Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, Long Time Diagnosed Depression


sherylj

Recommended Posts

sherylj Rookie

hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Sheryl:

Welcome. You found the perfect place. You will learn more here than anywhere else.

I would not to tamper with you meds until you see improvement from a gluten free diet, and then, I would suggest discussing this with your doctor (or new one that understands Celiac!). Going off anti's can cause some pretty rough reactions.

You might not want to eat out for a while. Taco Bell has very little gluten free items and if I recall correctly, their shells are not gluten free (I need to check on that).

Gluten can hide everywhere...your shampoo, lotions, lipsticks, soy sauce...

You are smart to keep your initial diet simple. Meats, Seafood, Veggies, Rice, Potatoes. Oatmeal is not considered safe, as to cross contamination. Limit your seasonings to salt and pepper for a while until you inside heal a little. They you can gradually add new things to your diet. By then you will be a pro at reading labels.

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

ravenwoodglass Mentor
hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl

The most important thing you need to do about your meds is get ahold of your pharmacy and check and make sure they are gluten-free. Then make sure if you want to get off of them that you do it under your doctors direction.

I suffered from depression for over 30 years. I have been med free, literally all I have taken is asprin since I went gluten free.

The only time I get depressed now is if I get glutened. I hope you find the same hold true for you. It is like being a different, calm and pain free person.

celiacgirls Apprentice

I've been on the diet for about 10 months now. I was taking an a/d for about 18 months before that. I could tell in 2 days that I didn't need my a/d any more. I felt giddy, not in a good way. I tapered off pretty quickly with no bad side effects. I did get a little dizziness when I tried to do it too fast.

My daughter is also on an a/d. She has been tapering off but is only down to 1/2 the dose after 10 months. She was on a higher dose than me to begin with and I think she keeps getting into gluten and casein by mistake (or not). She is not as strict as I am with her diet. There is a definite difference in her mood when she has been glutened and it has happened often enough that we've been unable to pick a good time to reduce her dose again. She is a different kid since she has started the diet, though, even with the mistakes made.

For me, the only time I feel that way now is when I get glutened. I am very strict because I don't want that depression to come back. It only takes a tiny amount of cc and the bad mood lasts for more than 2 weeks. It has always been at a restaurant so I avoid them when I can.

So it's very possible you will be able to reduce or eliminate your meds but I agree that I wouldn't do it without seeing the benefit from the diet or new problems with your current medicine. And of course, consult with your doctor about tapering off.

sherylj Rookie

[

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.