Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, Long Time Diagnosed Depression


sherylj

Recommended Posts

sherylj Rookie

hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Sheryl:

Welcome. You found the perfect place. You will learn more here than anywhere else.

I would not to tamper with you meds until you see improvement from a gluten free diet, and then, I would suggest discussing this with your doctor (or new one that understands Celiac!). Going off anti's can cause some pretty rough reactions.

You might not want to eat out for a while. Taco Bell has very little gluten free items and if I recall correctly, their shells are not gluten free (I need to check on that).

Gluten can hide everywhere...your shampoo, lotions, lipsticks, soy sauce...

You are smart to keep your initial diet simple. Meats, Seafood, Veggies, Rice, Potatoes. Oatmeal is not considered safe, as to cross contamination. Limit your seasonings to salt and pepper for a while until you inside heal a little. They you can gradually add new things to your diet. By then you will be a pro at reading labels.

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

ravenwoodglass Mentor
hi all!

I am totally new to posting boards and am newly diagnosed celiac. I suspected celiac for 10 years (my father was diagnosed) but my dr was not willing to do testing!!! I wish I had been more assertive!!! Finally after being hospitalized with severe stomach/intestinal pain he finally agreed to biopsy of small intestine.

My question: I have been diagnosed major/chronic depression for 10 years and bipolar type 2 for the last 2 years. I take a variety of meds. Does anyone have an opinion about easing off the medications?Ha,,that is of course if I can pick up on the gluten free diet!!!!!!!! So far I'm reading labels,,and eating meat, veg and fruit. oh, I want Taco Bell tonight,,are the taco's gluten-free?? Hopefully the shell is cornmeal.

I am so irritable and anxious now,,,is this adapting to new diet,,,?? I guess I will make lots of mistakes. I am hoping the sunshine begins to penetrate the cloud of depression as I cleanse the gluten from my system.

Replies and suggestions welcome! Sheryl

The most important thing you need to do about your meds is get ahold of your pharmacy and check and make sure they are gluten-free. Then make sure if you want to get off of them that you do it under your doctors direction.

I suffered from depression for over 30 years. I have been med free, literally all I have taken is asprin since I went gluten free.

The only time I get depressed now is if I get glutened. I hope you find the same hold true for you. It is like being a different, calm and pain free person.

celiacgirls Apprentice

I've been on the diet for about 10 months now. I was taking an a/d for about 18 months before that. I could tell in 2 days that I didn't need my a/d any more. I felt giddy, not in a good way. I tapered off pretty quickly with no bad side effects. I did get a little dizziness when I tried to do it too fast.

My daughter is also on an a/d. She has been tapering off but is only down to 1/2 the dose after 10 months. She was on a higher dose than me to begin with and I think she keeps getting into gluten and casein by mistake (or not). She is not as strict as I am with her diet. There is a definite difference in her mood when she has been glutened and it has happened often enough that we've been unable to pick a good time to reduce her dose again. She is a different kid since she has started the diet, though, even with the mistakes made.

For me, the only time I feel that way now is when I get glutened. I am very strict because I don't want that depression to come back. It only takes a tiny amount of cc and the bad mood lasts for more than 2 weeks. It has always been at a restaurant so I avoid them when I can.

So it's very possible you will be able to reduce or eliminate your meds but I agree that I wouldn't do it without seeing the benefit from the diet or new problems with your current medicine. And of course, consult with your doctor about tapering off.

sherylj Rookie

[

Dairy is frequently difficult to digest in the beginning (lactose is absorbed on the tips of the villi - which get burned off from Celiac - Nancy taught me that).

Again welcome to our world and the rule here is that "there are no stupid duestions", always feel free to ask when in doubt or just share something.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Doctors
      10

      Second chance

    2. - knitty kitty replied to Jmartes71's topic in Doctors
      10

      Second chance

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,673
    • Most Online (within 30 mins)
      7,748

    Troy Howald
    Newest Member
    Troy Howald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Not yet, been waisting time on western doctors. I went yesterday to my pcp thought we were on same page, I gave him the downplayed confirmed celiac medical note from bay area. As a patient I shouldn't have to Chase my medical, my medical SHOULD stick to us.Im am so exhausted and angery how medical has been, my whole way of thinking of our system is completely changed.i wish I can upload my letter from KB 
    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.