Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, Long Time Diagnosed Depression

sherylj

Recommended Posts

sherylj Rookie
sherylj
Posted

hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi Sheryl:

Welcome. You found the perfect place. You will learn more here than anywhere else.

I would not to tamper with you meds until you see improvement from a gluten free diet, and then, I would suggest discussing this with your doctor (or new one that understands Celiac!). Going off anti's can cause some pretty rough reactions.

You might not want to eat out for a while. Taco Bell has very little gluten free items and if I recall correctly, their shells are not gluten free (I need to check on that).

Gluten can hide everywhere...your shampoo, lotions, lipsticks, soy sauce...

You are smart to keep your initial diet simple. Meats, Seafood, Veggies, Rice, Potatoes. Oatmeal is not considered safe, as to cross contamination. Limit your seasonings to salt and pepper for a while until you inside heal a little. They you can gradually add new things to your diet. By then you will be a pro at reading labels.

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

ravenwoodglass Mentor
ravenwoodglass
Posted
hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl

The most important thing you need to do about your meds is get ahold of your pharmacy and check and make sure they are gluten-free. Then make sure if you want to get off of them that you do it under your doctors direction.

I suffered from depression for over 30 years. I have been med free, literally all I have taken is asprin since I went gluten free.

The only time I get depressed now is if I get glutened. I hope you find the same hold true for you. It is like being a different, calm and pain free person.

celiacgirls Apprentice
celiacgirls
Posted

I've been on the diet for about 10 months now. I was taking an a/d for about 18 months before that. I could tell in 2 days that I didn't need my a/d any more. I felt giddy, not in a good way. I tapered off pretty quickly with no bad side effects. I did get a little dizziness when I tried to do it too fast.

My daughter is also on an a/d. She has been tapering off but is only down to 1/2 the dose after 10 months. She was on a higher dose than me to begin with and I think she keeps getting into gluten and casein by mistake (or not). She is not as strict as I am with her diet. There is a definite difference in her mood when she has been glutened and it has happened often enough that we've been unable to pick a good time to reduce her dose again. She is a different kid since she has started the diet, though, even with the mistakes made.

For me, the only time I feel that way now is when I get glutened. I am very strict because I don't want that depression to come back. It only takes a tiny amount of cc and the bad mood lasts for more than 2 weeks. It has always been at a restaurant so I avoid them when I can.

So it's very possible you will be able to reduce or eliminate your meds but I agree that I wouldn't do it without seeing the benefit from the diet or new problems with your current medicine. And of course, consult with your doctor about tapering off.

sherylj Rookie
sherylj
Posted
  • Author

[

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,199
    • Most Online (within 30 mins)
      7,748
    Joe Schmie
    Newest Member
    Joe Schmie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Gluten free parakeet food

      By AllyJR · Posted

      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      New to gluten free living, in5ro and small question

      By boy-wonder · Posted

      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Guide to colleges for celiac disease

      By ValerieC · Posted

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...