Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy

January Flower

Recommended Posts

January Flower Rookie
January Flower
Posted

I'm waiting to have a colonoscopy and i'm really really nervous about it. Is it really bad? They said i'll be sedated but does it hurt??? DO you feel anything?

need some feedback..

super stressed out about this!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PeggyV Apprentice
PeggyV
Posted

I just had mine done. The prep is the worse. I felt a little nauseated after I drank the first little bottel they gave me. I had mine on Monday so was able to goof off sunday. I felt fine with just jello, etc until around 2:00. Once I started cleaning out....I just laid around.

The actual proceedure I felt nothing (except they put an IV in and I hate having that done) I went home and slept and never felt bad, just a little tired from the meds.

Dont worry I was nervous too, but it is fine.

Tash-n-tail Rookie
Tash-n-tail
Posted
I'm waiting to have a colonoscopy and i'm really really nervous about it. Is it really bad? They said i'll be sedated but does it hurt??? DO you feel anything?

need some feedback..

super stressed out about this!

Hon take a breath and try to relax.

No it's not bad. It isn't fun mind you. But it's not bad.

Trying to relax is import. It also depends on the sedation. I've had a local and the variety where they thankfully knock you out. In my case with the local, having a monster TV screen hanging in front of my eyes didn't help. And yes I was aware of it penetrating me and vaguely working it's way up into my gut. (Watching the thing on screen didn't help and I didn't get as enthusiastic about my innards as did the crew). :blink: I did feel it nip the sample tho'. In medical terms it's uncomfortable rather than painful.

The most awful part of it were for me:

1. The TV screen.

2. What felt like a stage set with 15 people milling around. (What WERE they all there for?)

3. The air/wind they fill you with to allow them to see the colon.

4. The pre-clean-out was rather thorough all things considered.

Now I didn't help because I froze like the iceberg that sunk the Titanic and just couldn't relax. My Specialist and the head nurse were just great and soothed me throughout the test. Incredible!!! Remember the hospitals are well used to doing these procedures these days. You're the patient and if things are not going decently for you, you say so! Feel that you want more lube say so. Hate the camera/tv screen idea? Don't suffer like I did -- say so. (They must be able to block it some how from the patient?) Find the air too much, set the pace and be firm -- it is after all your body. Keep in mind that the anus is amazingly elastic and the tubing and camera entering you are small. About the diameter of a pinkie finger. And they are gentle. Lordy are they gentle.

Remember to breath often.

I don't under pressure inspite of my years of meditation! I stopped breathing and lay there rigid.

Make sure that someone is picking you up afterwards and be sure to have goodies at home to eat and treat yourself with. I didn't and had to rest on the bed at home and then go shopping duh! Oh be prepared for the air pumped into you to escape -- warn everyone and make NO apologies. Set the time aside afterwards to be quiet "you" time. (Fav tv show, DVD's, books, treats to nibble and prepared easy to access and heat meal or two not far away from you helps). I did feel a bit better once home and showered too.

The plus side is that they do need to get up there and find out or see things. It's the only way unless going down the throat I understand. Good luck and keep us posted!

Zen hugs!

Marcus.

happygirl Collaborator
happygirl
Posted

I have had three :(, and it really isn't that bad at all. The prep is annoying though. I was out (sedation) for all three procedures...in one, I wasn't out quite enough ... I guess I kind of talked and they bumped up the sedation and I didn't remember anything else. So even if they don't give you enough, if they know that you are uncomfortable, they will bump it up.

Best of luck.......for all the commotion that is made about it, I honestly couldn't believe that it was this simple. Best of luck!

CarlaB Enthusiast
CarlaB
Posted

The prep was bad, but the procedure wasn't. I had concious sedation and don't remember a thing. I slept the rest of the day.

January Flower Rookie
January Flower
Posted
  • Author

Thanks guys! I'm sure iti'll be fine, just am nervous not knowing really what to expect but i guess it's for the best.

blueeyedmanda Community Regular
blueeyedmanda
Posted

The worst part is by far the prep, I dont remember anything else. When I woke up, my hubby was by me. I was uncomfortable afterwards from gas... :ph34r: Other than that I slept the rest of the day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CMCM Rising Star
CMCM
Posted

It was not a big thing at all. I had the conscious sedation, I guess....basically I must have drifted away with it, next thing I knew it was over and I was waking up. No after effects at all, nothing. Don't worry about it! ;)

super-sally888 Contributor
super-sally888
Posted

Hi,

It is not so bad. I did it without any sedation at all (don't like meds if I can help, was by myself, and had to go to work after). It was not comfortable - the worst part was the air that they pump in so that everything opens up for them to inspect) so it was like the worst case of bloat ever - but was bearable and so soon as the air started coming out all was fine - and I asked the Dr. to talk me through it, to go slow, and to release some of the air at times.

With sedation it will be a breeze! No worries!

Sally

Laurad- Apprentice
Laurad-
Posted

Wow, Sally, you're hardcore! I'm really impressed!

My colonoscopy was a breeze because it was unplanned (sort of an emergency check), so I didn't have to spend any time worrying about it beforehand. Five minutes after they told me they were going to do it, I was flying on the ceiling from the drugs and I slept for the rest of the day. So I really think the only bad part is the anticipation of it all.

babygirl1234 Rookie
babygirl1234
Posted

the prep is the worst the test itslef is nothing your awake/sleepy for the whole thing oh yea you have to pass the air they put into your colon to see up there

key Contributor
key
Posted

The prep wasn't so much fun, but wasn't as bad as I thought it would be. I had something for nausea though. The stuff they gave me to drink tasted absolutely horrible. It could have been much worse though.

The procedure itself was actually nice as they knocked me out. I woke up with no discomfort whatsoever! Make sure they are sedating you and you will be fine.

Monica

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,927
    • Most Online (within 30 mins)
      7,748
    DoraN
    Newest Member
    DoraN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
×
×
  • Create New...