Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update: I Feel Better


megifluflu

Recommended Posts

megifluflu Newbie

I feel so much better. I noticed a difference in 4 days. But I'm still having issues. I feel like I am eating gluten somewhere and I cant figure out where.... either that or my body is still recovering. Going gluten-free is hard work but I feel like this can only get better. I'm still dreaming of bread though... lol... and for some reason having sleeping problems.

I know this is a great place to come when you don't know anyone else who is going through this. I mostly just read through what everyone else has to say.

It's crazy because just a couple of days ago I was scared of all of this and now I can actually see and feel the difference. I think my other half can tell, too. Everyday he would hear about something not going right and now he can tell that I've been feeling better.

And one more thing, why in the hell is the food so expensive?!?! That can't be legal to sell a loaf of bread for almost $10. and the problem is that I miss bread that much!! :(

Thanks for your thoughts~

Megan :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

I am so happy you are seeing results! It's amazing, isn't it? :P

I would suggest investing in a bread machine and make your own. You can buy the bread mixtures. It is soooo much cheaper!

Hugs.

Karen

NoGluGirl Contributor
I feel so much better. I noticed a difference in 4 days. But I'm still having issues. I feel like I am eating gluten somewhere and I cant figure out where.... either that or my body is still recovering. Going gluten-free is hard work but I feel like this can only get better. I'm still dreaming of bread though... lol... and for some reason having sleeping problems.

I know this is a great place to come when you don't know anyone else who is going through this. I mostly just read through what everyone else has to say.

It's crazy because just a couple of days ago I was scared of all of this and now I can actually see and feel the difference. I think my other half can tell, too. Everyday he would hear about something not going right and now he can tell that I've been feeling better.

And one more thing, why in the hell is the food so expensive?!?! That can't be legal to sell a loaf of bread for almost $10. and the problem is that I miss bread that much!! :(

Thanks for your thoughts~

Megan :P

Dear Megan,

I am so glad you are recovering! I know what you mean about the prices! I cannot afford to buy any of the special stuff. I have to stick mostly with veggies and fruit. Meat, fish, chicken, and the like is what I need to have. Once in a great while, I get to have Glutino bars or something like Pamela's cookies. I agree that some of these prices should be illegal!

You may not feel a lot better until you stop eating dairy as well. I need to avoid dairy again.

I was doing much better until I began eating it. I could have other issues as well. There is a lot needing fixed to say the least in my case! :(

Sincerely,

NoGluGirl

confused Community Regular
I feel so much better. I noticed a difference in 4 days. But I'm still having issues. I feel like I am eating gluten somewhere and I cant figure out where.... either that or my body is still recovering. Going gluten-free is hard work but I feel like this can only get better. I'm still dreaming of bread though... lol... and for some reason having sleeping problems.

I know this is a great place to come when you don't know anyone else who is going through this. I mostly just read through what everyone else has to say.

It's crazy because just a couple of days ago I was scared of all of this and now I can actually see and feel the difference. I think my other half can tell, too. Everyday he would hear about something not going right and now he can tell that I've been feeling better.

And one more thing, why in the hell is the food so expensive?!?! That can't be legal to sell a loaf of bread for almost $10. and the problem is that I miss bread that much!! :(

Thanks for your thoughts~

Megan :P

I know the pirces are outrageous, my mom bought me up some cookies this week, They were like 4:99 so i figured the whole box would be full of cookies, when i opened it up there was only 9 cookies, i was like omg, i better not get addcited to these cookies. Thank goodness i can eat jsut one or 2 and be happy, but still, its outageous.

I just bought some bread to, and it was terrible for 7 bucks an loaf. I am going back to the mix that is like 4 bucks, and the bread is bigger and much better. The stuff in the store pre-made is hard adn gross, at least the 2 brand i bought lol

I felt awesome the first week going gluten free, but im back to feeling terrible, i think its cause i had to give up casein and im upset about that. I am having major withdrawls, even tho i know i will get use to it someday lol.

paula

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,391
    • Most Online (within 30 mins)
      7,748

    Gayle Lafond
    Newest Member
    Gayle Lafond
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...