Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Talk To Oprah

wethree

By wethree
in Publications & Publicity

Recommended Posts

wethree Newbie
wethree
Posted

On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jacqui Apprentice
jacqui
Posted
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

confused Community Regular
confused
Posted
done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

jacqui Apprentice
jacqui
Posted
I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

Ditto.

It is almost a year now and I am sooo tired of people including most of the doctors I or family have had to deal with. NO ONE takes Celiac serious, well at least the people(including family!!) I have been dealing with have been completely ignorant.

I can't go on it is late and I feel a rage of frustration coming on... :angry:

jacqui Apprentice
jacqui
Posted
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

I went, I signed up, But I couldn't find what you were talking about so I started to e-mail them and then got side tracked...

Where do I look?

My husband and I will do it this morning...

darlindeb25 Collaborator
darlindeb25
Posted

Click on her site and scroll down to "email us". When that window opens, there are different guestions you can click on and one is, Do you have an idea for our show?

UNCHeel Rookie
UNCHeel
Posted

I think you all read my mind. I will log in and make the suggestion as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

GREAT IDEA!!!!

I'm rushing out the door right now--can someone please post a link to tempt those who are either lazy, rushed, not good with Oprah's sites, etc? That way, we might get more of us getting the message across to Oprah!

jerseyangel Proficient
jerseyangel
Posted

Here's the link--

Open Original Shared Link

confused Community Regular
confused
Posted

Done, i so hope she listens to all of us that send in this idea. I really belive she will listen to us.

Has anyone ever tried to get Dr Phil to do an show on celiac?

paula

luvs2eat Collaborator
luvs2eat
Posted

Don't like Oprah... won't watch Oprah... the only time I've written was the first and last time to tell her to please scrape her nose off the ceiling... cause I don't CARE what she thinks!!

(bah, humbug... I'm not usually so crabby...)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Thanks, Patti!

I sent my request in. This is the second time I've written (I tried last summer, too), but maybe it'll catch her attention if a whole bunch of us keep peppering her with emails!

finally diagnosed Apprentice
finally diagnosed
Posted
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

all set. i sent an email with a suggestion. i hope it works. lorrie

UNCHeel Rookie
UNCHeel
Posted

Mine is in too. We'll keep our fingers crossed.

  • 2 weeks later...
angelbender Newbie
angelbender
Posted

Well, a bit later than these other postings but I just sent my request to Oprah's Show too. I also am not very fond of her anymore.....she pretty much does whatever she pleases/suits her. I had written a number of times years ago about covering Fibromyalgia and got a nasty reply. Perhaps this will turn out better.

I haven't checked all of the postings yet but did anybody see the article on Elizabeth Hasselback in the April 09 issue (it came out last Friday) of People Magazine where it mentions her Celiac Disease twice?

  • 2 weeks later...
brendygirl Community Regular
brendygirl
Posted

Today they show Oprah After the Show and it had Oprah's trainer, Bob Greene talking about his book The Best Life about diet and exercise. A woman in the audience asked how she could accommodate her diet since she is allergic to peanuts, dairy, and gluten.

Bob said there are gluten free recipes on his book's website and that when you register you can set parameters so you can only receive Gluten-free recipes.

I thought it was great to hear them speak about gluten free! It seemed he was quite familiar with it.

elye Community Regular
elye
Posted

Unfortunately, he isn't as familiar with the disease as we all are, or he'd be ALL OVER Oprah to do a complete show on celiac and its myriad debilitating symptoms... :(

Canadian Karen Community Regular
Canadian Karen
Posted

Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

gfp Enthusiast
gfp
Posted
Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

LOL... no offense.... but Oprah will do what makes for viewing figures....fits neatly into a show.... etc. and has the right components to make her look good...

So the problem really is her Dr's probably have no idea about celiac disease.... (above and beyond what our MD's do)....

We can probably see 101 reasons it actually would make a good show.... and all the different avenues she could explore whereas her advisors and script writers just see a dull disease....

Basically and I know this sounds tough.... a few avenues she'd love to cover would be

"My husband had moods and beat up on me when he was glutened"

"I lost my job/baby/marriage due to celiac"

"My employer discriminated against me because of my disease"

Not poor (mainly) white (often) middle class Americans ... or perhaps I'm just cynical...

More chance of getting on Jerry Springer by saying you'll get glutened and start pulling the hair out of the MD they bring on to say brain fog is all in your head.... :ph34r:

However its definately worth a go.... I just think y'all have more chance if yoos rights yoos emails like this!

elye Community Regular
elye
Posted

That is a great idea!

The producers of Oprah's show are simply rolling their eyes at stories of weekends spent in the bathroom with unrelenting D, of nagging migraines, of brain fog, of stomachs that look nine months pregnant...I can just see their eyes glazing over. They need to hear from those who have had countless miscarriages, a failed marriage, spectacular seizures and memory loss, the cancer diagnosis that could have been halted had celiac been diagnosed in time. Unfortunately, it is only the gut-wrenching stories that they will glance twice at--the stories that would make her audience stammer, "WHAT? Eating wheat can do THAT?!" If anyone is brave enough to write to Queen O with a personal account of the truly tragic and debilitating sides of this disease (and you must sound desparate and committed to getting the word out) I think then we have a chance of bending her ear. Gfp, you are onto something...

gfp Enthusiast
gfp
Posted
Gfp, you are onto something...

Sometimes I actually hate to be correct....!

Its just entertainment... people tune in for sensationalism.... I don't think Quenn O is bad... she's just dfoing her job which is entertainment.... and in some ways she does actually help.... but only when it fits the sensationalism and promotes her... but that is what entertainment is all about...

I always remember hearing a newspaper writeup for Jerry Springer doing a show at Cambridge univerity.... he started the show by asking what the heck intellengent people were doing watching his show.... then continued saying he doesn't care if it makes him money.. (at least its honest)...

The thing is there is some sensationalist thing in all of us to some extent.... its the slow down to see the traffic accident syndrome...

but it makes for good viewing figures and these people are just following their job....

I honestly think unless there is sensationalism its not going to be considered... and that means as you say someone willing to share (on national TV) some very personal stories....

Suzanne M. Rookie
Suzanne M.
Posted

I also have written to Oprah about doing a show. She reaches so many households. I run into people every week that seem to have symptoms of Celiac, but, have never heard of it, and they are not getting diagnosed correctly.

elye Community Regular
elye
Posted

I'm afraid my personal account to Oprah was just too eye-rolling and boring...low iron and vague GI stuff. But I am serious when I put the call out to the countless people who have eye-opening, incredible stories about what gluten has done to them. Really, I'm certain that this is the magic bullet to get Oprah finally to look our way, after all the posts we have shared together over the last few years on this problem of getting her attention.

  • 2 weeks later...
brendygirl Community Regular
brendygirl
Posted

Oprah tends to do shows based on topics of interest to people she knows. For example, she just did a whole show on the topic of Russell Simmons' book, Do You. Oprah does not have celiac disease, and it is NOT her responsibility to do a show about it.

ELISABETH HASSELBECK DOES have celiac disease and SHE should be using HER celebrity status to push the issue and SHE should talk to Oprah about how she felt the best she ever had while on Survivor- eating only fish and rice! (the mini-segment The View did on celiac disease was downplaying and confusing- it seemed her mission was to show how NORMAL she is rather than to educate people about it)

eleep Enthusiast
eleep
Posted

Hey -- if she needs someone to talk about losing a relationship because of celiac, I'll dish about my breakup for celiac publicity!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. peg
      - peg replied to Soleihey's topic in Related Issues & Disorders
      4

      Gluten Ataxia and Malabsorption

      Hi Scott, You mentioned in your response that you have been taking supplements long term. What brand(s) do you take? I ask because I've had a very difficult time finding truly gluten free supplements that have not made me sick over time from allowable trace amounts of gluten within the FDA's acceptable limits. Thank you, Peg
    2. Scott Adams
      - Scott Adams replied to Itchyperson's topic in Dermatitis Herpetiformis
      28

      Cycle of dermatitis herpetiformis

      Keep in mind that Dapsone can have some serious side effects, so be sure to look into those before you start using it. More about that is here: https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/description/drg-20063327
    3. eKatherine
      - eKatherine replied to SaiP's topic in Related Issues & Disorders
      12

      Dangerously underweight, Perfect gluten free and insomnia

      I suggest you look at your calorie intake. If you're not eating enough calories, your body will signal you to wake up and forage for more food. You need to be eating more calories than a healthy person of normal weight in order to gain weight. Also, your diet is extremely low in fat unless you are eating chicken thighs with the skin on, which I would recommend...
    4. trents
      - trents replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False blood test positive?

      Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
    5. Russ H
      - Russ H replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False blood test positive?

      Your initial test showed a moderately raised level of IgA tTG2. There are several causes of this apart from coeliac disease including: inflammation of the joints, bowel and liver. Transient rise in levels can be caused by an infection.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,177
    • Most Online (within 30 mins)
      7,748
    Marla Jansen-DeMarco
    Newest Member
    Marla Jansen-DeMarco
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • peg
      Gluten Ataxia and Malabsorption

      By peg · Posted

      Hi Scott, You mentioned in your response that you have been taking supplements long term.  What brand(s) do you take?  I ask because I've had a very difficult time finding truly gluten free supplements that have not made me sick over time from allowable trace amounts of gluten within the FDA's acceptable limits. Thank you, Peg
    • Scott Adams
      Cycle of dermatitis herpetiformis

      By Scott Adams · Posted

      Keep in mind that Dapsone can have some serious side effects, so be sure to look into those before you start using it. More about that is here: https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/description/drg-20063327
    • eKatherine
      Dangerously underweight, Perfect gluten free and insomnia

      By eKatherine · Posted

      I suggest you look at your calorie intake. If you're not eating enough calories, your body will signal you to wake up and forage for more food. You need to be eating more calories than a healthy person of normal weight in order to gain weight. Also, your diet is extremely low in fat unless you are eating chicken thighs with the skin on, which I would recommend. Also be sure to add butter (real butter) to your vegetables. You can measure and record everything you eat, then look up and calculate what your protein/carb/fat intake is. Or just eat more chicken rather than filling up on vegetables and fruit.
    • trents
      False blood test positive?

      By trents · Posted

      Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
    • Russ H
      False blood test positive?

      By Russ H · Posted

      Your initial test showed a moderately raised level of IgA tTG2. There are several causes of this apart from coeliac disease including: inflammation of the joints, bowel and liver. Transient rise in levels can be caused by an infection.
×
×
  • Create New...