Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will An Allergy Specialist Do? Or Do I Need A Ped Gi?

buttonburger

By buttonburger
in Doctors

Recommended Posts

buttonburger Rookie
buttonburger
Posted

Hi All

I ask because my youngest DS is currently under the care of an Allergy Consultant due to multiple food allergies.

He's currently on a dairy/wheat/gluten/soy/nut/egg/fish free diet (with a few oter exclusions thrown in there for good measure!) but until I discovered this site I was unaware of the risk of CC or the fact that Rice Krsipies (recommended by one of the allergy nurses :angry: ) contain gluten.

Having recently discovered that I'm allergic to wheat & dairy myself, and having monitored my older son & his poor weight gain/moodiness/sore tummy/headaches & floating poo (sorry for tmi!! :lol: ) I'm now strongly suspicious of celiac disease and am trying to prepare my speech for the Allergy specialist when we see him on Friday - we see him about every 6-8wks currently. I would like him to assess DS1 who has dropped from the 50th to the 9th centile in 12months but I want to get my argument right.

Will he know enough about celiac disease to rule it out or confirm it - in all 3 of us if need be? or should I insist on see a ped GI for the kids who tbh I'd prefer to have a diagnosis for so that I can get bread etc on prescription & get the eldest boys school to take the issue of glutening seriously...

All help appreciated

Julie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

when our allergist tested one of our kids for celiac and it came back positive, he wanted to turn her over to a GI. a ped gi is more likely to know more about celiac than the allergist.

powderprincess Rookie
powderprincess
Posted

I took myself to an allergy specialist 3 years ago and saw them often when I was young. They didn't catch the celiac.

The GI will most likely know much more. Good luck and hope your fam feels better soon!

Rice krispies!!! bad! (except ones you make yourself) I think you answered your own question since you were told by someone in the allergy office to have those malty rice krispie things.

when our allergist tested one of our kids for celiac and it came back positive, he wanted to turn her over to a GI. a ped gi is more likely to know more about celiac than the allergist.
happygirl Collaborator
happygirl
Posted

An allergist is generally not the right doctor to see for Celiac.

However, the fact that your child is gluten free anyways....a doctor would probably recommend that your child eat gluten for a few months, then do bloodwork and biopsy to 'see' if they have Celiac. Problem is---the treatment is the same if they have a gluten allergy or gluten intolerance or Celiac----a gluten free diet. The testing is helpful if the problem has not be identified, but can be a problem wen gluten has already been identified as a problem "somehow"

April in KC Apprentice
April in KC
Posted
Will he know enough about celiac disease to rule it out or confirm it - in all 3 of us if need be? or should I insist on see a ped GI for the kids who tbh I'd prefer to have a diagnosis for so that I can get bread etc on prescription & get the eldest boys school to take the issue of glutening seriously...

Some allergists (like mine) are not taught in school to test for anything other than anti-gliadin antibodies. Mine agreed to do a blood test, but only asked for anti-gliadin antibodies, IgA and IgE (of all things--I'm not having hives--he could have at least asked for an IgG in addition to the IgA). You really want a full Celiac panel (both antigliadin tests, anti-endomysial antibodies, tissue transglutaminase, plus a "total IgA" in case there's IgA deficiency and it skews the other results). If you like your allergist and want to give him a try, you might scan this board to see what blood tests should be included, ideally, and take that information with you to the visit.

I'm nursing an 8-1/2 month old with multiple food allergies, and I'm wondering about his celiac status as well. He couldn't hold down cereal, but has not tested positive on IgE tests for oats and wheat. It might just be too early to say whether it's all allergies or partly celiac.

Good luck!

buttonburger Rookie
buttonburger
Posted
  • Author

Thanks for everyones advice.

I spoke with the allergist yesterday & he was totally dismissive of any opinion but his own - & that is that my youngest has multiple food allergies & that is that. He said how could I even be suspicious of celiac disease when he hasnt been exposed to grains/gluten yet? :angry:

So what about his reactions to basically everything I ate & possible CC & the gluten in the Rice Krispies his nurse advised me to give him??? He tested +ive for a non IgE wheat allergy @ 4&1/2mths (amongst other things) & hasnt tolerated *any* of the grains we have tried so far (oats, corn & millet) but to him thats not indicative of a problem other than allergy.

I briefly discussed my elder son & he said he was an ideal candidate for testing but that the family doctor could do that - he didnt even suggest what tests should be carried out! (luckily I have the list from here to take along with me on wednesday :lol: )

The fact also that I recently discovered I have a wheat & dairy intolerance, coupled with my sons current dietary problems seem irrelevant.

It was almost as if he didnt want to consider celiac disease as it would mean he would lose a patient. Hes the top guy here so I am reluctant to discharge ourselves from the clinic - and my son is still so young that we really need dietic advice for him for a while longer, but hes helped me answer my own questions - he isnt the right guy for the job.

Ok, I could be wrong (my gut instinct tells me I'm not though), but he could at least try to put my mind at rest rather than dismiss me like I'm a neurotic mum. So I have made an appt for out family GP for this wednesday to request the full set of tests for my son & to heopfully get a referral for a pediatric GI.

Thanks to everyone once again,

Julie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,956
    • Most Online (within 30 mins)
      7,748
    Bobbyks69
    Newest Member
    Bobbyks69
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @glucel, I agree with @trents.  You can still do the AIP diet while taking aspirin.   I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin.  Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part of the problem is that those drugs, aspirin and warfarin, as well as others, can cause nutritional deficiencies.  Pharmaceuticals can affect the absorption and the excretion of essential vitamins, (especially the eight B vitamins) and minerals.   Potential Drug–Nutrient Interactions of 45 Vitamins, Minerals, Trace Elements, and Associated Dietary Compounds with Acetylsalicylic Acid and Warfarin—A Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC11013948/   Aspirin causes a higher rate of excretion of Thiamine Vitamin B1.  Thiamine deficiency can cause tachycardia, bradycardia, and other heart problems.  Other vitamins and minerals, like magnesium, are affected, too.  Thiamine needs magnesium to make life sustaining enzymes.  Without sufficient Thiamine and magnesium and other essential nutrients our health can deteriorate over time.  The clinical symptoms of Thiamine deficiency are subtle, can easily be contributed to other causes, and go undiagnosed because few doctors recognize Thiamine deficiency disorders. Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Celiac Disease causes malabsorption of vitamins and minerals.  Supplementing with essential vitamins and minerals can boost absorption.   Our bodies cannot make vitamins and minerals.  We must get them from our diet.  The Gluten free diet can be low in Thiamine and the other B vitamins.  Gluten free processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts. You would be better off supplementing with essential vitamins and minerals than taking herbal remedies.  Turmeric is known to lower blood pressure.  If you already have low blood pressure, taking turmeric would lower it further. Curcumin/turmeric supplementation could improve blood pressure and endothelial function: A grade-assessed systematic review and dose-response meta-analysis of randomized controlled trials https://pubmed.ncbi.nlm.nih.gov/38220376/ I've taken Benfotiamine for ten years without any side effects, just better health. Other References: Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation https://pmc.ncbi.nlm.nih.gov/articles/PMC7230706/ Bradycardia in thiamin deficiency and the role of glyoxylate https://pubmed.ncbi.nlm.nih.gov/859046/ Aspirin/furosemide:  Thiamine deficiency, vitamin C deficiency and nutritional deficiency: 2 case reports https://pmc.ncbi.nlm.nih.gov/articles/PMC9023734/ Hypomagnesemia and cardiovascular system https://pmc.ncbi.nlm.nih.gov/articles/PMC2464251/ Atypical presentation of a forgotten disease: refractory hypotension in beriberi (thiamine deficiency) https://pubmed.ncbi.nlm.nih.gov/31285553/
    • Wheatwacked
      Muscle atrophy in legs

      By Wheatwacked · Posted

      Polymyositis is a rare autoimmune disease that makes your immune system attack your muscles. Any autoimmune disease is associated with low vitamin D.   Even as a kid I had weak legs.  Now I feel the burn just walking to the mailbox. A case-control study found that patients with polymyositis (PM) had higher lactate levels at rest and after exercise, indicating impaired muscle oxidative efficiency. The study also found that an aerobic training program reduced lactate levels and improved muscle performance.
    • Wheatwacked
      2 months in... struggling with symptoms

      By Wheatwacked · Posted

      Micronutrient Inadequacies in the US Population "A US national survey, NHANES 2007-2010, which surveyed 16,444 individuals four years and older, reported a high prevalence of inadequacies for multiple micronutrients (see Table 1). Specifically, 94.3% of the US population do not meet the daily requirement for vitamin D, 88.5% for vitamin E, 52.2% for magnesium, 44.1% for calcium, 43.0% for vitamin A, and 38.9% for vitamin C. For the nutrients in which a requirement has not been set, 100% of the population had intakes lower than the AI for potassium, 91.7% for choline, and 66.9% for vitamin K. The prevalence of inadequacies was low for all of the B vitamins and several minerals, including copper, iron, phosphorus, selenium, sodium, and zinc (see Table 1). Moreover, more than 97% of the population had excessive intakes of sodium, defined as daily intakes greater than the age-specific UL" My Supplements: Vitamin D 10,000 IU (250 mcg) DHEA 100 mg  (Dehydroepiandrosterone (DHEA) levels in the body decrease steadily with age, reaching 10–20% of young adult levels by age 70. DHEA is a hormone produced by the adrenal glands that the body uses to create androgens and estrogens.) 500 mcg Iodine 10 drops of Liquid Iodine B1 Thiamin 250 mg B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium twice a week 200 mcg
    • Wheatwacked
      Refractory or super sensitive?

      By Wheatwacked · Posted

      The paleo diet is based on the idea that the human body evolved to consume a balanced ratio of omega-6 and omega-3 fatty acids, and that the modern diet is out of balance. A healthy ratio of omega-6 to omega-3 is 1:1–4:1, while the modern diet is closer to 20:1–40:1. The paleo diet aims to restore this balance.
    • Wheatwacked
      Hey all!

      By Wheatwacked · Posted

      Best thing you can do for them! First-degree family members (parents, siblings, children), who have the same genotype as the family member with celiac disease, have up to a 40% risk of developing celiac disease. Make sure you and they get enough vitamin D and iodine in their diet.   Iodine deficiency is a significant cause of mental developmental problems in children, including implications on reproductive functions and lowering of IQ levels in school-aged children. Vitamin D deficiency is common in the United States, affecting up to 42% of the population.
×
×
  • Create New...