Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Deal With Not Being "normal"


alamaz

Recommended Posts

alamaz Collaborator

So, granted I haven't been dealing with this too long but the three weekends I have been dealing with celiac disease have STUNK. It used to be the only time we got to "eat out" and that included seeing friends and eating out. Now, I feel like a prisoner in my kitchen but I so badly want to just be normal and go out! I know that you can call ahead at the restaurant and so forth but where I live, going out to dinner on a Friday or Saturday is a zoo. The restaurants are always packed which gives it a greater chance of CC. I'm just so bummed and feeling bad for myself right now I had to say it to some one other than my husband who snuck out of the house last night to eat at my formerly favorite restaurant with a friend :(

Amy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

That does kinds suck, but isn't it the company you are missing? Not the food?

Eat before you go and order something that couldn't possibly be cc'd (like fruit, or just drinks) and have fun with your friends. After you get better at dealing with the diet you can start dealing with restaurants during lunch or mid afternoon when they aren't so busy and figure out which ones are safe for you to eat at.

Mtndog Collaborator

The grief definitely waxes and wanes because so much of our culture and social activities (as in many cultures) revolve around food. It IS hard but it does get better. A lot of times rather than go out we have people over and I cook which is fun.

Tthere are times when I get frustrated too- it's normal.

DebbieInCanada Rookie

As with any significantly life changing event - you will have to create a new "normal" for yourself. Like Mntdog says - create a new tradition where you have friends over into your "safe" environment to entertain. When your friends (and you) become more aware of your safe food choices, they can start to bring things as well to take all of responsibility off of you. As you find out which friends truly understand your situation and make an effort to accommodate you, you will feel comfortable eating at their house as well. And gradually you will get the hang of ordering in restaurants, and you'll find out which ones are safe.

It takes time, and the first while can be quite a shock, as you find out your new boundaries. But the pay off in feeling better, now and long term, are worth the effort.

I hope your hubby gets on board - sneaking out to meet with a friend isn't very nice :angry: , and must make you feel abandoned.

Hang in there, it gets easier.

Debbie

CarlaB Enthusiast

After you're gluten-free for a time, you might feel more comfortable going to restaurants that have gluten-free menus -- PF Changs, Cheeseburger in Paradise, Carrabas, Maggianos (no menu, but accomodate gluten-free), Bonefish Grill, or Outback.

blueeyedmanda Community Regular

I know it is hard, it seems like the everyone is having fun but you, but there are ways to have fun. With some research you might find salads and other food options which are safe, you can eat beforehand, or get fruit.

Could you host a get together at your place and maybe have everyone bring their own food and that way you can eat your food right along with them in a safe enviroment. I understand where you are coming from, I used to lock myself in on the weekends, lately I get a salad and a drink. I still have my moments, they ususally happen at work because my coworkers eat lots of cakes and pizza but I am slowly coming around to that as well.

It will go a lot better. Look at it as a positive thing too, you may have been too sick to join them at one point. Or you guys can look into non-dining activities. I hope that helps a bit.

Slackermommy Rookie

I know..it does feel completely overwhelming at first. Just take it one step at a time. There are some great resources here, you will find a way to do this and enjoy yourself again. The ideas already stated are pretty much what I would say too.

Good luck and know that you are not alone in your frustrations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I cannot eat out because I am so sensitive to minute amounts of gluten, so I bring my food with me. A few weekends ago, hubby and I went to a sports bar, he ordered wings, and I ate my pizza, and we watched the game.

Creativity and changing routines is part of the Celiac game. Hang in there---we all understand. Hugs to you.

johnsoniu Apprentice

It actually worked out pretty good for me. Every Thursday all the project managers at work go to lunch for a mid-week "meeting". Usually to Applebee's, bleech! This meeting usually just turns into a b**** fest by the young lady from accounting. I hated those meetings.

Alas, with Applebee's not having the greatest track record for catering to a gluten free requirement, I now get to politely decline attending :P

I haven't quite got around to mentioning to them that Outback, Texas Roadhouse, or Carraba's all would be good alternatives for me. They're all located in the same area B)

mamabear Explorer

Another possibility for you might be to investigate a small,family owned Mexican restaurant. I found one and got to know the owner. He has been extremely careful to check ingredients and their recipes for me...even brought out the chips' box to show they were gluten-free after I was getting CC from somewhere!

Knowing how to say 100% corn, no wheat in Spanish has also been very helpful! :P

darlindeb25 Collaborator

I never felt comfortable in restuarants anyways. There were always too many rules in my head and was too much work to be comfortable. I do not visit withmy friends for the food, I go for the talk and the togetherness. Food has never been an issue with me. It doesn't bother me to sit with friends while they eat and everything is fine as long as they can eat and be ok with me not eating.

We are not different from others. We look the same, we feel the same, we work, we play, we live!!! We have to eat differently, but we do not have 2 heads. It's no different then being diabetic or anything other disease. You learn to cope with the changes. Give it time.

alamaz Collaborator

Thanks every one for the kind words. When I start to think that this is a lifelong change is when I start throwing myself the pity party. I guess since I'm only mildly feeling better at this point, it's tempting to turn back to that delicious piece of coffee cake for breakfast but I know it takes time. I'm so not a patient person! Maybe this is a good thing to teach me some of that ;) I'm glad you guys are here to remind me that life isn't over, it's just a bump in the road.

Amy

Slackermommy Rookie

If it's coffee cake you are missing..someone here has to have a good recipe for you...just post a request in the recipes section...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,471
    • Most Online (within 30 mins)
      7,748

    Lynda Gibbons
    Newest Member
    Lynda Gibbons
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.