Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Obtaining Health Insurance With A Diagnosis


alamaz

Recommended Posts

alamaz Collaborator

Right now I have decent health insurance through my employer eventually however when we have kids I plan to stay at home and then would have to do something about my insurance coverage. Hubby is self employed so we'd have to get individual coverage for me. I've already had the blood test come back positive and have a biopsy scheduled for next week. Now my mom's doctor told her NOT to get tested because of health insurance reasons and I'm now freaking out that at some point I won't be able to get health insurance or have to pay a super high premium to get a bad plan. Does any one have any experiences similar to mine and did it work out okay? Has any one been denied health insurance because of celiac? I've read that each deline from an insurance company is just as bad as going without health insurance for several years. It's so confusing!!!! :angry: Should I skip the biopsy so it doesn't go on my health insurance and just the blood tests will be there?

Thanks,

Amy

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

What you do is your choice, nobody can make it for you. But yes, some members here have been denied health and/or life insurance because of an official celiac disease diagnosis.

If you feel that your positive blood work and your diet response to the gluten-free diet is good enough to be convinced to stay away from gluten for the rest of your life, the biopsy really won't be needed. But as I said, only you can make the decision either way.

Link to comment
Share on other sites
Guest lorlyn

My husband and I decided not to get him tested for Celiac just because we do not want it on his medical record. Unless we have to we will not bring it up with his doctor. I worry about my 10 year old not being able to get insurance when she gets older. Hopefully things will change over time

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    2. - Pua replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    3. - trents replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease

    4. - Wheatwacked replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    5. - Wheatwacked replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,835
    • Most Online (within 30 mins)
      7,748

    Ellouise
    Newest Member
    Ellouise
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Pua, do you understand that genetic testing cannot be used as proof of having celiac disease as it only establishes the potential to develop active celiac disease? About 40% of the population has the genetic potential to develop active celiac disease but only about 1% actually develop it. However, it can be used as a rule out measure.
    • Pua
      Mahalo for all of the answers this has been super helpful. He is doing so much better on a gluten free diet. I may consider genetic testing as I never thought of that as an option and I definitely don’t want to go the usual route and have to give him gluten again for the test. It’s nice to have an “official diagnosis” but as long as he’s healthy I don’t care.  mahalo again!
    • trents
      Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave is referring to would be helpful. In addition, the ranges and units of measure used by different labs differs from one lab to another. There is no industry standard for these. So, we would need to know the reference ranges for negative vs. positive for that test used by the lab who did the analysis. And was there only that one test ordered by the physician? 
    • Wheatwacked
      When my son was weaned in 1976 he was diagnosed with Celiac Disease.  My mom said at the time. "you got what you gave." His doctor insisted on Nutramigen as the only hyperallergenic baby formula with full nutrition.  After 6 months he was weaned to gluten free diet.  It seems it still has that status. He has grown strong and well.
    • Wheatwacked
      Hi @Marilyn1941, Welcome to the forum. There is not enough info to go on.  What test name? What are the results and the laboratory's normal range they used?  Why were you tested? What kind of symptoms?  Age, sex and country would be helpful but not necessary. 
×
×
  • Create New...