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Recent Activity
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- MTAC posted a topic in Coping with Celiac Disease0
NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS
My daughter had been complaining of stomach paints intermittently for a while now. We had been to the doctors before in which they said it was just general constipation. For a good while its just been something she complained of and we would put it down to maybe its hunger pains because she is fussy with food, growing pains etc. - She was getting nose bleeds... -
- trents replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
I do not think that foregoing the biopsy when the ttg-iga is 10x normal has yet been adopted as a universal protocol in the U.S. We are not quite as far along on that one as they are in Europe I believe. One option is to trial a gluten free diet and then attempt a "gluten challenge" later on if for some reason it becomes important to distinguish between having... -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Thank you! That's so encouraging. We are planning to go 100 percent gluten-free at home apart from continuing to feed the other kids gluten till they get their tests. I assume that if you have zero gluten in the kitchen eventually cross contamination ends! It does seem overwhelming at first! Once they've been gluten free for awhile is it obvious... -
- Jsingh replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Hi, I am mother of a six year old who was organized a year ago when she was fine. to answer your question about removing gluten from your kitchen- it will be a mammoth task but your entire kitchen has to be free of gluten for her to be safe. Now I’ve learnt from this forum and others that different celiac patients show different level sensitivities t... -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Thank you! This is helpful. I actually read her results wrong. It looks like her tTG test was just higher than the test goes (it only goes up to 100 and hers was higher than that so it just said greater than 100 and 0-3 would have been normal). And the 109 was a different iga test (immunoglobulin A, Qn, Serum). The ema was just a straight positive. I think...
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