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Diagnosis Age And Sensitivity Realtion


simonsmama

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simonsmama Newbie

I have heard if one is diagnosed young they are extremely sensitive. My son was diagnosed w/ Celiac at 18 months. THe doc mentioned this and I have heard it again from somewhere, but cannot locate any info. THe thing is that he was sick w/ vomiting and diarrhea and distended painful belly while on wheat/gluten products. But he was never hospitalized for it. I have heard many tell of that experience.....Anyone know of resources or research that discusses sensitivity or severity of disease related to age of diagnosis??


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Guest ~wAvE WeT sAnD~

Simonsmama--

Hello there! I hope your son is doing well :)

The only thing I know is that infants can be misdiagnosed as FTT (Failure to Thrive) if they are malnourished because of celiac disease. From what I've heard through the testimonials of Celiacs who were diagnosed during infancy, it definitely seems to be harder on younger, developing bodies.

Take care,

tarnalberry Community Regular

I think it's a coincidental causal relationship. You get the diagnosis in young kids only when it's bad - it's overlooked or passed off as something else in those who aren't as sensitive. They still have it; they're just overlooked in the diagnosis, or expected to "grow out of whatever is bothering them".

simonsmama Newbie

Thank you to both of you!

When Simon was 2 months old he developed severe rashes that by 6 months had been linked to food allergies- dairy and egg. He had wheat for the first time at 12 months- birthday cake- and of course it was constantly introduced after that .....and over the next six months was sick with "stomach bugs" that never completely healed on 3 week cycles. He lost weight but it was hard for the doc to be concerned because although he had been in 10Oth percentile he was still in 80th percentile. He was a good nurser still and did not get dehydrated but had the distended belly and constant tummy upset. Our doc checked w/ the allergy doc who said Simon had not tested positive for a wheat allergy and it was not likely food related. But at the scheduled followup visit and "recheck" of allergies wheat and rye revealed themselves as allergens. We did a blood test that was "absolutely positive" and stopped gluten in any form. After 2 days the diarrhea slowed and vomiting ceased. After a few weeks the belly went to a normal shape. After a month Simon was eating us out of house and home! And for 2 well checks now he has gained "weight but not height". This summer he has SPROUTED up tall.

He is happier, sleeps better, is learning and talking quickly,and healthy!!!

I appreciate your input on the age thing!

Crystal

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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