Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going For The Scope?


Marlene

Recommended Posts

Marlene Contributor

Hey,

I have been gluten/casein free for 9 1/2 months. While I have seen major improvement in some areas, I continue to struggle with upper abdominal issues. I get this upper abdominal pain sometimes accompanied by nausea. The pain can last anywhere from a few hours to a few days or even a week. Spicy foods, acidic foods, caffeine, chocolate, and stress really seem to aggravate it. It seems to get worse when my stomach is empty. I am also still losing weight. I have gone from a size 12 to a size 6 in the last year and a half. I still feel tired and often weak.

I really think there is something still wrong with my small intestine/duodenal area. Ulcers, maybe?? I had a blood test for H Pylori about 1 1/2 years ago. It came back negative. However, I have learned since then that if you are taking Pepto Bismal (which I was practically living on at the time) you can get a false negative.

I really think I should get an endoscopy and biopsy of my small intestine to see if there is anything else going on. As much as I can't handle anything stuck down my throat. Do they put you completely out for this procedure? I really hope so.

Any similar experiences or advice for me?

Thanks!

Marlene

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deedub Rookie

I just had one done this past wednesday, it really was soo easy, quick, painless. I didn't even need to sleep off the drugs the rest of the day. I was put out, but not totally..more like a twilight state..not too bad at all. Apparently its' considered the best test for these GI issues, but still not always accurate.

Good luck, it's really not a big deal at ALL..really !

Dave

Link to comment
Share on other sites
jmengert Enthusiast

The drug they gave me was for "conscious sedation," but once that stuff went into my IV, the next thing I remember is getting wheeled back to the recovery area. I slept and laid around the rest of the day, but it was really no big deal--and I was *terrified* of having the procedure done. Just make sure to have someone there with you to drive you home and have it in the morning since you can't eat or drink after midnight. I took the day off from work but was fine to go back to teaching the next day.

Good luck--I hope they can figure out what's going on.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,715
    • Most Online (within 30 mins)
      7,748

    jt25741
    Newest Member
    jt25741
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      There are some causes besides celiac disease for elevated tTG-IGA, such as cow's milk protein, some other bowel diseases, NSAIDs, a certain blood pressure med and parasitic infections but the chances of that being true are not very high compared to the cause being celiac disease. And even with CMP (Cow's Milk Protein) most of those cases involve people who already have celiac disease.   
    • cristiana
      Hi @Schellee94,  it is good to know that you have found this a helpful thread.  Do let us know how you get on! Cristiana
    • trents
      Did you purchase it thinking it was gluten free? The company doesn't advertise it as such do they? Barley is not one of the eight main allergens that the FDA requires to be posted in the allergen info. Wheat is but not barley. But good catch. We don't see many products with barley and rye as ingredients and it is easy to get lazy, not really read the detailed ingredient list and to just go straight for the allergen list.
    • TraceyG
      @Wheatwacked thank you for checking in about choline. I do meet me recommended amount on a plant-based diet already, per my nutritionist. Thankfully, I am not intolerant to soy and the cruciferous veggies I enjoy! 
    • TraceyG
      @Wheatwacked thanks for your input. I am fully committed to being gluten-free if I truly have celiac disease.  I suppose my question is more so wondering if that blood test means I definitely have celiac disease. I had one doc look at the results and tell me to ignore them if I don’t have the classic celiac symptoms. The next doc (a few months later, when viewing the same results) said the results were suspicious and might mean gluten sensitivity, but then had her nurse call me later the same day to say I actually have celiac disease based on the results. So my care team seemed a little unsure. It sounds like, from this forum, that the general consensus is any abnormal blood results indicate celiac.
×
×
  • Create New...