review they write...

You will need a lot of energy to get this rolling.... IMHO

I am quickly getting to the point where I can't be bothered anymore, I have probably over 1000 emails saying how useful the site is and perhaps 10 comments people added through a webform. I have to deal with the SPAM and occaisional DDOS attacks etc. and noone thinks its even worth 5 minutes of their time to make a post or write a small review?

My web comment form is used more often for SPAM than it is for its intended purpose.. the forum had attacks from fundamentalist Christians telling my users they should repent and seek forgivness and that celiac is a punishment from God.

I doubt I would do this again...

Nantzie Collaborator

I think that's a WONDERFUL idea!! Especially the part where the user could add a restaurant or tourist location right then and there.

I've seen a few sites that are trying, but it's usually very limited and not very useful on a large scale. A good example of this is Open Original Shared Link . If you pull down the drop-down box for the state, you'll see that there are only 11 states to choose from. Every other gluten-free restaurants or travel site I've seen has similar limitations.

The town I'm moving to (Folsom, CA) actually has an ice cream shop where either the owner or someone in the owner's family has celiac. They have gluten-free cones, know what ice cream flavors are gluten-free and know how to protect against CC.

I also was thinking about gluten-free travel earlier today and came across a place in Italy where a chef with celiac basically opens his home up to you (a bed and breakfast type thing) and cooks for you, tells you where to go do the tourist thing, etc. How amazing would that be to be able to put that information and website on your site to share with other people just because you came across it?

Just being able to see where the nearest Outback or PF Chang is when you're out of town would be really useful as well.

Nancy

dionnek Enthusiast

I think it's a great idea and would definitely use it (and add all my places I eat at - I eat out quite often still and am usually not glutened) :) I don't know anything about the "rules", etc. though, but if you do it I would tell my support groups here in ATL and I"m sure others would use it/contribute.

jayhawkmom Enthusiast

There is something similar already out there:

Open Original Shared Link

Different, yet... same idea, same concept. Not as involved though! =)

Nantzie Collaborator
Once your site is a reality to can't mention it here anymore (see rules) ... which leaves you trying to build up regular users and most people seem to prefer to just ask questions here or other established sites....

Ahh... I knew there was a rule about not advertising of course. I didn't realize that you couldn't mention something. That must be why now Nini can't mention her Newbie Survival Kit, but if you go to her profile there's a link to her website that has it. Other members do refer newbies to her, but that would be within the rules since it's not their site.

Hmmm... I wonder if Scott would approve of a new section of the forum where a person who has a site or whatever would be able to do something like ONE post a month (or even just one post, period) in a specified area advertising their site or business. Any other mention would be subject to the rules already in place.

On other boards I'm on they have this type of thing. It's really common on mom's boards, especially SAHMs (stay-at-home moms) what with the different Pampered Chef and Tupperware -type business everyone is always going in and out of. Sometimes it's even a section where it's read-only (no replies or discussion).

I think that would be a cool thing to have here. I'll have to PM Scott and see what he says.

Nancy

GeoffCJ Enthusiast
The town I'm moving to (Folsom, CA) actually has an ice cream shop where either the owner or someone in the owner's family has celiac. They have gluten-free cones, know what ice cream flavors are gluten-free and know how to protect against CC.

That's exactly the type of info I'd want to capture. I live near Folsom and I didn't even know that!!!

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ginghamkim Apprentice

Wonderful idea!!! I would use it quite often.

ginghamkim Apprentice

Wonderful idea!!! I would use it quite often.

Nantzie Collaborator
That's exactly the type of info I'd want to capture. I live near Folsom and I didn't even know that!!!

Geoff

You're kidding me!!! You're like the third person this week I've found out lives near me.

I'm in Antelope right now. It turns out there is one member here who lives about 1/4 mile from where I live in Antelope, and another member who lives within a couple miles. Too bad I'm moving.

There's also another member in Roseville.

Small world huh?

I was thinking about organizing a gluten-free potluck at some point in the spring/summer, maybe at a park. It would be nice to get some people together.

I found a message board for Folsom and posted a message asking if there were any other people with celiac. I got a reply from a guy whose daughter has celiac. He's the one who told me about the ice cream shop. He also says that the Mimi's and the BJ's in Folsom are really good about accommodating her food restrictions and take it seriously. There is also a chinese restaurant in Folsom at E. Natoma and Blue Ravine that carries a wheat free soy sauce and can make a lot of things gluten-free.

The Elliott's in Folsom also has a good gluten-free section, with a lot of Kinnikinnik stuff (look for the donuts in the freezer section).

I got a PM from someone asking for more information on the B&B in Italy run by someone with celiac. Here's the link for that. Open Original Shared Link

Nancy

bookbabie Apprentice

I would love a site like that. I'm planning a trip to CA in March, driving from San Diego to Napa and stressing a little about doing a road trip. :( Trying to gather info from here and there plus figure out how to pack light but still bring along some gluten-free snacks. I also like the idea of a forum thread that it would be okay for folks with gluten-free sites to promote themselves on.

CMCM Rising Star

Nancy, where in Folsom is that ice cream shop? (I go there occasionally) I'm dying for a cone!

Carole

I think that's a WONDERFUL idea!! Especially the part where the user could add a restaurant or tourist location right then and there.

I've seen a few sites that are trying, but it's usually very limited and not very useful on a large scale. A good example of this is Open Original Shared Link . If you pull down the drop-down box for the state, you'll see that there are only 11 states to choose from. Every other gluten-free restaurants or travel site I've seen has similar limitations.

The town I'm moving to (Folsom, CA) actually has an ice cream shop where either the owner or someone in the owner's family has celiac. They have gluten-free cones, know what ice cream flavors are gluten-free and know how to protect against CC.

I also was thinking about gluten-free travel earlier today and came across a place in Italy where a chef with celiac basically opens his home up to you (a bed and breakfast type thing) and cooks for you, tells you where to go do the tourist thing, etc. How amazing would that be to be able to put that information and website on your site to share with other people just because you came across it?

Just being able to see where the nearest Outback or PF Chang is when you're out of town would be really useful as well.

Nancy

  • 1 year later...
Gibby Newbie

These postings are ove a year old so I hope you're still living in this area. I called the Tasty Time at Blue Ravin in Folsom and they definitely have gluten free ice cream and yogurts and even gluten free cones. My husband was just diagnosed with celiac last September and we're still trying to adjust to it. We haven't tried Tasty Time yet but I'll let you know as soon as we do. With the heat this weekend I'm sure we'll get there soon. :)

Mimi's does offer a gluten free menu and Jennifer the bartender at Black Angus is great at telling us what my husband can or can't eat and checks with the chef if she's not sure (she's going to school to be a nurse)

We travel to the Whole Foods at Arden Way in Sacramento for gluten free food. They have a great selection of Amy's, Glutino frozen foods that are gluten free. The rice crackers by Blue Diamond are very good and they also have frozen sausages, pretzels, beef jerky, and cookies that pass my husband's taste test. And they are cheaper than Elliott's. :) It'll be great when they open the new Whole Foods they're building off of Bidwell in Folsom.

Diane

You're kidding me!!! You're like the third person this week I've found out lives near me.

I'm in Antelope right now. It turns out there is one member here who lives about 1/4 mile from where I live in Antelope, and another member who lives within a couple miles. Too bad I'm moving.

There's also another member in Roseville.

Small world huh?

I was thinking about organizing a gluten-free potluck at some point in the spring/summer, maybe at a park. It would be nice to get some people together.

I found a message board for Folsom and posted a message asking if there were any other people with celiac. I got a reply from a guy whose daughter has celiac. He's the one who told me about the ice cream shop. He also says that the Mimi's and the BJ's in Folsom are really good about accommodating her food restrictions and take it seriously. There is also a chinese restaurant in Folsom at E. Natoma and Blue Ravine that carries a wheat free soy sauce and can make a lot of things gluten-free.

The Elliott's in Folsom also has a good gluten-free section, with a lot of Kinnikinnik stuff (look for the donuts in the freezer section).

I got a PM from someone asking for more information on the B&B in Italy run by someone with celiac. Here's the link for that. Open Original Shared Link

Nancy

  • 2 weeks later...
gf princess Newbie

Hi,

I travel a lot and I stress out being out of my comfort zone. But I try to take it one day at a time. It's definately getting easier.

There are sites like you mentioned.

www.glutenfreerestaurants.org

www.glutenfreeregistry.com

www.glutenfreeceliacweb.com

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    2. - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    3. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    4. - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    5. - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,254
    • Most Online (within 30 mins)
      7,748

    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...