Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gene Testing?

earthmama

Recommended Posts

earthmama Newbie
earthmama
Posted

Hi,

I'm new here (though have spent countless hours as a guest learner) and am finally ready to post! I stumbled upon all of this when I did a gluten free trial myself this fall and am literally a new person (headaches, fatugue, daily nausea, bloating and indigestion). DD had frequent tummy aches, constipation, pale stools, canker sores and unexplained mood swings. All symptoms cleared up within days on a gluten free diet. I'm willing to stay on the diet myself without a confirmed dx but was not willing to commit a 5 year old to it so decided to do the gene test on dd through Enterolab (which I hoped might also shed light on my genetics!)

Her genes revealed both a celiac gene and a gluten sensitive gene. What this tells me for sure is that both my husband and I possess gluten sensitive genes, that DD will pass a gluten senstive gene to her children and that she could be, or already is, celiac.

Dr Fine maintains (hypothesizes) that everyone with a celiac gene is gluten sensitive. I plan on keeping dd on a gluten-free diet.

Is further testing necessary?

Should I have gene tests performed on my asymptomatic children? The chances are pretty good that they too will possess gluten sensitive genes.

Does everyone with a gluten sensitive gene experence some form of gluten sensitivity?

This network is wonderful and has provided me with so much comfort and information as we walk this road. Thanks so much to the veterans who share their knowledge and experince with us newbies!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Does everyone with a gluten sensitive gene experence some form of gluten sensitivity?

Not necessarily. There is only ONE gene that is not considered gluten sensitive, and it's only found in Asians (DQ4). If you and your child feel better gluten-free, then stay gluten-free. If you have doubts down the road, challenge and see how you react to gluten.

About 30% of the general public have a celiac gene, but only 1% ever develop celiac.

It's up to you whether you get everyone tested. I tested two symptomatic daughters with Enterolab (we don't have celiac genes). One was positive for gluten intolerance, one was negative.

The positive child challenged gluten last Christmas break and she decided that she never wanted to eat it again (she's 13). My oldest daughter was not tested, but tried the diet and her allergies went away. She does not eat gluten either. The rest of the family does (we have six kids).

earthmama Newbie
earthmama
Posted
  • Author

Thanks....my head has been spinning trying to figure all of this out. It's appealing to just do it and go gluten-free for the time being as we piece together this family puzzle. Great that you gave your teenagers the freedom to do their own experiment. Also nice to hear that some people do test negative through Enterolab...I was beginnng to think that everyone in the world had gs after reading about Dr Fine's work!

confused Community Regular
confused
Posted
Thanks....my head has been spinning trying to figure all of this out. It's appealing to just do it and go gluten-free for the time being as we piece together this family puzzle. Great that you gave your teenagers the freedom to do their own experiment. Also nice to hear that some people do test negative through Enterolab...I was beginnng to think that everyone in the world had gs after reading about Dr Fine's work!

i was thinking for a bit that everyone tested positive to also thro entrolab. But then i got to thinking, of course most of us are positive, because we do not get tested just because we want to, We have has issues that make us think we are problems with gluten, so of course we are going to be positive. Im sure if more people tested that never had C or D, then there would be more negative people with gluten.

paula

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,750
    • Most Online (within 30 mins)
      7,748
    Ajustice
    Newest Member
    Ajustice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      High blood test numbers - with scales. Any advice?

      By Scott Adams · Posted

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
×
×
  • Create New...