Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Post! Advice/empathy Please!

HannahHannah

Recommended Posts

HannahHannah Apprentice
HannahHannah
Posted

Hi everyone,

First-timer here - I was hoping I could find some people with the same problems as me who can offer som advice (or just tell me that they're feeling the same!)

My doctor has diagnosed me with a wheat intolerance following an exclusion diet. Standard blood test (not checking for coeliac) results also showed I have low urea - does anyone know what this means?? I am now currently awaiting results of a specific blood test for coeliac disease. I'm really hoping it is just and intolerance and not coeliac.

Anyway, I am finding not eating wheat incredibly difficult. I just feel like all of the joy has been taken out of food. Does everyone feel this way at first?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

I know it's hard trying to figure out what to eat at first. Try to think of what you can eat. I'm almost 3 months gluten free here. I finally went to a gluten free bakery and bought some goodies a week ago. I got some soft sugar cookies that remind of the Lofthouse ones. I finally decided to try baking. I made some blueberry muffins last night and I have a batch of shortbread cookies to bake today. I'm still having a hard time finding bread, but did find some rice wraps that work nice for a sandwich. Try looking through the recipes and make some old favorite gluten free for a start.

Slackermommy Rookie
Slackermommy
Posted

It is so tough at first, but you will find your way. This website is a great way to start.

I hope the tests show what the problem is, so you will know what you need to do.

Good luck!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW replied to glucel's topic in Coping with Celiac Disease
      5

      potato chip cross contamination

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    2. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines

      I'm 63 Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is...
    3. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude...
    4. Scott Adams
      - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

      PS - Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.
    5. Scott Adams
      - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,842
    • Most Online (within 30 mins)
      7,748
    clkilmer14
    Newest Member
    clkilmer14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ShariW
      potato chip cross contamination

      By ShariW · Posted

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Vaccines

      By trents · Posted

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
    • Scott Adams
      Opinions on my test results/symptoms

      By Scott Adams · Posted

      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
×
×
  • Create New...