Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, Biopsy Or Not 2-yr-old W/low Iga

mebolson

Recommended Posts

mebolson Newbie
mebolson
Posted

My 2-year-old daughter had IGG ELISA testing which showed moderate-to-high Gliadin reaction and then her pediatrician ordered different blood tests - IgA was Low (25), which the doctor said suggested she has an autoimmune disorder but her Tissue tran IGA & IGG and gliadin antibody IGG and IGA were negative. These tests were done after her being on a gluten-free diet for 3 weeks though, which the doctor said didn't matter. I'm confused! The doctor said she doesn't have Celiac according to the tests but we may want to biopsy but by the time they can biopsy she will have been gluten-free for 8 weeks. She has had horrible reflux since birth and couldn't even tolerate hypoallergenic baby formula. They did a scope at 5 months old and she already had colon polyps which they dismissed as her being allergic to her baby formula. She is now 2 and she constantly breaks out in rashes on her face, has had diarrhea since birth, is always bloated, and has horrible smelling bowels and gas. Her bad smelling stools are much better on the gluten-free diet and her diarrhea is much better but she still has red rashes on her face (cheeks). Should I put her through the biopsy? I'm so conflicted. Protein has been hard because she can't tolerate any meats but she is just starting to tolerate peanut butter on rice cakes. I do give her lots of supplements. She's in the 18% for weight and height. Any advice is greatly appreciated. This is all new and frustrating to me. Thanks for listening!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

being gluten free can affect the tests and the biopsy. if it were me, i would do the biopsy because they look for other things besides celiac-----she could possibly have other issues going on------maybe an eosinophilic problem. blood tests at her age are not real accurate.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,064
    • Most Online (within 30 mins)
      7,748
    Village court
    Newest Member
    Village court
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      Vaccines

      By trents · Posted

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Vaccines

      By GeoPeanut · Posted

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
×
×
  • Create New...