Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Today Could Be The Day

confused

Recommended Posts

confused Community Regular
confused
Posted

I am so nervous, it has been 2 weeks since i did the entrolab testing. I keep checking my mail to see if i have the results. I kinda want to see what they say, but im afraid about the casein test, i dont know if i can give up cheese lol. Giving up gluten has not been that hard but to give up cheese, might be the hardest thing i have ever done.

When you all got ur results about what time of the day was it.

With my luck i wont get them back til closer to the 3 week mark lol

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hathor Contributor
hathor
Posted

I found out mid-afternoon, a little over two weeks later.

jerseyangel Proficient
jerseyangel
Posted

I got mine in a little over 2 weeks, late afternoon/early evening.

dlp252 Apprentice
dlp252
Posted

Same for me, a little over 2 weeks, but don't remember time of day. I agree, giving up dairy (especially cheese) was harder for me than gluten, but it can be done.

confused Community Regular
confused
Posted
  • Author

Thanks everyone, i guess i shouldnt be thinking today can be the day. I think i need to get out of the house so i will stop checking my email lol

paula

JerryK Community Regular
JerryK
Posted

Early afternoon, Pacific time.

You don't say what tests you had done, but I'm guessing you will be positve for antibodies, especially if you are having symptoms. If you had the gene tests done, great...it will either exclude Celiac or

not. Most everyone will have at least one Gluten Sensitive gene marker....

In my case Enterolab "diagnosed" gluten sensitivity...the gene test excluded Celiac and blood tests from my doc also excluded Celiac.

IMO the best test is the gluten-free diet. Although for me it's nice to know I don't have the Celiac gene, it doesn't buy me a whole lot. I still get sick when I eat it and no amount of testing is going to change that. j

confused Community Regular
confused
Posted
  • Author

I did the complete test. I will be surprised if i dont have the celiac gene. But either way i will not go back to gluten. I am feeling pretty good for the most part.

Since i am the same time zone as texas, i guess mine can be here at any time of the day.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

I got them in the afternoon, central time. It came in an email which was a good thing. I didn't realize it was my result so I happily opened it up to find out I was NOT casein intolerant. If it had come in the mail I probably would have left it sealed on the counter for a week before getting the up courage to open it.

confused Community Regular
confused
Posted
  • Author
I got them in the afternoon, central time. It came in an email which was a good thing. I didn't realize it was my result so I happily opened it up to find out I was NOT casein intolerant. If it had come in the mail I probably would have left it sealed on the counter for a week before getting the up courage to open it.

Well today was not the day, maybe tommorow, i guess i will have to keep waiting and driving my family crazy. I would be so happy if i came back not casein intolerant. I am not sure what i would do lol

paula

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      6

      Vaccines

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude...
    2. Scott Adams
      - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

      PS - Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.
    3. Scott Adams
      - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      6

      Vaccines

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine.
    4. Scott Adams
      - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

      Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celia...
    5. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      6

      Vaccines

      Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,841
    • Most Online (within 30 mins)
      7,748
    Alejandra Narciso
    Newest Member
    Alejandra Narciso
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Vaccines

      By trents · Posted

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
    • Scott Adams
      Opinions on my test results/symptoms

      By Scott Adams · Posted

      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
    • Scott Adams
      Opinions on my test results/symptoms

      By Scott Adams · Posted

      Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celiac disease is well-documented, but your celiac panel results are inconclusive, with only the deamidated gliadin IgA elevated. As you doctor correctly mentioned, this could indicate non-celiac gluten sensitivity (NCGS) rather than celiac disease, especially since you lack classic GI symptoms. However, the absence of improvement after four months gluten-free is notable. While some non-GI symptoms like fatigue and brain fog can take longer to resolve, the lack of progress raises questions about whether gluten is the primary driver of your symptoms. It might be worth revisiting the possibility of a biopsy (after a gluten challenge) to rule out celiac definitively, or exploring other potential contributors, such as nutrient deficiencies, other autoimmune conditions, or even dysautonomia, given your temperature regulation and energy issues. Have you had your thyroid levels retested since going gluten-free? If not, I would do that before resuming a regular gluten diet. It would be interesting to see if there has been any normalization in those levels while on a gluten-free diet.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods. 
×
×
  • Create New...