Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diet So Isolating


Marlene

Recommended Posts

Marlene Contributor

I don't know about you, but I find this diet can be so isolating. The girls from my office just went out for lunch and did not even bother to ask me if I wanted to go -- I probably wouldn't have been able to anyways since I think they are going for pizza. I just find that at social functions (which always seem to revolve around food) I end up having to eat something different from everyone else.

Even at home, I feel so isolated sometimes. I try to cook meals that we can eat together whenever possible, but a lot of times it just doesn't work out. Sometimes by the time I get my food ready, the family is half done their meal. They are not trying to be rude, but they might as well eat while their food is hot instead of waiting for me, right?

I could go on with more examples but I think you get the drift. Does anyone have any suggestions or ideas? Is this something that I am just going to have to learn to live with?

Thanks a lot,

Marlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StrongerToday Enthusiast

I totally understand. We recently went on a family vacation which really went pretty well. Most days we went to places where I could get some great food. It was on the last day they went to an Irish pub (gee, thanks), ordered onion rings, passed the soda bread, had huge lunches, then went to a French bakery. Then at dinner they didn't want to go out, but I was starving - all I'd had was the "low carb" burger (no bun) and a side of brocolli! :angry: Then the next morning they ate croissants from the French bakery for breakfast and said "gee, sorry we can't offer you any".

At first I was p.o.'d they'd said that *again* then I realized I'd have been mad if they hadn't offered. Yes, finally I realized this is just the way it is and to get used to it.

We went to Margartiaville for lunch where I had called ahead and the chef came out and positively fawned over me, brought me fresh fruit, had a special desert for me... it was all great until my dad said (eating some of my desert) "gee, now we know how it is to live your diet". Yeah, don't think so!!

But it's all good, I'm the only one who came home who didn't gain weight on the trip :lol:

melie Apprentice

I hear you, Marlene. This is something I'm still navigating. I feel that I have a large "FREAK" sign on my forehead when there's ever a social event revolving around food. I hate being different and hate the attention from being different, and answering all the same questions, seeing the same ''glad it's not me'' look in people's eyes.

Melie

Jestgar Rising Star

I'm sorry you're feeling left out. At my work usually they ask, or they 'we're going out for Sushi, we assumed you wouldn't want to come'. And I'm fine with that. Sometimes I say 'let's go here', or 'I can't eat at that restaurant, how about this one?' And sometimes I email other friends and go out to lunch with people that care about me.

If it looks like they're going out, ask. If they say they're going for pizza, make some comment about it sounding like fun (and about how you'll probably skip lunch so you can leave at 3, if you can get away with that). Gently include yourself, even if you don't go with them.

DingoGirl Enthusiast

It feels even MORE isolating in the beginning.....but the longer you do it, it does get better. :) When I dine out, and I have been able to do it safely quite often, I will speak to the chef or kitchen manager privaely, and just very sweetly explain what the situation is. They have alwyas been wonderfully accommodating and I"ve never gotten glutened from eating out, except once in the beginning. I will usually order a piece of sauteed fish with vegetables, alwyas ask for a clean pan, just put butter/lemon salt and pepper in it.....butter and lemon on veggies. It's always been fine.

Dining out at tiny bistros is even easier. I have had many things there - - they usually use fresh, pure ingredients and if there's any question, I jsut don't bother. Had some very spicy scallops two weekends in a row at this fabulous little restaurant we have here - my dear friend happens to be a server there so gets me all the ingredients and brings bottles/containers to me if there's any question.

I would suggest finding places in which you feel comfortable and safe, establish a rapport, and go from there. But a pizza parlor - I don't think there's any way to eat anything in there - bring your own food and drink a glass of water....just not safe. You have to pick and choose your activities with this disease - - but I find most people, friends, family, restaurant staff, are really accommodating....

gfpaperdoll Rookie

Please give yourself a break at home and only cook one gluten free meal for the whole family!!!

CMCM Rising Star

I think we all feel this way sometimes. But I've decided that as with most other things, people are generally thinking mostly only of themselves and tend to forget about the dietary limitations of others. It's just not forefront in their thoughts as it must be with us. SO.....I choose to think of this as mostly in my head, and I stop myself from being upset or offended most of the time. And actually, if you are inventive, most places have things we can eat. I got to the pizza place and eat salads from their salad bar. There are always people on diets who won't eat sugar, desserts etc. due to the diet, so this isn't all that different!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DebbieInCanada Rookie
..The girls from my office just went out for lunch and did not even bother to ask me if I wanted to go -- ...

For lunch at work - take initiative and control of the situation yourself. You dont' have to wait for someone to ditch you, or half-heartedly say "oh, I'm sure you don't want to come for pizza". Plan a lunch outing yourself. Ask one or 2 friends, choose a place that YOU can eat, and tell others you are going to restaurant X, and they are invited.

And at home - develop as many "everyone" meals as you can. I have very few double meals. If we do have gluten-free and non-gluten-free choices, it's for a part of the meal, but not the whole thing. For pasta - one pot of sauce, and then 2 pots of pasta is about the biggest effort I make! I make gluten-free Burgers, and then everyone else has a wheat bun, and I do gluten-free bun. Or, I make smoke sausage, and everyone else has perogies, and I have a microwave baked potato.

There are tons of meals that are "naturally" gluten-free, and very easy to make that way with small substitutions. (check out the baking forum!)

Hope that helps a bit.

Debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.