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- knitty kitty replied to Bebygirl01's topic in Related Issues & Disorders12How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
@Liquid lunch, I prefer the AutoImmune Protocol Diet, developed by a Celiac, Dr. Sarah Ballantyne. I would be interested on your point of view about the AIP diet compared to the Lectin Free diet. Here's some research on both.... Dietary Lectin exclusion: The next big food trend? https://pmc.ncbi.nlm.nih.gov/articles/PMC660380... -
- Liquid lunch replied to Bebygirl01's topic in Related Issues & Disorders12How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Thanks, sorry for all the questions but in the above link.. ’Remember, nearly all tests and screening for celiac disease require the patient to be eating a gluten-containing diet before testing’ I guess this also applies to other lectins so you would need to be eating them in order to find out via igg/ige testing which ones you’re reacting to? I... -
- knitty kitty replied to James47's topic in Coping with Celiac Disease1
Alcohol
Hey, @James47, I encourage you to avoid alcohol completely. Alcohol affects your ability to absorb essential vitamins and minerals just like Celiac does. The body can crave alcohol because alcohol breaks down into glucose and the brain likes glucose for fuel. Carbohydrates breakdown into glucose, too, but more thiamine is needed to... -
- trents replied to Bebygirl01's topic in Related Issues & Disorders12How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly...- 1
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- Liquid lunch replied to Bebygirl01's topic in Related Issues & Disorders12
How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Hi Trents, there’s a test centre here that tests for igg and ige antibodies, would neither of these pick up celiac disease? I haven’t had the test because I didn’t know about it until I’d already been along the elimination diet route and it’s pretty obvious if I eat the wrong thing because I swell up like a balloon and my guts bleed. Possibly another a...
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By knitty kitty · Posted
@Liquid lunch, I prefer the AutoImmune Protocol Diet, developed by a Celiac, Dr. Sarah Ballantyne. I would be interested on your point of view about the AIP diet compared to the Lectin Free diet. Here's some research on both.... Dietary Lectin exclusion: The next big food trend? https://pmc.ncbi.nlm.nih.gov/articles/PMC6603809/ Autoimmune protocol diet: A personalized elimination diet for patients with autoimmune diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC11755016/ An Autoimmune Protocol Diet Improves Patient-Reported Quality of Life in Inflammatory Bowel Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6892563/#:~:text=The AIP dietary intervention consisted,week maintenance phase%2C during which Effects of Autoimmune Protocol (AIP) diet on changes in thyroid parameters in Hashimoto's disease https://pubmed.ncbi.nlm.nih.gov/37772528/ -
By Liquid lunch · Posted
Thanks, sorry for all the questions but in the above link.. ’Remember, nearly all tests and screening for celiac disease require the patient to be eating a gluten-containing diet before testing’ I guess this also applies to other lectins so you would need to be eating them in order to find out via igg/ige testing which ones you’re reacting to? It says ‘nearly all tests’, is there one that will identify problematic lectins if you’re not eating them? -
By knitty kitty · Posted
Hey, @James47, I encourage you to avoid alcohol completely. Alcohol affects your ability to absorb essential vitamins and minerals just like Celiac does. The body can crave alcohol because alcohol breaks down into glucose and the brain likes glucose for fuel. Carbohydrates breakdown into glucose, too, but more thiamine is needed to process carbs into fuel than it takes for alcohol to turn into fuel. In an effort to conserve thiamine when there's insufficient thiamine available, carbs are turned into fat and stored in the abdomen. Supplementing with a form of thiamine called Benfotiamine is beneficial. Benfotiamine has been shown to promote intestinal healing. Higher doses of thiamine than the RDA are needed to correct thiamine insufficiency. Thiamine is water soluble and nontoxic even in high doses. Once the body has a sufficient supply of thiamine coming in regularly, the cravings for alcohol can disappear because the body has sufficient thiamine to turn carbohydrates completely into glucose as fuel, and no longer needs to store half-processed carbs as fat. Adopting a low carb diet with thiamine supplementation can help burn off those extra pounds of carbs stored as fat. Drinking alcohol can affect the absorption of Niacin. Niacin is important in energy production along with thiamine. Think of thiamine and niacin being on opposite ends of a see saw, or pistons in an engine. Niacin primes the reaction, thiamine is the spark plug creating molecules of energy (ATP), and niacin resets everything for the next stroke. Niacin is also important in skin health. Niacin deficiency is called Pellagra which causes blisters, scaling and discoloration on sun exposed areas of skin. Pellagra can occur in Celiac Disease. I have experienced Pellagra. I also have Dermatitis Herpetiformis. Pellagra has been shown to have a correlation to Dermatitis Herpetiformis. Niacin will improve dermatitis herpetiformis. A form of Niacin, nicotinic acid, causes the small capillaries in the skin to expand, allowing antibodies to be cleared away from those dermatitis herpetiformis blister deposits. Niacin helps with the itching as well. The flushing may be uncomfortable at first. It's said that the more severe the niacin deficiency, the worse the flushing. But the flushing does lessen as you continue taking it, so stick with it. Without sufficient B vitamins, nerve cells continue to fire sporadically, hence the itching that never stops. Pyridoxine B 6 is needed for nerve transmission regulation. Remember the eight B vitamins work together. A B Complex as well as high dose thiamine (500 - 2000 mg/day) and niacin (up to 500 mg/day) will correct insufficiencies and thereby improve health. The eight essential B vitamins are water soluble and easily excreted if not needed. Taking the B vitamins several times a day increases their absorption. I took a B Complex and extra thiamine and niacin with the first two meals of the day. B vitamins may make you wide awake and energetic, so you may not want to take them close to bedtime. Do keep us posted on your progress! Recommended Reading: Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ And... Cutaneous manifestations in celiac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC4066147/ -
Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly in the case where someone has IGA deficiency or has been practicing a reduced gluten diet. Elevated IGG tests are more likely to have other causes besides celiac disease than are the IGA tests. You might find this helpful:
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By Liquid lunch · Posted
Hi Trents, there’s a test centre here that tests for igg and ige antibodies, would neither of these pick up celiac disease? I haven’t had the test because I didn’t know about it until I’d already been along the elimination diet route and it’s pretty obvious if I eat the wrong thing because I swell up like a balloon and my guts bleed. Possibly another author you might not agree with but dr gundry suggests that lectins trigger autoimmune disease and recommends the igg and ige antibody test to see which you are reacting to, my arthritis went away when I stopped eating them, my sisters fibromyalgia also miraculously disappeared. Celiac disease being an autoimmune problem I’m surprised that testing for reactions to all lectins isn’t common practice, it’s not just grains, there’s lectins in soya, chilli, cucumber, tomatoes, aubergine, melon, potato, banana, beans and almost all seeds.. I could go on and on, it’s easier to list low lectin food than high. If the idea of giving up lectins is freaking people out it really shouldn’t, dr gundry has a useful list of low lectin ingredients, it’s really easy, you just only eat things from that list. It’s been life changing for me figuring this out, with lectin avoidance, reishi and cordyceps I’m able to function pretty well.
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