Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, Long Time Diagnosed Depression


sherylj

Recommended Posts

sherylj Rookie

hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Sheryl:

Welcome. You found the perfect place. You will learn more here than anywhere else.

I would not to tamper with you meds until you see improvement from a gluten free diet, and then, I would suggest discussing this with your doctor (or new one that understands Celiac!). Going off anti's can cause some pretty rough reactions.

You might not want to eat out for a while. Taco Bell has very little gluten free items and if I recall correctly, their shells are not gluten free (I need to check on that).

Gluten can hide everywhere...your shampoo, lotions, lipsticks, soy sauce...

You are smart to keep your initial diet simple. Meats, Seafood, Veggies, Rice, Potatoes. Oatmeal is not considered safe, as to cross contamination. Limit your seasonings to salt and pepper for a while until you inside heal a little. They you can gradually add new things to your diet. By then you will be a pro at reading labels.

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

ravenwoodglass Mentor
hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl

The most important thing you need to do about your meds is get ahold of your pharmacy and check and make sure they are gluten-free. Then make sure if you want to get off of them that you do it under your doctors direction.

I suffered from depression for over 30 years. I have been med free, literally all I have taken is asprin since I went gluten free.

The only time I get depressed now is if I get glutened. I hope you find the same hold true for you. It is like being a different, calm and pain free person.

celiacgirls Apprentice

I've been on the diet for about 10 months now. I was taking an a/d for about 18 months before that. I could tell in 2 days that I didn't need my a/d any more. I felt giddy, not in a good way. I tapered off pretty quickly with no bad side effects. I did get a little dizziness when I tried to do it too fast.

My daughter is also on an a/d. She has been tapering off but is only down to 1/2 the dose after 10 months. She was on a higher dose than me to begin with and I think she keeps getting into gluten and casein by mistake (or not). She is not as strict as I am with her diet. There is a definite difference in her mood when she has been glutened and it has happened often enough that we've been unable to pick a good time to reduce her dose again. She is a different kid since she has started the diet, though, even with the mistakes made.

For me, the only time I feel that way now is when I get glutened. I am very strict because I don't want that depression to come back. It only takes a tiny amount of cc and the bad mood lasts for more than 2 weeks. It has always been at a restaurant so I avoid them when I can.

So it's very possible you will be able to reduce or eliminate your meds but I agree that I wouldn't do it without seeing the benefit from the diet or new problems with your current medicine. And of course, consult with your doctor about tapering off.

sherylj Rookie

[

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    2. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    4. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,668
    • Most Online (within 30 mins)
      7,748

    Hope Durbin
    Newest Member
    Hope Durbin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.