Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What A Crappy Day

johnsoniu

By johnsoniu
in Coping with Celiac Disease

Recommended Posts

johnsoniu Apprentice
johnsoniu
Posted

10 days into being gluten free and things were going well. Felt much better and actually enjoyed being in the kitchen again. Then yesterday afternnon, wham! Worst cramping and bloating since December, and eventually D all night. Didn't eat anything yesterday that I hadn't already had earler in the diet, think I got CC'd from an old plastic bowl at work I used to heat up some leftovers for lunch. I used to use it for Campbell's Chunky Soup, which would trigger the exact same reactions.

Anyhow, feeling a little better this morning and the toast and banana seem to be sitting all right so far, 3 hours now.

Then the doctor called a half hour ago. We had our two daughters tested Monday. 14 year old came back negative(yeaaa!) but the 9 year old tested positive. He's sending her to Riley's Children Hospital in Indianapolis for further testing and confirmations. Rats. She's 9 and lives for cereal and Mac & Cheese. Although this does bring her recent troubles with ADHD and migraines into proper focus.

Thanks all, venting over. Now on to see if I can start gaining some of the weight back some of the weight I lost last night that I had worked so hard this week to gain( weight loss is a major issue with me, by the time I was finally diagnosed my malabsorption had turned to non-absorption, my magnesium,potassium,calcium, albumin, sodium, and chloride levels had all dropped to critical levels and had to be hospitalized and hooked up to IV's and a heart monitor).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Luckily your little one will still be able to have mac n' cheese and cereal... Cocoa Pebbles and Fruity Pebbles are both gluten free as well as Disney's Little Einsntein's, Mickey Mouse Clubhouse, and Dora's Cinnamon Stars. They are all readily found in mainstream grocery stores. Tinkyada pasta and Kraft orange cheese powder in a shaker (or Velveeta) make a mean mac n' cheese! You can make the mac n' cheese in bulk and then freeze it so that it's easy to heat up for lunches or snacks. She will adjust to the gluten free diet just as you are. And, it will make her life so much easier once her symptoms resolve she will likely not even look back. Plus, you are saving her (by putting her on the gluten free diet) from a lifetime of mysterious ailments, aches and pains, etc. This really is a positive thing. It may be easiest to make your entire household gluten free now that two of you have tested positive. This way you (or whoever cooks) won't feel the need to make two seperate meals for the family. Plus, making the house gluten free will cut down on temptation and contamination sources.

johnsoniu Apprentice
johnsoniu
Posted
  • Author
Luckily your little one will still be able to have mac n' cheese and cereal... Cocoa Pebbles and Fruity Pebbles are both gluten free

Fruity Peebles are gluten free!!!??? Darling, you just made MY day. My cereal was thing hardest thing for me to give up. :P

As for this all being for my daughters best in the long run, oh absolutely! As I said earlier, this will help so much with the ailments(symptoms?) that have plagued her the last year.

kbtoyssni Contributor
kbtoyssni
Posted

I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

cajun celiac Rookie
cajun celiac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

WHAT A GREAT IDEA!!! I'm going to do that tomorrow! You are a genius!

bremac Apprentice
bremac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

Seriously????!!!!! That is such a good idea!!!!

johnsoniu Apprentice
johnsoniu
Posted
  • Author
WHAT A GREAT IDEA!!! I'm going to do that tomorrow! You are a genius!

Tomorrow nothing! A friend of mine gave me a box of Glutino brown rice elbow macaroni at church tonight, said they were the best she's found. Saw kbtoyssni post about the kfraft idea and raced off to the kitchen. Just finishing off my second helping.

KB, you're an angel and a genius!!! Thank you bunches

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


babygirl1234 Rookie
babygirl1234
Posted

my day was crappy, stomach pains, feeling blah tired of taking pills all i want to do is feel better how long does it take for your celiac disease to get under contol ?

larry mac Enthusiast
larry mac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

kb,

There is something about boxed mac & cheese; I'm with you there. My daughters (now that they're grown) like the fancy schmancy deluxe with the squeese cheese. Sorry, no can do. Too mild; not near enough good old fashioned kraft mac & cheese flavor. I'm supposed to pay extra for less flavor? I don't think so. You don't mess with a good thing.

You try to bring your kids up the best you know how, and this is how they repay you?

BTW, I like to condense everyone's user name down to as small an abbreviation as possible, yet incorporate all syllables or parts. Your ruining my evil plan. What's up with that name?

yours truly, stumped in wylie

lm

Canadian Karen Community Regular
Canadian Karen
Posted
Tomorrow nothing! A friend of mine gave me a box of Glutino brown rice elbow macaroni at church tonight, said they were the best she's found. Saw kbtoyssni post about the kfraft idea and raced off to the kitchen. Just finishing off my second helping.

KB, you're an angel and a genius!!! Thank you bunches

There are even some stores where you can buy the Kraft cheese packets in a box by themselves, without the noodles...... Kids never know the difference! LOL!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,092
    • Most Online (within 30 mins)
      7,748
    Sujuschneider
    Newest Member
    Sujuschneider
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Delayed reaction

      By trents · Posted

      Welcome to the forum, @RDB7918393! For some folks, gluten reactions are delayed but I would not think symptoms delayed  of a week or more out would be due to a gluten reaction. Twenty four hours or so but not 7-14 days. I would suspect something else is going on. Eating out is well-known to be the number one sabotaging activity of the gluten-free life style. 
    • RDB7918393
      Delayed reaction

      By RDB7918393 · Posted

      I was diagnosed with Celiac about 10 months ago after having on and off morning stomach cramping and loose stool that only occurred like once a month. So I don’t get immediate reactions…more if build up reactions. I do my best to be gluten free but hard when on vacation and going to restaurants to fully trust cross contamination problems. I find that if I’m cross contaminated, I don’t get a reaction til about a week or two after. The reaction is stomach cramping morning only with flaky stool. Does anyone else have such a delayed reaction like a week or two after being glutened? Or should I go for more testing to see what’s going on.
    • ElisaAllergiesgluten
      Polly-O all cheese products are gluten free?

      By ElisaAllergiesgluten · Posted

      Good morning, I saw that a lot of people were asking wether Polly-O products are gluten free. I just called them and all their cheeses are gluten free! Just wanted to let anyone know.    if you still want you can give them a call.
    • Sicilygirl
      Enegy level extremely low

      By Sicilygirl · Posted

      Thank you very much Scott I am glad that there is a light at the end of this tunnel. I am just very impatient and I want to heal asap. I apreciate your honesty in this isnce I am getting absolutely knowhere with the medical system. A year or more? God help me this is hard. But, I am so grateful that I found a site like your that can help me and put my mind at ease in all of this. An you started this and you are ghelping alot of us get through this little by little. I thank you for starting this. Is there a cure coming that you know of? I am in Canada and there is nothing here.   Sophia    
    • Scott Adams
      Rice, corn, and other gluten-free grains.

      By Scott Adams · Posted

      Your approach is spot-on—trusting reliable sources like Mayo Clinic and sticking to a gluten-free diet that works for you is the best way to navigate all the noise out there. The claim that rice and corn contain forms of gluten harmful to celiacs is indeed a misconception. While these grains do contain proteins that may technically be referred to as "glutens" in a broader scientific sense, they are structurally and functionally different from the gliadin found in wheat, which is the specific protein harmful to those with celiac disease. Scientific research overwhelmingly supports the safety of non-contaminated rice and corn for celiacs unless there’s a separate sensitivity or allergy involved. Some opinion pieces or alternative health sources may blur the lines by conflating these proteins, which can cause unnecessary worry. You're absolutely correct to focus on the distinction between scientifically validated information and anecdotal claims. It's also important to note that some people with celiac disease may develop sensitivities to other grains over time, but this is individual and not a universal rule. If you’re asymptomatic and thriving on a diet that includes certified gluten-free products with rice and corn, there’s no reason to change what’s clearly working for you. The internet is a breeding ground for well-meaning but misguided advice, and it’s easy to feel overwhelmed. Your instinct to validate claims through reliable research is exactly the right way to go. Keep enjoying your gluten-free meals, stick with trusted certifications, and don’t feel pressured to adopt restrictive diets that aren’t backed by science or tailored to your specific needs. Happy New Year to you too!
×
×
  • Create New...