Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Virus Or Glutened?


anerissara

Recommended Posts

anerissara Enthusiast

Ooooo, this is annoying! My son (now 10) and I are sick, and I can't figure out why! I have been having symptoms for nearly 2 weeks now, with cramping and D and just feeling wiped out and tired. Then, my son started getting tummy aches after eating dairy last week, and by Friday he was having terrible cramps and D, too! Today both of us are better than we were yesterday, but I can't figure out what this is. He and I are the only ones in the family who get sick with gluten, and nobody else has had any sign of illness...usually by now *somebody* else would be sick if it were a virus, right? But it's just my son and I. However, we've been really careful about gluten and I *can't* figure out where on earth gluten would be coming from!!! We did eat a Wendy's, but I printed off a gluten-free menu and took it with me so I am confident that at least we didn't *order* any gluten (whether or not any gluten ended up in the food accidentally is another matter, I guess).

This is so frustrating! If it's a gluten reaction, this is by far the worst I've ever seen my son react. Normally he gets some gas, has behavioral changes, maybe some heartburn and maybe an extra trip to the bathroom. This time around, he's having D 7x per day and bad cramps! Poor little guy. The cheese thing is worrisome, too...he's never had a problem with that, and even when he's been glutened before he seems to tolerate dairy OK. I get lactose intolerant when I'm glutened, so maybe that's what's up with him, too?

Has anyone had a virus that did this? *Just* D and cramps, no fever or anything else? I'm going nuts trying to figure out what is going on. I guess if another family member gets it I'll know it was a virus, but in the meantime I'm wracking my brain trying to figure out what we could have gotten into that would cause a reaction this bad. I mean, I could understand it if he and I had shared a whole *Pizza* or something, but as far as I can tell there's just nothing we've eaten that should have caused this!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

What did you have at Wendy's? It sounds like it must be a glutening since no one else got sick.

anerissara Enthusiast

We had a baked potato with cheese and bacon, he had a burger w/out the bun and a frosty (chocolate), and I had a chili with cheese. I guess maybe something could have gone wrong behind the scenes, like they dropped some bread crumbs on the food or something? I'm trying to remember what we both may have eaten besides that in the last week, and so far I'm coming up with nothing unusual....

CarlaB Enthusiast

The baked potato could have been cut by a contaminated knife. I don't know how they do the bacon or how close they keep it to the bread, but maybe the same person who touches the buns touched the bacon. I wouldn't get just a hamburger patty at a fast food place because of contamination issues, the patty itself is gluten-free, but it's awfully close to the bread. If they use the spatula to put the burgers on the buns, then they flip your son's burger, it's contaminated.

The only thing I eat at Wendy's is the chili, and if I could have sugar, the Frosty. I think the risk of contamination is high on everything else.

The gluten-free menus are a good idea, but really hard to put into practice at a fast food place. I only get the Wendy's chili, or the Chick-fil-a grilled chicken salad and waffle fries (verify it's a dedicated fryer).

Sorry you got sick. My guess is gluten. It's just too curious that no one else got sick. Often, as your off gluten for a longer period of time, the reactions get worse. It's similar to the smoker who gives up cigarettes ... one cigarette will bother them when a pack a day didn't before, though the pack a day was causing overall ill health.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,916
    • Most Online (within 30 mins)
      7,748

    nonleadedmilk
    Newest Member
    nonleadedmilk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @Dawn R., I get gluten ataxia.  It's very disconcerting.   Are you still experiencing gluten ataxia symptoms eating a gluten free diet?  
    • knitty kitty
      @Jordan Carlson, Sorry to hear you're having a bumpy journey right now.  I've been there.  I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet).  It gave my digestive system time to heal.  After I felt better, I could add things back into my diet without reactions.   In Celiac Disease, we make lots of histamine as part of the autoimmune response.  There's also histamine in certain types of food.  Lowering histamine levels will help you feel better.  Foods high in histamine are shellfish, crustaceans, fermented foods like pickles and sauerkraut, canned foods, processed meats and smoked meats like bacon and ham, and aged cheeses.  Grains and legumes can also be high in histamine, plus they contain hard to digest Lectins, so they go, too.  Cutting out corn made a big improvement.  Some Celiacs react to corn as though it were gluten.   Dairy can be problematic, so it goes.  Some Celiacs have lactose intolerance because their damaged villi cannot make Lactase, the enzyme that digests lactose, the carbohydrate in dairy, while some Celiacs react to Casein, the protein in dairy that resembles gluten.  Dairy is high in iodine, which makes dermatitis herpetiformis flare up badly.  Eggs are high in Iodine, too.  I even switched to pink Himalayan salt, instead of iodized salt.  Avoid processed gluten free facsimile foods like cookies and breads because they have lots of additives that can cause high histamine, like carrageenan and corn.   Yes, it's a lot.  Basically veggies and meat and some fruit.  But the AIP Paleo diet really does help heal the intestines.  My digestive tract felt like it was on vacation!   I'd throw meat and veggies in a crock pot and had a vacation from cooking, too.  Think easy to digest, simple meals.  You would feed a sickly kitten differently than an adult cat, so baby your tummy, too! Take your vitamins!  It's difficult to absorb nutrients from our food when everything is so inflamed.  Supplementing with essential vitamins helps our absorption while healing.  Niacin B3, the kind that flushes (nicotinic acid -not the same as nicotine in cigarettes, don't worry!) REALLY helps with the dermatitis herpetiformis flares.  Niacin and Thiamine make digestive enzymes so you can digest fats.  Add in healthy Omega Three fats, olive oil, flaxseed oil, avocado oil, coconut oil.  Vitamin D helps lower inflammation and regulates the immune system.  Thiamine helps mast cells not to release histamine at the slightest provocation.  Benfotiamine, a form of Thiamine B1, has been shown to promote intestinal healing.  Pyridoxine B6, Riboflavin B2, Vitamin C and Vitamin A help heal the digestive tract as well as the skin.  Our outside skin is continuous with our digestive tract.  When my outside skin is having breakouts and hives, I know my insides are unhappy, too.   Talk to your doctor and nutritionist about supplementing.  Blood tests are NOT accurate measurements of B vitamin deficiencies.  These tests measure what's in the bloodstream, not what is inside cells where vitamins are used.  Supplementing with essential vitamins and minerals made a big difference with me.  (My blog has more of my bumpy journey.) Let me know if you have more questions.  You can get through this!    
    • Jordan Carlson
      Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point.   I will keep you posted! 
    • knitty kitty
      @GardeningForHealth, How are things going for you?   I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
    • knitty kitty
      @Jordan Carlson, How are you doing now?  Your post slipped by, but I had to let you know you weren't alone.  I've had cravings for raw meat my whole life.  It's due to being low or deficient B vitamins, specifically Thiamine.  Meat is a great source of B vitamins.  Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows up.   Thiamine and Niacin make digestive enzymes that will help you digest fats.  Thiamine will help improve gastroparesis, anxiety, vertigo, and heart palpitations.  Niacin will help Dermatitis Herpetiformis.  I get dermatitis herpetiformis blisters on the palms of my hands, too. Really active people (especially if outdoors in hot weather) need additional Thiamine.  If a high carbohydrate diet is eaten, additional Thiamine is needed, too.  I take Benfotiamine, a form of Thiamine that helps heal the digestive tract.  I also supplement magnesium because Thiamine and magnesium work together.   Hope you can update us on how you're doing.  
×
×
  • Create New...