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Drs. In Orlando, Fl That Know About Celiacs


bernettaelliott

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bernettaelliott Newbie

Does anyone know of any drs. that are in the Orlando, Florida area that know about Celiacs? Thanks, Bernetta :)

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    • Elliebee
      I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimoto disease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering if actually worth be officially diagnosed. Assume I have celiac disease or have potential for it to develop. Have my adult children tested etc.  I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimotodisease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering ifactually worth be officially diagnosed. Assume I have celiac disease or havepotential for it to develop. Have my adultchildren tested etc. 
    • Elliebee
    • trents
      I'm wondering if you are possibly on the cusp of developing celiac disease. It would be interesting to see what would happen to your ttg-iga levels if you were to commit to eating gluten free for six months and then have them checked again. When ttg-iga levels are elevated, there is only a 5% chance it could be due to something besides celiac disease.  
    • Elliebee
    • Scott Adams
      Autoimmune thyroid disease, like Hashimoto's, can sometimes be associated with mildly elevated TTG levels, but it’s not the primary cause of a high TTG reading. Since celiac disease and autoimmune thyroid conditions frequently coexist, your doctor is right to investigate further. It’s encouraging that your TTG has dropped slightly, which may suggest some fluctuation rather than a definitive celiac diagnosis, especially with a negative EMA test and your prior negative endoscopy. However, the ongoing elevated TTG could indicate low-level inflammation, possibly linked to a gluten sensitivity or early-stage celiac that wasn’t yet visible during your last endoscopy. Since your doctor is consulting with a gastroenterologist, it sounds like they’re taking the right steps to ensure you have clarity. In the meantime, if you experience any symptoms related to gluten, keeping a symptom journal could provide more insights. This is a tricky area, but it sounds like you’re in good hands with a careful approach. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:    
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