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My Daughters Other Problems


kittyme

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kittyme Newbie

I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks


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sherylj Rookie
I was just wondering if other people have this problem. My son (6) is non celiac disease. He goes to school and never gets sick. If he gets the flu it lasts 1-2 days and it is gone. My daughter (3) is celiac disease and gets EVERYTHING! She doesn't go to school. She is always sick!! If she gets the same flu as my son it lasts in her for 5-7 days. She goes to the hospital for it (last time was last month for 5 days). This flu season alone was 3 times to the hospital!!!! Is it normal to be sick like this when you have celiac disease? We are kinda new at it (6 months gluten free). I have asked the doctors but you know what that is like. I don't really get along with many of them any more. Considering I have been threw 2 Gastros, 5 Peds, and 2 regular Docs with her. That ,however, is another very long, frustrating, almost violent:) story. Sorry to ramble, but if anyone could answere if this is normal it would make me feel better about the situation. Thanks

Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

Juliet Newbie

We were told that it took 6-12 months for the intestines to fully heal when they're young w/ Celiac Disease, and until then the immune system is weakened. The first cold/flu season after our then 2 year old was diagnosed, he was sick from October through March and still picked up things no one else did until around May. He got strep throat in June, too. This season at 3 years old, he has been sick, but all of January he was healthy, and he normally will go for at least a week, possibly two, before he gets sick again. He did get the flu shot and has not had the flu at any time this season, and all the colds he did get (several of which he also gave to his sister, father, and me :) ) didn't slow him down in the slightest. He maybe slept an additional 30 minutes on the first couple of days, but he was running around outside or at the mall when it rained every day that he has been sick. It's a dramatic difference from last year.

Generic Apprentice

I used to get every bug, food poisoning, cold, you name it that came within a mile of me. I used to be sick more often than I was well. I was diagnosed at 13 y/o. I continued to be sick like that until I went to accupuncture about a year and half ago.

Hopefully she won't have those issues. Make sure you give her a good daily vitamin and have her vitamin levels checked for defficiancies. I remember I was defficent in a bunch of the fat soluable ones (A,D,K,B etc.) and that probably contributed to the poor health issues.

kittyme Newbie
Dear Kittyme.

From what I have read celiac can lower ones immune system,,esp. in a younger child.

I am currently reading "Celiac Disease" A hidden epidemic. Some of it is over my head :P

There is a chapter on dealing with celiac in younger children which gives some common sense guidelines. The rest of the book is an interesting mix of information. If my brain fog would clear I might be able to read and comprehend more of it.

My days of being a mother of young children are over but I recall the frustrations of dealing with illness and just the sometimes overwhelming feeling of trying to do everything "right". So keep working on the gluten-free diet, enjoy the good moment inbetween the problem days.

Are her weight and growth pattern within norms?? How is her appetite?

I like my ped. in Plymouth, MI Child Health Associates. Even though my youngest is 18 they are still seeing her for her low weight issues . They have responded very well to my questions.

Sheryl

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      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
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    • Jess270
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      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
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