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Physically Feeling Better!


LoveBeingATwin

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LoveBeingATwin Enthusiast

Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.


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sfm Apprentice

I actually thought a lot of people actually gained weight once their bodies started actually begin to absorb nutrients better. I did lose, at first, but only because I was only eating fruit, veggies, and meat. Once I discovered substitute breads, pasta, etc., I gained a little. :rolleyes:

Be patient - continue to eat healthy and your body will become healthier - maybe that will help you lose that little bit of weight that's frustrating you.. :)

Sheryll

ravenwoodglass Mentor
Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.

Hang in there, excercise and watch the calories but don't go to extremes trying to limit them. It can take some time and your body may still be in the 'hey I am starving absorb everything you can' mode. For now enjoy feeling great and maybe take up an active hobby that you weren't feeling quite up to before.

Also as you become more fit remember that muscle weighs more than fat so try to judge by the fit of your clothes more than the scale.

Jenny1972 Rookie
Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.

I wanted to ask the same Q. Been gluten free for 3 monthds.All my friends have noticed how thin I look and get I still weigh the same. Don't understand. All my trousers I brought at Xmas are all baggy and I feel lighter and get the scales don't reflect this.

Jenny

aikiducky Apprentice

Jenny, it's probably what ravenwoodglass said, you're developing a bit more muscle instead of fat, so you are slimmer even though you weigh the same. The best measure is how your clothes fit and how you feel, not what the number is.

Another thought I had is that if you were bloated before, maybe the bloat has gone down but your weight hasn't actually changed that much.

Bottom line, first get healthy, then start worrying about weight. Give your body a chance to heal and stabilize itself.

Pauliina

blueeyedmanda Community Regular

I gained once going gluten free. I was always at 139 my whole life, then when I was sick I dropped to 110. Well, I went in for an appointment in November and the scale is above 139...by a few lbs...I am too ashamed to say how many but I can give you a hint it is greater than the number of all the fingers on both my hands. I have been trying to get into a healthy lifestyle, I don't really eat junk food or candy or drink a lot of soda's. I have started to work-out. My biggest problem has been portion control...Once I found the foods I liked, I was eating a lot more. Especially the Tinkayada pasta. I don't want my weight to go out of control either so I am doing what I can now. I have bought some south beach diet bars, there are two flavors which seem safe. The hardest thing has been seeing my coworkers doing real well on their diets and so I feel Fat right now. Some of clothes do not fit right like they used to. Enough of my rant.

NoGluGirl Contributor

Dear Everybody,

I have had the same experience. I think once the dairy gets out of my system again though that will help. I am going to try The Zone again. My pants got loose within a few days of being on it. The plan is really about balance. Plus, it is really easy to do for those of us who are Celiacs on a gluten free diet.

Sincerely,

NoGluGirl


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confused Community Regular
Dear Everybody,

I have had the same experience. I think once the dairy gets out of my system again though that will help. I am going to try The Zone again. My pants got loose within a few days of being on it. The plan is really about balance. Plus, it is really easy to do for those of us who are Celiacs on a gluten free diet.

Sincerely,

NoGluGirl

I would like to know more about the zone.

The first week i gained like 5 pounds being gluten free, but i have lost 4 of it the last 2 weeks, but i have lots more to lose. I was always like 120 til i had 4 kids in 5 yrs, and now with being celiac, it has been harder to lose it.

paula

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    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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