Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dramatic Reaction To Toast


nama shivaya

Recommended Posts

nama shivaya Explorer

I ate 3 pieces of whole grain toast yesterday as a self-test, and man were the results not fun! I've been gluten free for a few weeks (probably a little here & there -- do Reeses Peanut Butter Cups count?)

Anyway, my throat felt itchy after I ate the toast. A couple of hours later, my voice got weak and my jaw felt like it was being squeezed. I almost reached for a benedryl! I got kinda itchy as well. I really felt out of sorts. This morning when I got up I had a HUGE anxiety attack. I almost went to the ER, but my hubby talked me down and I took 1/2 a sedative instead and went back to bed. I feel like I've got heart palpatations, but my pulse seems OK -- slow & steady.

A couple of hours later I had D with bile colored bits floating on the top (sorry.) Now I feel somewhat better.

So why did I do it? I had wanted to begin eating a little of everything in preparation for my gastro appt. next month. I do NOT want to face a specialist who thinks this is all in my head! But now I know why so many of you say you will trade being undx'd for not ever doing gluten again. I think I'll go another route and just do an allergy panel and see the integrative doc. I will ask the gastro to do a scope anyway, just to rule anything else out.

Wow, what a crazy 24 hours this has been! I hope you're all doing better than I seem to be at the moment!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Sorry you're not feeling well.

Allergy tests can tell you if you are allergic to gluten, but not whether you are intolerant to it. It's a different immune reaction. Judging by the immediate itching in your throat, you may be both allergic and intolerant.

nama shivaya Explorer

Allergic vs. intolerant. Hmmm So if a person's allergic to soy, shellfish, peanuts, etc., they can expect an allergic reaction (systemic), but not an intestinal reaction? (unless one is both allergic and intolerant).

As I understand it, food allergies can be tested by a blood test.

So how does a person test for food intolerances? Is there an accurate blood test? Or must a person eliminate foods and add them one at a time, gauging the reaction?

Thanks for helping me get this sorted out!

CarlaB Enthusiast

I'm not sure about the testing ... I'm sure someone else can tell you as many have been tested here for many things!

Intolerances are also systemic. You have an immune system reaction and can have varying symptoms ranging from diarrhea and bloating, to joint pain and seasonal allergies. It's just a different immune reaction. Allergies can kill you, intolerances just give you pain! :P

I was tested for gluten intolerance by Enterolab, but they didn't tell me anything I didn't already figure out from dietary reponse.

chatycady Explorer
I ate 3 pieces of whole grain toast yesterday as a self-test, and man were the results not fun! I've been gluten free for a few weeks (probably a little here & there -- do Reeses Peanut Butter Cups count?)

Anyway, my throat felt itchy after I ate the toast. A couple of hours later, my voice got weak and my jaw felt like it was being squeezed. I almost reached for a benedryl! I got kinda itchy as well. I really felt out of sorts. This morning when I got up I had a HUGE anxiety attack. I almost went to the ER, but my hubby talked me down and I took 1/2 a sedative instead and went back to bed. I feel like I've got heart palpatations, but my pulse seems OK -- slow & steady.

A couple of hours later I had D with bile colored bits floating on the top (sorry.) Now I feel somewhat better.

So why did I do it? I had wanted to begin eating a little of everything in preparation for my gastro appt. next month. I do NOT want to face a specialist who thinks this is all in my head! But now I know why so many of you say you will trade being undx'd for not ever doing gluten again. I think I'll go another route and just do an allergy panel and see the integrative doc. I will ask the gastro to do a scope anyway, just to rule anything else out.

Wow, what a crazy 24 hours this has been! I hope you're all doing better than I seem to be at the moment!

I believe you had an acute allergic reaction. I too have similar reactions and then my blood pressure drops real low 75/45. I believe you should have gone to the ER. This is somewhat dangerous. Next time you may be headed for a true anaphylactic shock!

A food allergy can affect one or more of the major body functions such as respiritory, digestive or circulatory. Sound like it hit all three for you. Be careful!

ravenwoodglass Mentor
So how does a person test for food intolerances? Is there an accurate blood test? Or must a person eliminate foods and add them one at a time, gauging the reaction?

Thanks for helping me get this sorted out!

You just did and your test was positive. You test for intolerances by eliminating the suspect food until symptoms are relieved and then adding it back in and seeing if you react. This is exactly what my allergist, an MD, did when I was diagnosed. When I went to the GI I was sent to after I reacted to the challenge he had me challenge again and it almost killed me. He was then kind enough to give me an 'official' diagnosis. Your body has really given you the answer.

Guest cassidy

Toast? I can't believe you cheated with toast? If I was going to do something like that it would be pizza or a donut or something else that tastes amazing, but not boring toast! Sorry, but I had to give you a hard time about that.

Sorry you got so sick. At least you now know that gluten causes problems for you, but don't be surprised if a gi doc still doesn't believe you. I had 3 of them tell me that I had reflux, not celiac, even though I was able to cancel my surgery for reflux by going gluten-free.

Good luck figuring all of it out, an integrative doctor is a great choice. I didn't feel 100% after going gluten-free and through a stool test my doctor found out I had almost no good bacteria, an amoeba and candida overgrowth. She fixed me up and I'm doing great. She just recommended an elimination diet and food diary to figure out my other intolerances because she said testing isn't accurate, but I realize there are many view on this subject.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nama shivaya Explorer

Beginning about 7 years ago, I could not eat any latex foods: bananas, kiwi, split peas, almonds, etc. If I did, my throat would immediately begin developing gas bubbles -- it felt like I was trying to swallow a soft ball! The only thing that would help was to chew peppermint gum real quickly. Peppermint deals with gas production in a great way.

Anyway, this was my first experience with food allergies that I was acutely aware of. Now this. I think staying away from gluten-containing foods will be a bit of an adjustment, but oh, well. I think it explains a year of extreme anxiety I've had, and I do NOT want to go back to that!

My only hope is that my body will heal and I'll be able to add dairy/eggs & other proteins. This meat and veggies diet's getting old!

And yeah, cassidy, I should've done it right with some gooey donuts or something!!

PeggyV Apprentice

At least you can have Reese Peanut butter cups! I am pretty sure they are gluten free. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,750
    • Most Online (within 30 mins)
      7,748

    Ajustice
    Newest Member
    Ajustice
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
×
×
  • Create New...