Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Xanax Not gluten-free


bklyn

Recommended Posts

bklyn Enthusiast

I called Phizer Pharmaceuticals to check on the generic brand of Xanax (Alprazolam). The person told me that neither drug is gluten-free. I was shocked because it is listed on glutenfreedrugs.com as gluten-free. Also, I've been taking this drug on occasion.

Any comments?

Thanks

Kathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I called Phizer Pharmaceuticals to check on the generic brand of Xanax (Alprazolam). The person told me that neither drug is gluten-free. I was shocked because it is listed on glutenfreedrugs.com as gluten-free. Also, I've been taking this drug on occasion.

Any comments?

Thanks

Kathy

They may have changed the binders in the drug. They can do this any time they want to. Gluten is pretty common in meds, especially generics. Kind of makes it obvious why almost all drugs say they may cause stomach upset. IMHO no gluten containing components should be in any medication or product designed for the use in any patients.

Guest cassidy

I am very careful about meds and I check them before I take anything. I took generic xanax up until last June and it was definitely gluten-free. I'm very sensitive and I would have had a reaction if it wasn't. I haven't taken it since then, so maybe things changed, but I know it used to be gluten-free.

lovegrov Collaborator

First, did Pfizer say the medication definitely had gluten, or did they say they wouldn't guarantee it? There's a HUGE difference. Every Xanax product I've ever seen or checked has been gluten-free.

Second, I disagree that gluten is common in medications. In five years I've almost NEVER found a medication with gluten. It is in fact fairly common for a company to issue a legal CYA, but that's completely different from a medication definitely containing gluten. Medications cause stomach upset in a huge number of people who do not have cleiac or gluten sensitivity.

If I'm wrong about this, I'd be interested in seeing a list of medications that DEFINITELY have gluten. I can't name even one prescription one right now.

richard

bklyn Enthusiast
First, did Pfizer say the medication definitely had gluten, or did they say they wouldn't guarantee it? There's a HUGE difference. Every Xanax product I've ever seen or checked has been gluten-free.

Second, I disagree that gluten is common in medications. In five years I've almost NEVER found a medication with gluten. It is in fact fairly common for a company to issue a legal CYA, but that's completely different from a medication definitely containing gluten. Medications cause stomach upset in a huge number of people who do not have cleiac or gluten sensitivity.

If I'm wrong about this, I'd be interested in seeing a list of medications that DEFINITELY have gluten. I can't name even one prescription one right now.

richard

bklyn Enthusiast

Lovegrov,

The person I spoke to said "Both the generic and original forms of Xanax were not gluten free". I don't know what to do since they are listed as gluten free on the lists I checked.

Should I continue to take it?

Thanks

Kathy

BRUMI1968 Collaborator

What about valium. Can you get your doc to switch you to it? Is it gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

I thought of something else. Most of the time there is more than one company that manufactures the generic of a drug. I'm a drug rep and one of my products recently went generic. There are now 8 companies making the generic of that drug. Xanax is fairly common and has been around for a long time, so there may be several companies that make the generic. You may have to try another drug store chain because Walgreens may buy from a certain company and Walmart may buy from another company, so if the Pfizer one isn't gluten-free, that doesn't mean that all of them are not.

The easiest thing to do may be to go to a pharmacy and ask to see the stock bottle or it the pharmacist will print out the sheet that comes with the prescription. It has all the fillers on there and you can pick out any words that look like gluten (or bring a list of the common ones used in prescriptions).

You may also want to call Pfizer again and ask the question to someone else. Sometimes I call a place several times and get several different answers, so you could see if anyone else gives you the same answer.

Good luck! Xanax really helped with the anxiety I get when I'm glutened so I hope there is still an gluten-free version out there because I may need it in the future.

ravenwoodglass Mentor
First, did Pfizer say the medication definitely had gluten, or did they say they wouldn't guarantee it? There's a HUGE difference. Every Xanax product I've ever seen or checked has been gluten-free.

Second, I disagree that gluten is common in medications. In five years I've almost NEVER found a medication with gluten. It is in fact fairly common for a company to issue a legal CYA, but that's completely different from a medication definitely containing gluten. Medications cause stomach upset in a huge number of people who do not have cleiac or gluten sensitivity.

If I'm wrong about this, I'd be interested in seeing a list of medications that DEFINITELY have gluten. I can't name even one prescription one right now.

richard

I have had more than one script that my pharmacist has had to call my doctor and change because it wasn't safe. The most recent was Triazolan, my dentist was going to use it for sedation, there is no gluten-free form of this so Dr. substituted with name brand Valium, the generic form of the valium was again not safe. I have also had experience before diagnosis with a generic seizure drug (valporic acid) that caused severe symptoms when the name brand didn't because of the binders. This sort of misinformation can leave people suffering with side effects they don't need to suffer with because they 'assume' the drug has to be safe when another form would be. CYA statements would not be needed if there was no chance that items were not gluten-free, the companies would just say yes they are.

lovegrov Collaborator

"CYA statements would not be needed if there was no chance that items were not gluten-free, the companies would just say yes they are."

In a perfect world you'd be right, but this isn't a perfect world. Pharmaceutical companies get sued so much that many won't guarantee anybody anything at all. And the stark reality is that almost NO company of any kind can really absolutely 100 percent guarantee there's no chance at all of accidental contamination.

Just my opinion, but if a drug company tells me that a medication is formulated not to contain gluten, but that they won't guarantee that a vendor won't mess up and mistakenly allow gluten (this what almost all the CYAs say), I'll take the medication without hesitation. IMO that medication is MUCH, MUCH less likely to be contaminated than most commercially prepared foods and virtually any restaurant food.

In more than 5 years I've run into very, very few prescription drugs that were formulated to actually have gluten. In one case it was actually CORN gluten and in another the company quickly reformulated to remove the gluten. I have, however, run into many CYAs. And if I've ever been glutened by one of those CYA medications, I'm unaware of it.

richard

lovegrov Collaborator
Lovegrov,

The person I spoke to said "Both the generic and original forms of Xanax were not gluten free". I don't know what to do since they are listed as gluten free on the lists I checked.

Should I continue to take it?

Thanks

Kathy

If the company rep told you that both definitely have gluten, I would not take them. But I would also call back and double check. Note carefully exactly what the rep says. I'd be interested to know exactly where the gluten is. The binders in Xanax are cellulose and corn starch, both of which are gluten-free.

richard

ebrbetty Rising Star

I take it in small does everyday, this really upsets me, I need the Xanax for my anxiety, guess I have to take it anyway :( can't go wothout

ravenwoodglass Mentor
I take it in small does everyday, this really upsets me, I need the Xanax for my anxiety, guess I have to take it anyway :( can't go wothout

Is there any way you could switch to something that is gluten-free? If this med does have gluten it could be contributing to the anxiety. You could be creating a cycle where you are taking the med to relieve symptoms that are then being brought back by the reaction to the binders in the med itself. You may want to get the info that comes with it and call the company yourself to check to check the gluten statis and perhaps ask your pharmacist and doctor about alternatives.

ebrbetty Rising Star

hi, I just called them, it does have gluten in it. my Drs office has no idea which anti anxiety meds are gluten-free..does anyone know what I could take as a replacement?

lovegrov Collaborator

Zoloft is gluten-free. For something that works more quickly, Ativan.

richard

ebrbetty Rising Star
Zoloft is gluten-free.

richard

Hi Richard,

Is that a anti-anxiety? I thought it was a depression med?

lovegrov Collaborator

Zoloft is anti-depression but also ani-anxiety. However, I realize now you probably want something more like Ativan. Generic is lorazepam.

richard

ebrbetty Rising Star

hi again richard, thanks for trying to help me..I can't take SSRI'S..allergic to all of them. I will look in Ativan

lovegrov Collaborator

First let me be clear -- becauase of Pfizer's response, nobody should take Xanax.

I called and eventually talked to as pharmacist, who told me Xanax has gluten, which "COULD" include wheat, rye or barley. I asked which ingredient contains the gluten and she couldn't tell me. I asked if perhaps the gluten warning was referring to the corn starch. She couldn't tell me but allowed as that could be the case.

My guess is that one day we'll hear that Xanax is indeed gluten-free because the gluten was corn gluten, but for now we'll have to avoid it.

richard.

ebrbetty Rising Star

I'm not going to take it, not worth it. I have been having stomach aches everyday even though I've been eating gluten-free for a little over a year.

going to call my Dr and see about getting Ativan, it seems to be gluten-free from what I found on google

thank you again

gfp Enthusiast
Is there any way you could switch to something that is gluten-free? If this med does have gluten it could be contributing to the anxiety. You could be creating a cycle where you are taking the med to relieve symptoms that are then being brought back by the reaction to the binders in the med itself. You may want to get the info that comes with it and call the company yourself to check to check the gluten statis and perhaps ask your pharmacist and doctor about alternatives.

= definition of addictive drug....

(regardless of the gluten in our case)

As I remember and Im in no state to do research ATM Xanax can't be stopped but has to be switched for a less addictive psychotropic and gradually weaned off... if you are on it long term.

Again this is my memory but I think it was xanax which was just banned in Europe last year for under 18's... due to the increased suicide risk which is sky high .. even compared to not having any moderator at all.

Erm... anyway... I wouldn't just stop and I expect their are gluten-free alternatives...

just seen Richards Reply and again from memory but Zoloft is I think one of the medications used to wen people off Xanax.

ravenwoodglass Mentor
I'm not going to take it, not worth it. I have been having stomach aches everyday even though I've been eating gluten-free for a little over a year.

going to call my Dr and see about getting Ativan, it seems to be gluten-free from what I found on google

thank you again

As GFB said, and this can not be stressed enough for folks on this type of drug, do not stop this suddenly on your own. Your doctor can prescribe something else and then perhaps you can try weaning off of them. You may find that without the daily gluten in the Xantax you don't need an antianxiety med any more. No certainty of corse but you never know.

I was on a number of drugs including muscle relaxers, anticholoragenics and antianxiety prediagnosis, I knew that the drugs I was taking could mask symptoms during the elimination diet (allergist assisted) and in the weeks preceding the diet my doctor aided me in weaning off everything. I knew how much pain I was in for doing this but I felt it needed to be done. To make a long story short I have never had to add anything back stonger than a baby asprin. It did turn out that the form of immodium I took multiple times in a day had gluten. I would have never known the elimination diet worked it I had kept taking it.

gfp Enthusiast
As GFB said, and this can not be stressed enough for folks on this type of drug, do not stop this suddenly on your own. Your doctor can prescribe something else and then perhaps you can try weaning off of them. You may find that without the daily gluten in the Xantax you don't need an antianxiety med any more. No certainty of corse but you never know.

I was on a number of drugs including muscle relaxers, anticholoragenics and antianxiety prediagnosis, I knew that the drugs I was taking could mask symptoms during the elimination diet (allergist assisted) and in the weeks preceding the diet my doctor aided me in weaning off everything. I knew how much pain I was in for doing this but I felt it needed to be done. To make a long story short I have never had to add anything back stonger than a baby asprin. It did turn out that the form of immodium I took multiple times in a day had gluten. I would have never known the elimination diet worked it I had kept taking it.

Yep, much better put than me.... (hardly suprising right now)...

But please.... don't just stop Xanax... its a dangerous drug while your taking it but much more dangerous if you just stop....

Given you went on this due to medical advice I would seek medical advice abut coming off.

I VERY VERY rarely tell anyone to keep taking gluten... even for biopsy etc. BUT this is not any occaision. It really is very dangerous to just stop ...

StrongerToday Enthusiast

I take a generic for Xanax called alprazolam made by Mylan. I just called them and they tell me that they put no gluten in ANY drugs they make. I did get the typical CYA about the ingredients they get from others, but they do not use it as a binder. They only use corn or potato products.

So, sounds simple to me... get the generic made by Myland, save money and still be gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.